#Every1EndingEpilepsy

A national epilepsy research collaborative, funded and led by the Epilepsy Research Institute @EpilepsyInst.

[Epilepsy Research Institute @EpilepsyInst]

A new @mbrrace report has found that #epilepsy and stroke accounted for 9% of deaths in pregnancy in the UK, with a lack of safety information and professional training resources cited as key factors: https://t.co/rmrBAmgPvN
More research is vital to protect mothers and babies.

[#Every1EndingEpilepsy @Every1Epilepsy]

The #EpilepsyResearchInstitute’s key research themes were informed by the #UKEpilepsyPSP and further scoped and developed by #Every1EndingEpilepsy. Meet the Theme Leads and find out how you can get involved in the task force groups here: https://t.co/8HjGtTS87o

[Epilepsy Research Institute @EpilepsyInst]

The #EpilepsyResearchInstitute is pleased to announce the appointment of the Theme Leads driving the research strategy that will be central to the work of the Epilepsy Research Institute: https://t.co/PFwS5phYxy

[#Every1EndingEpilepsy @Every1Epilepsy]

Researchers, clinicians and healthcare professionals working in epilepsy recently came together for #ILAE2023, which saw the launch of the #EpilepsyResearchInstitute. It was inspiring to see the community united in our goal of radically advancing research:
https://t.co/FWtEJLU5AO

[Mito Research @MitoResearch]

The Newcastle Mito Team in the WCMR @UniofNewcastle @NewcastleHosps have had a fantastic time at the @ILAEBRITISH Annual Scientific Meeting @glasshouseicm. Thanks to the organisers for giving us the opportunity to join the #epilepsy community & share our #mitoresearch💚#ILAE2023

[#Every1EndingEpilepsy @Every1Epilepsy]

Join The Hub - @EpilepsyInst's online portal for researchers working in epilepsy and its associated conditions. You'll find discussions on the Institute's key research themes which were developed by #Every1EndingEpilepsy, as well as funding opportunities, PPIE and much more 👇

[Epilepsy Research Institute @EpilepsyInst]

Introducing The Hub – the #EpilepsyResearchInstitute portal for researchers working in epilepsy and its associated conditions. Find opportunities for funding, a discussion forum on our key research themes, workshops, vacancies, PPIE and much more here: https://t.co/jzsxkRDygp

[Faye McLeod @fayemcloud9]

Great meeting so far at #ILAE2023! Love discussing and getting feedback on our various projects in the lab on genetic epilepsies and anti-seizure medication impact in the early developing human brain @Every1Epilepsy @EpilepsyInst

[Sana Hannan @SanaHannan_]

Great start to the @ILAEBRITISH Annual Meeting today in Gateshead! 🧠⚡🤝 #ILAE2023 @Every1Epilepsy @EpilepsyInst @ResearchNetERI

[Anna Dimtsi @Anna_Dts_]

Great first day at #ILAE2023!

@Every1Epilepsy
@EpilepsyInst
@ILAEBRITISH

[Epilepsy Research Institute @EpilepsyInst]

What a day it's been at the @ILAEBRITISH Annual Scientific Meeting. Thank you to our Founding Partners, supporters and the research community for helping us launch the #EpilepsyResearchInstitute. Stay tuned for further updates on this pivotal moment for research into epilepsy…

[#Every1EndingEpilepsy @Every1Epilepsy]

The #EpilepsyResearchInstitute’s mission is to radically advance research for the 1 in 100 people living with epilepsy. The comprehensive research strategy developed by #Every1EndingEpilepsy will provide the foundation for this. Follow @EpilepsyInst for more updates

[Epilepsy Research Institute @EpilepsyInst]

Our CEO @MaxineSmeaton responded to your questions about the #EpilepsyResearchInstitute and laid out our plans to radically advance research into epilepsy: https://t.co/wM2PVBcKlW

[#Every1EndingEpilepsy @Every1Epilepsy]

#Every1EndingEpilepsy Programme Director @TonyMarson2 and @maxinesmeaton have just announced the launch of the #EpilepsyResearchInstitute at @ILAEBRITISH. The Institute will serve as a central hub for the epilepsy research community, find out more here: https://t.co/zG9etfpwQl

[#Every1EndingEpilepsy @Every1Epilepsy]

We’re thrilled to be at the @ILAEBRITISH Annual Scientific Meeting this week. Come and say hello at the C1 and C2 stand!

[#Every1EndingEpilepsy @Every1Epilepsy]

Great to see #Every1EndingEpilepsy Programme Director, Prof Helen Cross, speaking at the @IlaeWeb 35th International Epilepsy Congress about the @WHO IGAP. Read how the IGAP, along with #Every1EndingEpilepsy, will bring about radical change for epilepsy research in Helen's blog👇

[ResearchNet ERI @ResearchNetERI]

Professor Helen Cross, @EpilepsyRUK President, speaking at Day 3 of #IEC2023 about the @WHO IGAP on Epilepsy and Other Neurological Disorders - one year on.
You can read Helen’s blog on the IGAP here: https://t.co/Kg0FQkCvPN
@Every1Epilepsy

[Tony Marson FMedSci @TonyMarson2]

Well done @_JWMitchell excellent talk @ presidential syposium @IlaeWeb International #epilepsy Congress. Really important that we measure the right outcomes if we are truely going to make a difference. @Every1Epilepsy @epilepsy_liv @LivUniISMIB @theABN_Info @yesILAE @prw_paula

[#Every1EndingEpilepsy @Every1Epilepsy]

📢FINAL CALL📢
Last day to apply to become a Research Theme Lead and drive the development and integration of the four identified themes:
- Neurodevelopment
- Disease Modification & Therapeutics
- Mortality, Risk & Morbidity
- Reproduction & Hormones
https://t.co/6YYA44X8up…

[Caoimhe Twohig-Bennett @CaoimheBennett]

Today is the last day to apply to become a Research Theme Lead - full information below ⬇️
#Every1EndingEpilepsy

[#Every1EndingEpilepsy @Every1Epilepsy]

As well as working on developing the task forces, the team has been producing a research roadmap which we will later publicise alongside a campaign to drive strategic investment. Stay up to date with the latest programme updates and opportunities here: https://t.co/ay24GB3SOJ

[#Every1EndingEpilepsy @Every1Epilepsy]

Creating four dedicated task forces for the identified research themes will enable us to effectively advocate and action the research priorities of people affected by epilepsy. This will bring us one step closer to radically advancing research into epilepsy.

[#Every1EndingEpilepsy @Every1Epilepsy]

Today, the Steering Group will be discussing in more detail what these task force groups will look like and how they will operate to fast-track research into epilepsy across the four overarching themes. (2/2)

[#Every1EndingEpilepsy @Every1Epilepsy]

The #Every1EndingEpilepsy Steering Group are meeting virtually today to discuss the next steps for the collaborative. Once the Theme Leads are in post for the four research themes, task forces will be created to drive the development of each research programme. (1/2)