Wife to a loving husband, Mom to 2 awesome young men, Mom to one adorable doodle fur baby, Anesthesiologist and a lucky daughter, sister, & friend #ALS Warrior
@iamalsorg Very grateful for our friends Leah and Jason Wolf and WCRE for always supporting great causes, and us in our fight against ALS. @Jason__Wolf
@SteveGleason@AmericanAir Have a safe and wonderful trip. We just flew home from Nola for our sons graduation and we met your wonderful team and saw your fabulous offices. Also started listening to your book on the plane ride and love it. You are remarkable and keep the rest of us going thank you.
@limpbroozkit To tell patients that have experienced positive results from this treatment that their results are anecdotal is cruel and terribly unfounded. I am a physician, and I do have a science background. I would not hesitate to receive this treatment. Part 2
@limpbroozkit Brooke, you spoke beautifully at the adcomm. It was a devastating day. It would have been one thing if there was a fair conversation between all parties, however, it was clear that there was bias against NurOwn and Brainstorm from the beginning of the hearing.
Part 1
@limpbroozkit It is hard enough to live and fight against ALS every day without having to fight the government agency that is supposed to be supporting us. #NurOwn
@limpbroozkit To tell patients that have experienced positive results from this treatment that their results are anecdotal is cruel and terribly unfounded. I am a physician, and I do have a science background. I would not hesitate to receive this treatment. Part 2
@SwerveALS@kandysimons@Markbedwell11@sabrevaya@sandrawmarlowe To further clarify, I also believe that NurOwn could potentially help me gain some functioning back, or at the least stop or slow the progression of my ALS.
I second your support for immediate access to #NurOwn.
@SwerveALS@kandysimons@Markbedwell11@sabrevaya@sandrawmarlowe That 1 point on the scale would make a huge difference for me. I donβt know what NurOwn would do for me specifically, but I know it has helped others. I believe CBER should live up to their promise of regulatory flexibility, and that we patients have a right to try this treatment