“Uncover the truth that already exists within the endometriosis community”. Our mission is to reveal the injustices and TRUTH within the Endo Community.
#endometriosisawareness we push pts to learn the basics thru self study because if they do not recognize the red flags very often they continue in one failed treatment after another, we take heat for pushing pts to learn rather than telling them, but its critical in this disease
@DonaldJTrumpJr If you read & research anything about society, throwing “criminals” in jail or prison w a broken legal system doesn’t end crime or protect anyone. Fixing the economic & social issues will (and has).
Being uneducated & twisting a narrative doesn’t show care either.
Not only am I scared for my patients who require Adderall to treat their ADHD/be functional in their daily lives, but as a doctor with ADHD who takes Adderall, not having access to the medication that helps me be a functional physician and provide patient care is terrifying.
@MathewLeonardi Do we have research on how many patients were told they didn’t have endometriosis bc of this method? Do we not proceed with other diagnostics if their endo is not showing? Do we have a large study proving no follow up diagnostics found endo?
@MegganAnderson@usedgov Also a recipient of that award. The issue is… it’s not that those working for NON-profits and other civil service SHOULDNT be given proper help, it’s that you should too… or that “service” jobs are too limited to cover all service.
No need to put down one service…
@bennyjohnson Meanwhile Reagan is beloved by all those in a high tax bracket … but said he had dementia & couldn’t remember horrific war crimes he committed. So focused on how old Biden … when trump threw things when he didn’t get his way. Put up better candidates.
@LeahNTorres Funny how some effective non-violent / peace movement realized the same. So thus… the partners of government officials refused to have sex until a law was changed.
How effective that could be…
@Marco15Trump@TronnaGal@newsmax But on bills of abortion trigger laws it’s being considered as part of an abortion… read the actual legislation that passed in these states. So if you believe this to be true, why aren’t you protesting and making sure they don’t list it under abortions?
Expanding ICD codes for #endometriosis from ~6 codes to 7 PAGES!! This will allow improved dz tracking, service planning, disparities in care assessment, resource allocation, diagnosis accuracy= elevated treatment!✨ @tedleefly@AAGL @ReprodMed
@eullrich11 Yes and this specific talk was on feedback on why patients don’t want opioids after hysterectomies, c-sections, and other “women health” related conditions.
Yikes, if men where getting hysterectomies would we be telling them they can’t have proper pain management after a removal of ORGANS? Have Y’all never worked directly w. Pts who had these surgeries? You need to speak to actual chronic pain pts in womens health communities.
Join PharmedOut on Thursday, February 3, for our webinar, "How Pharma Grooms Patients and Advocacy Groups to Sell Drugs." Register here: https://t.co/mrAU4sq6KB #Pharma#Advocacy
@creagreenan @ABC@jamiedenbo@GreysABC Exactly, and if pts do suggest it, they are automatically gaslit.
We know patients that have hernias, who can’t hold down food or water if they do anything but lay in bed go to the ER and the minute they mention their history of endo they are silenced.
While we appreciated seeing Endometriosis on #GreysAnatomy18, there is a few key components that were incorrect & misinfo leads to improper care: @shondarhimes
1) Endo is not misplaced uterine lining. This is an outdated belief of Sampson’s theory suggesting endo is caused by…
@medlineplus@NLM_NIH We would love to be involved in this review. @BeeLynnNYC , our founder, is a small tiktok creator who speaks on endomeriosis and helps pts get proper access to care. They would love to connect with your team to update the information & sources
We don’t know who needs to hear this but:
Endometriosis Is NOT The Endometrium. It is an abnormal tissue more different then ALIKE the lining of the uterus.
By publishing this definition u are promoting an outdated & harmful MYTH.
Repost/tag an org that needs to hear this.
@CMerandi We work directly w pts who have hysterectomies & we have to remind them it is OKAY to need proper pain management for removal of ORGANS.
Women (XX ppl) already have lack of proper pain support for barbaric procedures.
This is the literal history of #hysteria & sets us so back