FMDS_UK_Ireland

Fibromuscular Dysplasia Society of UK & Ireland is dedicated to supporting people affected by #FMD creating awareness, & raising funds for education & research.

[FMDS_UK_Ireland @FmdsUk]

In my experience GPs are reluctant to engage or collaborate with #VCSE because they fear litigation so its not getting anywhere.

[Darren Knight @misterknight]

I don’t know how many times I’ll need to say this year;
“#SocialPrescribing (whether you like the term or not) is NOT about flipping link workers, it’s about a strong, connected and resourced offer from the #VCSE that’s connected to the public sector AND IS PERSON CENTRED!”

[Beat SCAD UK @beatscaduk]

Speaking at the FMD Information Day in January, SCAD survivor Sally Bee talked about positive psychology and making good food choices to promote wellbeing https://t.co/kFvkbwRLhS #scadheart @LeicesterBRC @FmdsUk @FmdBe

[Karen Rockell @Karen_Rockell]

Thank you BBC Radio NORTHAMPTON for giving me the opportunity to talk about living with rare diseases on Global Rare Disease Day (starts about 2.43.40) @beatscaduk @FmdsUk @PSCSupportUK @AIHorgUK @rarediseaseuk https://t.co/VUmaXGz5ps

[FMDS_UK_Ireland @FmdsUk]

great news for #FMD patients in the USA

[FMDSA @FMDartery]

We would like to welcome Stanford as our newest FMD Registry Center!

[FMDS_UK_Ireland @FmdsUk]

@MidwivesRCM how many people do you expect to attend your conference in Bath?

[ISET @ISETNews]

Thank you to Jeffrey Olin, DO for presenting the Charles J. Tegtmeyer Annual Lecture: The (r)evolution in our Understanding of Fibromuscular Dysplasia today at #ISET2019!

[Rare Disease Day @rarediseaseday]

Out now! Download the official poster for #RareDiseaseDay 2019 now available via https://t.co/ZzrcyoRCDd. Share it today to show your support for the rare disease community. #ShowYourRare

[Sally Bee @sallybeelicious]

So welcome! It was a wonderful event! #Scad #Scadsisters #FMD #support

[FMDSA @FMDartery]

We would like to take the opportunity to thank all of our 2019 Annual Meeting sponsors. Registration opens next week. Save the date:May 18th in Cleveland, Ohio @ClevClinicHeart @Angiologist @drmalissawood @keaglemd @GBarnesMD @wellsbryanj @adsh01 @EveryLifeOrg

[Beat SCAD UK @beatscaduk]

Dr David Adlam talks #SCADheart #research, findings, #genetics, #PHACTR1, international collaborations plus #awareness raising efforts - presented at Beat SCAD Conference June 2018
@LeicesterBRC @Leic_hospital @LeicResearch @TheBHF @FmdsUk

https://t.co/SyGZjThIyk

[FMD-EU @FmdBe]

Prof David Adlam presenting at #FMD2019 Spontaneous Coronary Artery Dissection -Link with FMD at the First Uk and Ireland Patient Day on FMD. #fmd #scad #fmdscad #FibromuscularDysplasia #DFM #DSAC @beatscaduk @FmdsUk

[CelebrityChefsWorld @GeorgeBarnabys8]

#DONORLAUNCH
STRATFORD UPON AVON
Inspirational guest speaker @SalfordRoyalNHS #FMD2019 patient info day @sallybeelicious shares her journey with #SCAD and #FMD and inspiring life mantras. @RenalRadar @FmdsUk @beatscaduk @FMDartery @FmdBe

[FMDS_UK_Ireland @FmdsUk]

it was!

[pauline swift @paulineswift5]

@tinachrysochou @RenalRadar @kidneycareuk @Kidney_Research @FmdsUk Well done @tinachrysochou for organising a #FMD2019. Looks like it was a great day! 👋👋👋

[FMDS_UK_Ireland @FmdsUk]

thank you @tinachrysochou for all your hard work to make this very informative day happen. The @FmdsUk patients really appreciate your efforts

[tinachrys @tinachrysochou]

Fantastic day #FMD2019, am hopeful + inspired that our #FibromuscularDysplasia @RenalRadar journey is gaining momentum in the UK. Have learnt so much about patient perspective +experience. Thank you @kidneycareuk @Kidney_Research @FmdsUk for making this day possible

[FMDS_UK_Ireland @FmdsUk]

Great to see this list of research priorities for #FMD

[VascularMedicine @VMJ_SVM]

See the top research priorities in @FMDartery as outlined by @heatherlgornik @EstherSHKimMD @DKadiandodov @pdmace2 @adsh01 @Angiologist @SVM_tweets and others

[EURORDIS-Rare Diseases Europe @eurordis]

We are driving the launch of an exciting new project @Rare2030 with support of MEP & Parliamentary Advocate for Rare Diseases @Frederiqueries. Rare 2030 looks to the future of rare disease policy for the next 20 years

[FMDS_UK_Ireland @FmdsUk]

@Fit_Transplant I love your video, thank you for sharing. I am working with consultants at Kings on a pre/post transplant programme to help get people fit emotionally and physically.

[FMDS_UK_Ireland @FmdsUk]

@Fit_Transplant I take steroids post transplant but don't get headaches. Suggest you speak to your consultant. Sometimes changing the brand of a med can make a difference.@KarenBeatSCAD

[FMDS_UK_Ireland @FmdsUk]

#FMD2019 a great day, very informative and now more health professionals understanding #fibromuscularDysplasia thanks to our generous sponsors @kidneycareuk and @Kidney_Research

[tinachrys @tinachrysochou]

Fantastic day #FMD2019, am hopeful + inspired that our #FibromuscularDysplasia @RenalRadar journey is gaining momentum in the UK. Have learnt so much about patient perspective +experience. Thank you @kidneycareuk @Kidney_Research @FmdsUk for making this day possible