Fashion Butterfly

Raise awareness globally about #Lupus. Provide support to afflicted individuals. Support progressive research until we find a cure. LFA TriState Chapter Board.

[Fashion Butterfly @FashonButterfly]

How was your first time using #Benlysta?

[Fashion Butterfly @FashonButterfly]

@bunnyhugger75 Sorry

[Fashion Butterfly @FashonButterfly]

Every hour. Day and night.

[Fashion Butterfly @FashonButterfly]

@bunnyhugger75 Did your nausea improve with time?

[Fashion Butterfly @FashonButterfly]

How are you holding up during this time?
#coronavirus #Quarantine

[Fashion Butterfly @FashonButterfly]

Excellent!
Thanks @Seal

[Seal @Seal]

I spoke with @yahoolifestyle about my life with Lupus. Watch the full interview here:
https://t.co/2G6Zf0JBLx

[Fashion Butterfly @FashonButterfly]

Who else is stashed up on #chloroquine just bcus we take it daily anyways!? 💪🏽
This is good news for the #immunesuppressed community #lupus #coronavirus

[Fashion Butterfly @FashonButterfly]

@danielsgoldman Glad you are getting better!

[Fashion Butterfly @FashonButterfly]

When your daily pain meds are not enough and you’re tempted to take the hard stuff. 😩 I made it outta bed and took a long hot shower. I feel better. Didn’t take any narcs #Lupus #lupuslife #struggle #pain

[Fashion Butterfly @FashonButterfly]

Watching a #trump official blame everything that’s happening currently @BarackObama and @HillaryClinton . He answered every question with either Barack o Hillary being the original culprits!🤷🏽‍♀️#clown #Elections2020

[Fashion Butterfly @FashonButterfly]

I will not give up. I will not quit!

[Fashion Butterfly @FashonButterfly]

Thanking Gid for a new day and trying to stay positive, despite all the pain. #lupus #lupuswarrior #lupuslove

[Fashion Butterfly @FashonButterfly]

Good morning! Remember to take each day one at a time! #lupuslove

[Fashion Butterfly @FashonButterfly]

@LupusWarrior41 Good for you. I think I can reason with mine. Everything doesn’t work for everyone

[Fashion Butterfly @FashonButterfly]

#Plaquenil has my legs and arms cramping like crazy. Does it go away eventually? If not, I would rather not take it. #lupus #pain #SideEffects

[Fashion Butterfly @FashonButterfly]

@LupusWarrior41 These cramps/weakness are out of control. I’m reporting the side effects on Monday and I’m giving it a month. I don’t need anything giving me more pain

[Fashion Butterfly @FashonButterfly]

@LupusWarrior41 I’m going to make an Appt to at least have a start point. I need my eyes

[Fashion Butterfly @FashonButterfly]

@LupusWarrior41 That’s scary. I already suffer from dry eyes...

[Fashion Butterfly @FashonButterfly]

@Scottswife4ever I’m going to give it until Monday then I’m calling him. I’m taking 200mg once x day

[Fashion Butterfly @FashonButterfly]

Started on #Plaquenil on Monday for the 1st time and by today everything hurts. Is this a normal side effect? I feel as if a truck hit me.

[Fashion Butterfly @FashonButterfly]

@Scottswife4ever Good to know! Leg cramps wouldn’t let me sleep last night