Melanie Craig

Mom, RN, Fighting ALS SOD1

[I AM ALS @iamalsorg]

Thank you for your ALS leadership @SenatorDurbin and for sharing @bsw5020 & @sabrevaya's story with @SecKennedy. ALS is urgent with no time to waste. We look forward to advancing research & access to promising treatments with Sec. Kennedy, @DrJBhattacharya @DrOzCMS @DrMakaryFDA

[Melanie Craig @CraigMelanie]

@bsw5020 Slow horses

[Melanie Craig @CraigMelanie]

@RedSox4Life1960 @kelsieswrites Is this the Jeff that was my classmate at St. Ann’s?

[Melanie Craig @CraigMelanie]

@kelsieswrites Amazing video. I think of Chris often. His journey gave me so much hope when I was diagnosed sod1 a5v. We had a lot in common. He was ahead of me in toferson and I knew if Chris was ok then I would be okay 💔

[Melanie Craig @CraigMelanie]

@ScienceMat29751 @bsw5020 This is me enjoying life with a feeding tube and not talking at Zach brown concert. The guy in the middle is John Driscoll Hopkins living with als and a member of the band. The others are my family. This is my why

[Melanie Craig @CraigMelanie]

@AlsDads Hang in there landed in the hospital with Covid in July for five days -finally feeling better

[Melanie Craig @CraigMelanie]

ALS has killed multiple people in my family. Now it's coming for me https://t.co/RugOqxkQ1v via @TODAYshow

[Melanie Craig @CraigMelanie]

@als_now @EUpALS @biogen I’ve been on qalsody for over two years. I’m sod1 a5v fast progressing. No one in my family lived beyond a year. Am I progressing? Yes-but slowed enough for me to be entering my 3rd year with decent quality of life. Walking. Bipap at night. G tube. Poor speech upper limb weakness

[ALS TDI @ALSTDI]

In response to @ConanOBrien’s desire to speed research for ALS at @ALSTDI, an anonymous donor has pledged to match all donations made up to $25,000, in response to his wonderful tweet! https://t.co/ExK6dd2DIL

[Melanie Craig @CraigMelanie]

@bsw5020 Gratitude

[Melanie Craig @CraigMelanie]

https://t.co/UboUKFI98F

[Melanie Craig @CraigMelanie]

.@SenBooker, watch Juan's story https://t.co/DteB8d4kY8 and help this Veteran continue to make memories and be an example of courage by cosponsoring the Elizabeth Dole Home Care Act (S.141).

[Melanie Craig @CraigMelanie]

@bsw5020 Today I had an infusion for a clinical trial. Grateful for the scientists and healthcare workers who made it possible and for the family and friends who support me in this journey.
Good night moon.

[Her ALS Story @HerALSStory]

Her ALS Story Public Service Announcement 📣 ⁣
#ALSAwareness #EndALS #HerALSStory #FuckALS #ALS #LifeWithALS #Accessibility #Disability #MND #MotorNeuroDisease #ALSSucks #MNDAwareness #FuckMND #DisabilityAwarenesss

[Melanie Craig @CraigMelanie]

Huge shoutout to https://t.co/OBdFolljuw for equipment and training unlocking features of iPhone/iPad for als patients!!

[Lorri Cavaliere @LorriCav]

It takes a second…please retweet. Our daughter deserves ANY chance to live and #NurOwn is it.
https://t.co/0uhDPmfTyW

@iamalsorg @sabrevaya @bsw5020 @BartBaker @TeamGleason @DrCaliff_FDA @klink52 @kandysimons @BellinaDeb @FDACBER @dantate2 @rosadelauro

[Brooke Eby @limpbroozkit]

@MrBeast @MrBeast hear me out- I’m 34 with a terminal disease called #ALS (don’t I look just like Lou Gehrig?). Let’s get your $ toward a cure for a devastating, underfunded disease that kills someone every 90 minutes. You can be the next #icebucketchallenge.

[Melanie Craig @CraigMelanie]

#iaa4lou #LouGehrigDay @iamalsorg

[Brooke Eby @limpbroozkit]

Day 31 of ALS Awareness month! 🎶And nowww the enddd is neeeearrr 🎶 #alsawarenessmonth #als #lougehrigsdisease #support #donate #help #research #cure #terminal #share #wediditjoe @ALSTDI

[Melanie Craig @CraigMelanie]

@sairysays Nice work!