@tammijsteffen @ChrisMcCalla01 @Jenna15700674@brucep13@tommydagenais Who is your out of state doctor?
I'm still looking for one and it's been a year since testing. I will probably have to be retested. I live in Missouri. Thanks
@MECFSNews@CovidSolidarit1 I think I'm reaching the same conclusion. After 5 years of research and spending 1000s of dollars on treatment, I am still not better. I think the peace comes in giving up hope without sinking into despair. Maybe that is where you find your personal joy and contentment.
@gallagher80304 I just reached the part of the book where you sensed something is wrong and that something is chronic fatigue. I began to weep...
Knowing exactly what that feels like...
@pausedME That is why we need biomarkers.
I think we will only be believed when we have proof that something is very wrong.
I had my lyme doctor say to me I would feel much better when my husband retires. Really?
I feel the same! I have chronic fatigue and chronic lyme.
@KatrinaMartling@emily_rj@brucep13 Long covid patients shelling out thousands for potential treatments...
That is nothing compared to the many Thousands I have spent trying various treatments from doctors who treat chronic lyme and chronic fatigue. Maybe his treatments are controversial but what isn't.