Sammy Jo

I'm gunna show the world who I am. #CRPS #FailedSpinalSyndrome #Disabled

[Sammy Jo @EvrythingsSpine]

Because of tmws snow my body was insane today. My speech was slurred, my brain fog was insane, my armpits feel like I have the flew, my jaw hurts from clenching. I hate "becoming my pain" but every limb feels like it's being torn off.
I lifted clothes today. #crps #spinalissues

[Sammy Jo @EvrythingsSpine]

I'm her Maid of Honnor. I felt bad telling her I needed to wear sneakers under a long dress. She wanted what was most comfortable so I could walk. #EverythingsSpine #EvrythingsSpine #FailedSpinalSyndrome #ChronicPain #chronicillness #HopeForHelp #BeBRAVE #CRPS #CRPSwarrior

[Sammy Jo @EvrythingsSpine]

Today my best friend watched me struggle to open a small card. She did what she always does- waits and lets me do it on my own. Before I could say yes, I was handed a Tiffany's box. Inside was a heart necklace engraved "BFF". 10 years ago I saved up and did the same for her.

[Sammy Jo @EvrythingsSpine]

#youtube #youtubehelp #youtubers what is the best program to use to produce videos? #videoproduction

[Sammy Jo @EvrythingsSpine]

@MyCuppaJo @APainPrincess @BNightsCRPS I've collected content for months. I'm not half assing this.... I can't for myself, you, all of us.
When I was a child I never new what I could be when "I grew up"-I felt like I could be anything. That brave & bold little girl is still inside of me.

[Sammy Jo @EvrythingsSpine]

@RITAFIGHTSCRPS I love this picture- I'm going to use it for my account!

[Chronic Pain India™️ @chronicpainind]

The #suicide disease #crps #chronicpain https://t.co/TYgegowBA3

[Sammy Jo @EvrythingsSpine]

@Unbrokensmile1 you have so much great info, I can't wait to read more tmw!

[Sammy Jo @EvrythingsSpine]

@Unbrokensmile1 I've had people be disappointed at the mg I get. It's to make my life manageable, not a "good time"

[Sammy Jo @EvrythingsSpine]

Literally my life. I can't lie anymore. It's worn me thin. https://t.co/TtcwkzpRTA

[The Unbroken Smile @Unbrokensmile1]

Having #CRPS and learning to lie and say "I'm Fine!" https://t.co/ZPNEEWN2ph

[Burning Nights CRPS @BNightsCRPS]

Learning to cope with Complex Regional Pain Syndrome is important. Here’s some tips on coping strategies for #CRPS #RSD #ChronicPain #NeuropathicPain https://t.co/ODtyf6GrRt

[Sammy Jo @EvrythingsSpine]

@ProfAmyE @BNightsCRPS My doctor insisted I was fine- I felt like I was losing my mind. He messed up and because CRPS was caught "too late" the atrophy has spread to my face. I wish it on no one.

[Sammy Jo @EvrythingsSpine]

@APainPrincess @BNightsCRPS @MyCuppaJo Sometimes I feel like I can't win. I push to be strong, but then that means I'm fine? So I should constantly complain and dig myself into a deep depression?

[Burning Nights CRPS @BNightsCRPS]

Thought of the day
Always remember there’s is no need to feel ashamed or guilty for being in pain. You didn’t ask for it. It’s not your fault. You’re doing he best you can. #CRPS #chronicpain #wednesdaywisdom

[National Pain Report @NatPainReport]

Our readers reactions...
#chronicpain #chronicillness #Fibromyalgia #crps #migraine https://t.co/0o7OdmJOvP

[Sammy Jo @EvrythingsSpine]

What's something you wish people understood about your own struggle? #disabled #Disability #strugglingwithdepression #health #MentalHealthAwareness #CRPS #chronicpainwarrior #chronicillness #pain #scaredformyfuture #everythingsspine #invisibleillness #spoonie

[Sammy Jo @EvrythingsSpine]

I suffer from RSD/CRPS - the past year atrophy has spread to my face. For a long time I could hide my pain. What are ways you deal with self maintenance?
#chronicpain #crps #chronicpainwarrior #rsd #disabled #DisabilityNotInability #Disability

[Sammy Jo @EvrythingsSpine]

I want to shed a light on being #disabled through humor and raw emotion on #YouTube. Post spinal surgery my #morphine wasn't turned on nor was my blood bag compressed. Nothing was documented. I want to #inspire #hope to others and finally receive the best #medicalHelp.