Our logo. The ‘F’ is crossed out to portray our mission to eradicate the notion that #FND is just a ‘psychological condition’. It also emphasises our (and many others) belief that there is in fact a structural defect (however small) causing the symptoms of FND patients.
Just wanted to share Katie’s incredible progress over the last few months. You all probably know from my previous posts that Katie, suffers from FND (Functional Neurological Disorder) Videos, on the left, are from a few months ago. The videos on the right are from last week #FND
Hey everyone, here’s my latest vlog.
Talking about receiving the FND diagnosis after 4 months, and how I’ve restored a small sense of normality to daily life. #FND
https://t.co/AYW8C5nVMo
@warewendy_ware Hey Wendy. So sorry to hear that. Please don’t lose hope on her getting better though, I’ve seen some amazing turnarounds. I hope, pray and believe your daughter can too
Despite a diagnosis of FND our daughter remains unable to eat, experiences migraines, NEAD, widespread pain and requires a wheelchair. She was a neonatal nurse until 4 years ago. When will the NHS wake up?
Early designs for merchandise available from our website. 100% of profits will go towards funding help for FND sufferers. We will strive to provide free access to CBD oil for starters.
@ShelleyIOWUK In the meantime (if you aren’t already) join the group on Facebook ‘Functional Neurological Disorder’ everyone on there has been really helpful and supportive.
Fellow #FND sufferers! I am in the process of developing our website. What tools, tips and content do you wish you had at your finger tips to help with your symptoms and feelings?
@ShelleyIOWUK I will put together an extensive list of known symptoms and have an interactive feature where people can mark whether it is a symptom they’ve experienced and perhaps the duration (days) it has gone on for (at one time) Would that help/ reassure you? I know the feeling by the way!
Research in four major neurological centre suggests about 1 in 3 people attending #neurology outpatient clinics are diagnosed with #FND. How can CCGS and STPs justify not having dedicated FND services/support across the entire country?