Making a positive contribution to the food allergy community I Two kids with 8 food allergies, Anaphylaxis & Asthma I All views are my own #FoodAllergy
I don’t think people realise the amount of effort and planning anaphylaxis requires. This is 4 days of food for my son’s school trip. It’s taken a week to prepare, test and organise. And now the worry can really begin. Who understands? #anaphylaxis#foodallergies
Tomorrow we will be celebrating the second anniversary of Natasha’s Law, but there is also so much more to do to ensure people living with food allergies and their families can lead safer and more fulfilling lives.
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@harriet75 So we are in agreement. I’m not asking for change to accommodate my kids. I just wish people were more aware - particularly in schools and when they are decision making - that it’s not just about what you eat. Airborne allergy is also real for us and I’m glad it’s not for you
@harriet75 Please could you explain how it is fear mongering? I’m simply calling for greater awareness based on my 15 years dealing with anaphylaxis? Do you have a different experience?
#anaphylaxis and careful asthma control go hand in hand. We have found our kid with #foodallergies gets sicker for longer and things can go bad really fast - with frequent trips to A&E for ‘just a cold’.. Good asthma control has been essential. How do you cope?
There needs to be more awareness that anaphylaxis and food allergies are so much more than what you ingest. It’s what you touch, what others touch, what you breathe, what’s in your vicinity… it’s mental as well as physical…. It’s every area of life. #anaphylaxis
@tmpotter15 Very similar to our experience. It is poor. The schools have not included our kids needs in their planning at all. There is still an assumption that #anaphylaxis and #foodallergies only relate to what you ingest.
Our son’s school continues to discriminate against #anaphylaxis. This year they’ve refuse to take him on 2 school trips and they are now continuing to insist that he cannot have his mobile phone on him during school hours (he is 15). Things are going backwards not forwards.
@GerryakaTracey@AnaphylaxisUK Thank you SO much for your support. I’m meeting the school tomorrow but may need your expertise further. I’m very very grateful.
@freefromgem Kids are unbelievably horrible. Really sorry your kid got bullied like this. It’s unacceptable. Having allergies really let’s you know who your true friends are. My kids best mate watches epipen training videos so he can help my son - true friendship
Allergy parents! My son’s school has just announced that all phones will be locked from 8am to 3.30pm using Yondr. Am really worried about my anaphylactic 15yr old son’s safety. Does anyone have experience of this or any advice? Help!
@JT91635781 Oh yes! Just looked it up. It forms part of ‘indirect discrimination’ and the school must make reasonable adjustments for auxiliary aids. Thank you so much for the great advice 🙏