@kelsieswrites Amazing video. I think of Chris often. His journey gave me so much hope when I was diagnosed sod1 a5v. We had a lot in common. He was ahead of me in toferson and I knew if Chris was ok then I would be okay 💔
@ScienceMat29751@bsw5020 This is me enjoying life with a feeding tube and not talking at Zach brown concert. The guy in the middle is John Driscoll Hopkins living with als and a member of the band. The others are my family. This is my why
@als_now@EUpALS@biogen I’ve been on qalsody for over two years. I’m sod1 a5v fast progressing. No one in my family lived beyond a year. Am I progressing? Yes-but slowed enough for me to be entering my 3rd year with decent quality of life. Walking. Bipap at night. G tube. Poor speech upper limb weakness
In response to @ConanOBrien’s desire to speed research for ALS at @ALSTDI, an anonymous donor has pledged to match all donations made up to $25,000, in response to his wonderful tweet! https://t.co/ExK6dd2DIL
.@SenBooker, watch Juan's story https://t.co/DteB8d4kY8 and help this Veteran continue to make memories and be an example of courage by cosponsoring the Elizabeth Dole Home Care Act (S.141).
@bsw5020 Today I had an infusion for a clinical trial. Grateful for the scientists and healthcare workers who made it possible and for the family and friends who support me in this journey.
Good night moon.
@MrBeast@MrBeast hear me out- I’m 34 with a terminal disease called #ALS (don’t I look just like Lou Gehrig?). Let’s get your $ toward a cure for a devastating, underfunded disease that kills someone every 90 minutes. You can be the next #icebucketchallenge.