@richardm56 what are your thoughts on this? These drugs are life changing, life extending and therefore life saving. Will you be covering this on @GMB. The life line is being taken away from most of the UK CF community #Kaftrio#cysticfibrosis#fightingforalifeunlimited
@CherryBeBop I cried when I read the announcement, my son will continue to receive kaftrio but reading that parents are going to go through the heartbreak of knowing there’s something that can change their child’s life but cost won’t allow broke me. 🤞 for your girl x
This is absolutely awful news, so upsetting! My son has not had a hospital admission for 2 years since he started kaftrio, his medication load has reduced significantly and he now leads a near normal life just like his brother, it has changed his life!
NICE have today given an update on their evaluation of the cost-effectiveness of the modulator drugs Kaftrio, Orkambi and Symkevi.
➡️ https://t.co/OOOSlqqQ0e (1/7)
@MrDeanP It doesn’t, but knowing that there’ll potentially be parents out there going through the agony of knowing these drugs are there and their children can’t have them because they’re too expensive is absolutely heartbreaking! I wouldn’t wish that anguish on anyone
Everyone in every country has the "Right to breathe"
Please watch the video at: https://t.co/l2rzYLSrbn
Advocate for the global CF community to have access to #Trikafta and all CF modulator therapies
Please sign the petition: https://t.co/hV2PN3J0xT
Pass. It. On
@CFcarer I don’t come on here much anymore either! Started a new career as a driving instructor so don’t have time anymore!! We’re all good thanks, hope you are too and hope I is doing well x
Fantastic clinic appointment for Will yesterday! Height and weight up, chest clear and no issues to report so at last we can drop his antibiotics and his hypertonic nebs!!! Thank you kaftrio!! #cysticfibrosis#kaftrio
Of course she's brilliant and working with her is the greatest blessing a scruffy music teacher like me could dream of.
But Lucy is what happens when you make instrumental tuition available to disadvantaged children.
Help us to get this message across to those who decide.
https://t.co/IoXfAW8cBS
Mind-blowing.
"In a scenario where treatment with Kaftrio is initiated between 12&17 years old, a patient’s median estimated lifespan is 82.5 years. That’s 45.4 years longer than estimates for CF patients on best supportive care alone." #cysticfibrosis
https://t.co/3LD0PID9bi
Some awesome news here! This is what we were campaigning for. A life unlimited by #cysticfibrosis.
@VertexPharma MUST make global access its priority. #CFcantwait.
CF patients should not have to pay for drugs to stay alive. The Government must make all CF patients eligible for a medical exemption certificate. The exemption list was created in 1968, and CF was not included due to patients rarely living into adulthood https://t.co/z4841ylAeF
Eli Parton gave Bill Plant Driving School 5 stars via @Trustpilot https://t.co/GNtGkmU7zc Thank you Eli for your lovely words, it was an absolute pleasure to teach you!
Congratulations to Elias for passing your driving test this morning at Stafford DTC on your first attempt! Well deserved pass! It’s been a pleasure being your instructor. Happy car shopping! 🚙🚙