Today is Giving Tuesday. Please consider making a donation to the @ALS_AB , who was there for Glenn every step of the way as his disease progressed.
#EndALS
@TavaresSpeer Very frickin' happy that you enjoyed every minute of it.
Chill, brotha. Perhaps some nice snacks and some Netflix shows that are fun, and some dog kisses.
big hug you beautiful bastah.
. / Josh
So grateful to @POTUS for supporting the #ALS community & so proud of Brian & Sandra for changing the future of #ALS & speaking at the #DNCConvention
As #Democrats we believe in #MyBodyMyChoice for women... certainly we should also believe in it for people with ALS who are #DyingWaiting for FDA approval.
Now we need POTUS @JoeBiden, @KamalaHarris & @Tim_Walz to get FDA to do what is right & approve #NurOwn, a mesenchymal #stemcell therapy which has helped SOME people with 100% fatal ALS halt lethal progression & regain lost function.
This was the AdComm testimony of the Phase 2 & 3 trial investigator Tony Windebank of Mayo who said in 40+ years as a practicing neurologist he has never seen people respond to ANY ALS therapy as they did to NurOwn.
In ALS & other #RareDiseases, the FDA is ignoring #RealWorldEvidence that Congress mandated they consider in 21st Century Cures.
Brian & 32,000 other people with ALS deserve a chance!
#DNC2024 #DNC2024CHICAGO
#KamalaHarris2024 #KamalaNation #HarrisWalz2024 #DemConvention2024
#reproductiverights #RoeVember2024
@SenAmyKlobuchar @RepAnnaEshoo @RepDianaDeGette@DorisMatsui @RepLBR @TeamPelosi@SenSchumer@SenGillibrand@RepSchakowsky@ChrisCoons @SenDickDurbin
@neeratanden@RepMikeQuigley
Our diseases change the way we feel and the way we look. What they cannot change is what is inside you. So stand up, you beautiful self.
Good night moon.
The NEW Amyotrophic Lateral Sclerosis and Related Disorders (ALSRD) Clinic at UBC's @DMCBrainHealth is now open. It offers consultation, ongoing assessment, intervention, and educational services to people with ALS and related motor neuron diseases.
https://t.co/MoixBQkQCf
Today was both incredible and difficult. I checked another item off my bucket list and saw the Colosseum in Rome! I walked 12k brutal steps on cobblestone paths to see it and it was worth it! FU ALS!! Not today! @ALS_BC@ALSCanada@ALSAction@kelsieswrites@iamalsorg @aislaonlus
Sending our heartfelt thoughts and prayers to the Gaudreau family. A senseless act turned into a tragedy. Be sure to HUG your loved ones, each and every day.
He’s the best. He finds opportunities to contribute to our life because it brings him joy. He loves to make the load easier whenever he can. #als#USMC#durhamVA#love#caregiverlife