Holly

❤ for community advocacy activism. Love family. Reading & Music essential. Beach = happy place. #MillionsMissing #pwME OPINIONS ENTIRELY MY OWN!

[#MEAction Network @MEActNet]

Jaime Seltzer, Scientific Director at #MEAction, makes a powerful case for fighting against Medicaid work requirements that imperil people with ME at this year's #MillionsMissing. Full speech available here: https://t.co/fEzEjikQ5f

MECFS #Medicaid #disability #FrailAndFurious

[#MEAction Network @MEActNet]

From our friends at @PlzSolveCFS!

Take action today by submitting a comment and contacting Congress.

Thanks to Solve M.E. for organizing a response on this critical issue.

#pwME #research #MECFS #longCovid

[#MEAction Network @MEActNet]

Miranda shares her experience as a #pwME & shares her advocacy within the disability and unhoused community at #MillionsMissing. Miranda goes on to explain that Medicaid is the main pathway to get home care and home care is the main pathway to safety.
https://t.co/nmBBRSjdFC

[#MEAction Network @MEActNet]

Join us for a community meeting TOMORROW - June 14th at 3:00 pm ET to hear about the next steps #MEAction is taking in US advocacy, and what steps you can take to be part of these efforts. https://t.co/YcDlNR7pP2

#PwME #MillionsMissing #FrailAndFurious #MECFS

[#MEAction Network @MEActNet]

David shares at #MillionsMissing 2026 about his life with his wife Shaina, a #pwME (who also shared!). "Nobody should have to disappear just because they got sick. And nobody should be punished for loving someone who is.”

Full speech: https://t.co/2BzHwuXk3R

#Caregiver #pwME

[#MEAction Network @MEActNet]

Join us for a community meeting on Sunday, June 14th at 3:00pm ET to hear about the next steps #MEAction is taking in US advocacy, and what steps you can take to be part of these efforts. https://t.co/YcDlNR7pP2

#PwME #MillionsMissing #FrailAndFurious #MECFS

[#MEAction Network @MEActNet]

Join the #MillionsMissing community for updates on U.S. advocacy. We have much to share - about our #FrailAndFurious campaign, and about HHS, NIH, and Congressional advocacy. Join us June 14th at 3 pm ET! Register here: https://t.co/uoM1q7X1iZ

#Medicaid #pwME #Disability

[WBBJ7News @WBBJ7News]

AMBER Alert issued for 3-year-old reported missing out of Clarksville https://t.co/954m7vSCwY

[#MEAction Network @MEActNet]

David shares at #MillionsMissing about his life with his wife Shaina, a #pwME. See both their videos on our YT!

We have support for #caregivers that include 2 different meetings a month, a support group, webinars, & more: https://t.co/kQjBXOjeZx

Support our efforts if able!

[#MEAction Network @MEActNet]

Shaina sacrificed to speak at #MillionsMissing so that we can prevent others from going through her horror in losing Medicaid.

“I'm Shaina and I am and have been many things over my life... but I'm also a person with ME which colors everything."

Video: https://t.co/TGkV1FcGVk

[#MEAction Network @MEActNet]

She also spoke in support of people with ME, Long COVID, and the chronic diseases that are too often overlooked. She acknowledged that our community needs research, care, and real support.

See her speech here: https://t.co/29Uf43pO7O

#pwME #PwLC #MECFS #LongCovid

[#MEAction Network @MEActNet]

#MillionsMissing 2026 included an event at HHS on May 12th. We took this time to educate about the reality of myalgic encephalomyelitis & Long COVID.
@Dr_Haridopolos, Interim Surgeon General, came to our installation & spoke with advocates. Thankful for her willingness to listen.

[CoRy Wyszynski | Photo Alchemist @corywysz]

Raising money for @MEActNet ! Donations are still open until May comes to a close. If ya can, check out my @Tiltify | Everything helps. https://t.co/lHubUQAGAJ

[#MEAction Network @MEActNet]

Katie shares the power of our community as she shares her story with #LongCOVID & #ME at #MillionsMissing. https://t.co/GqoLmCYX1o

Looking for community? Join us at #MEAction. Sign up for emails: https://t.co/ksBaVflZKL

CONTENT NOTE: Medical euthanasia mentioned.

[#MEAction Network @MEActNet]

GREAT NEWS! We've secured a $44k grant (half of what we need) to launch Canary Corps, our not-yet-launched national peer-support program to help people with ME, Long COVID, & related conditions keep their Medicaid coverage. We need the full $88k to launch. https://t.co/LyKBdd2AdQ

[#MEAction Network @MEActNet]

Great free read for this long weekend during #MEAwarenessMonth! Charley Kakel shares his beautiful short story “PenPals” with us in honor of #MillionsMissing.

Charley’s wife, Lauren, has #SevereME.

Snuggle in! Print & audio: https://t.co/IZ8uVF35BR

#MemorialDay #pwME

[#MEAction Network @MEActNet]

At #MillionsMissing, we made a significant breakthrough. The Office of the Surgeon General has committed to advocating for our community. This is a meaningful step toward the federal recognition that people with #MECFS & #LongCOVID deserve.
More info:
https://t.co/TXAXT5k9Qt

[#MEAction Network @MEActNet]

MEAction delivered our letter to the HHS Secretary urging him to recognize people with #MECFS & #LongCOVID as “medically frail” so that their access to Medicaid is protected! Thank you to the almost 4k who signed!

This is 1 step of our multi-pronged #FrailAndFurious campaign.

[#MEAction Network @MEActNet]

Blue Sunday ,The Tea Party for M.E., is tomorrow - May 17, 2026! Everyone is invited!
A huge thank you to Anna Redshaw for creating this event.

More info: https://t.co/YAXSvzfbSJ

@meactionNC invites everyone at 1 pm. https://t.co/kbdAyFuVEs

#BlueSunday202 #TeaPartyForME2026

[#MEAction Network @MEActNet]

We are excited to announce another collaboration with the Writers Guild Initiative (WGI). We will be offering writing workshops to our community on June 6th, 13th, and 20th. Please apply by the May 22, 2026, deadline: https://t.co/JQKqrKFMXB

#PwME #MECFS #LongCovid