Long Covid Awareness Video showcasing before and after images of people with Long Covid. And them telling us what Long Covid has stolen from them. Please watch it, share it. We need allies. #longcovidArawenesDay#LongCovidAwareness#longcovid
@SurvivingCFS Yep…it’s so not okay. I recently was able to unlock my tweets but only cuz my abuser abandoned me with no care. So can finally speak the truth. But, I couldn’t for over 2 years.
Saw the stars tonight, outside. My mom drove me in a car and I was able to look at the constellations. I saw Antares and Arcturus and Venus and a whole bunch of others. I cried because it was the first time I saw the stars in five years. 🥹🥲
💔Habe eine sehr traurige PN erhalten:
🖤#RIP Anna Fischer *15.9.1984 - †25.5.2026🖤
#MECFS raubte ihre Lebensqualität, ihre Hoffnungen, Pläne und am Ende ihr Leben. Ihr Leid, ihre Stärke und ihr täglicher Kampf dürfen nicht vergessen werden!🕯️
https://t.co/DejUeusHyv
🕯️#RIP Mirjam Knapp
* 08.12.1999 - † 28.04.2026
Mirjam wurde mit 14 zwangseingewiesen, auf grausamste Weise aktiviert u. misshandelt, nur durch die Hilfe von Dr. Speight durfte sie nach 20 Mon. wieder heim.
Sie starb an #VerySevereME.🖤
In Gedanken bei ihrer Familie.💔
Thank you to @rhirhiarhii for sharing your story. I know how much effort it can take to feature in documentaries like this.
Rhi has a fundraiser to help cover her living and medical costs.
I’ve just donated.
https://t.co/0AOREQTwTb
Being lonely and having literally no shot at ever finding a relationship when I'm too sick to ever be wanted by someone has been getting to me hard these past few weeks. I'm almost 33 and I'm just so goddamn lonely and have been for a very, very long time.
Guess who went downstairs to the garden yesterday morning🥹😍😭
Mum and dad made it happen (as did the wheelchairs, stairlift, ramp, bed, and spending the rest of the day and today in the dark sleeping & resting).
It was bloody magical, I cannot explain how much it meant.
My darling Ivy has had her financial support halved and is in desperate need of ongoing support,
Any shares or donations mean the world, I need her !!!!
@byowife
https://t.co/nW3ypTsxWF
🕯️#RIP Isla †14. Mai 2024
Vor 2 Jahren starb die 18 jährige Isla, sie litt an #VerySevereME#POTS#MCAS.
Vor ihrer Erkrankung mit 6 Jahren, war sie ein glückliches gesundes Kind u. freute sich über ihre kleine Schwester. Keiner ahnte wie schnell dieses Glück vorbei sein konnte.
Excited to announce our results from the first ever survey on GLP-1s for Long COVID and ME!
Patient outcomes showed two extremes: while 53% improved, 28% experienced worsening, some long after their last dose.
Full analysis here and in the tweets below:
https://t.co/SIULpsJkEl
Everyday I am telling myself I am not going to do this another Year because of the amount of suffering and Everyday I still Keep going because there is no other Solution.
Treatments are so overdue its incomprehensible
I think illness declines can feel worse than the start of illness. At the start I had no idea what happened but I thought it would get better. When the first decline happened I realized that not only it wouldn’t get better, it can get worse. That was so emotionally lonely. 1/
In 2026, comedian Jon Stewart still has no idea what 'chronic fatigue syndrome' actually is. He has no idea that this is an old, inaccurate and offensive name for ME/CFS, a devastating disease affecting 1 person in 200, including young adults and children. @jonstewart 🧵