Christine Sweeney

[Katy B @KatyBruce108]

#ME #pwME #MedTwitter
#LongCovid
#SevereMEWeek

[ME Research UK @MEResearchUK]

"There are currently no plans to develop a separate specification for severe and very severe ME/CFS." Government rejects developing a NHS England-wide template service specification revealed in parliamentary answer. https://t.co/FpMWhyrcZI

[Christine Sweeney @Fordhamfloss]

@JanetDafoe I wish you could too. I am afraid that I am not doing great! Hanging in there xx

[Christine Sweeney @Fordhamfloss]

@hopefullizzy Bless you dear Lizzy. I hope that your pain level improves soon. Sending very gentle hugs. 🤗🤗🤗

[Christine Sweeney @Fordhamfloss]

@DafoeWhitney I am hoping that you get some gains soon. Hang in there W. 🥰 I was unable to listen to any music for the 10 years, until recently. I discovered that humming along very quietly was good for me. So long as it is new music. The old stuff makes me cry for my old self.

[Christine Sweeney @Fordhamfloss]

@Dan_Wyke Please hang in there 🤗

[Christine Sweeney @Fordhamfloss]

@hopefullizzy Would you be able to eat ice-cream....I have found this nutritionally enhanced brand designed for malnutrition due to cancer etc
https://t.co/Oz1gJjmlpy

With love and hugs xx

[Christine Sweeney @Fordhamfloss]

@992tobias Please hang in there Tobias. I know it's difficult but please do. Sending you very soft hugs 🤗🤗🤗

[Christine Sweeney @Fordhamfloss]

https://t.co/G0J3SyuLK1

[Billboards for LC/MECFS @LCMEBillboards]

At 7pm tonight we ask that the #LongCovid and #MECFS community join us in sharing the below template as part of our #WhereIsIt campaign and try get it trending.

We have constructed this basic template and kept it as straightforward as possible but if you would like to personalise it with your testimonial or a photo of yourself then please go ahead! We have also some tags of relevant MPs and journalists who have been supportive of our cause you can tag too.

Our leaflets promoting this hashtag will be handed out in London today and our Digivan will be displaying this hashtag and playing audio to reflect the demands of the campaign too.

TEMPLATE IN NEXT TWEET >

[Christine Sweeney @Fordhamfloss]

@DafoeWhitney They just refuse to acknowledge the huge losses and our suffering. Xxx

[Christine Sweeney @Fordhamfloss]

@DafoeWhitney @seanstidston I so want to go on a long bike ride in the summer countryside before I leave this planet. Cycling was my passion. I am 64 now!

[Christine Sweeney @Fordhamfloss]

@DafoeWhitney @JanetDafoe I was drifting off to sleep at 11.45 when the gale blew both my rubbish bins over into the road. So I spent it chasing rubbish up and down the road in my dressing gown. HNY. I hope it's not an omen for the year. 😊

[Christine Sweeney @Fordhamfloss]

@JanetDafoe I hope that you both feel very much better soon. Sending you soft hugs and love to you all, from Cambridge chocolate cake Chris xxx

[Christine Sweeney @Fordhamfloss]

@NeleHelena I have given up now. I am too ill, but thanks xxx

[Christine Sweeney @Fordhamfloss]

@NeleHelena I am sorry that it was too late 🤗🤗

[Christine Sweeney @Fordhamfloss]

@NeleHelena Thank you 😊. Mine told me to get some exercise 😭

[Christine Sweeney @Fordhamfloss]

@NeleHelena How did you get them to look for small fibre neuropathy? I have tried to find out for years if this is my problem? 🤗