moi m'EM

#pwME #paEM #autodéfensesanitaire MECFS

[Ivan l'Africain @AlterIvan1]

While the mainstream media owned by the ruling class are very busy minimizing COVID and its impact on society, I'm impressed by the new techniques and innovations many passionate folks come up with that make it impossible to deny the catastrophic nature of this virus.

[Danielle Beckman @DaniBeckman]

Hey @WIRED, how about interviewing neuroscientists who are actually studying the brains of people with #LongCovid? I'm available, and so are many others in the field.

"When the brain gets stuck in a feedback loop of fight or flight" What does that even mean? #Pseudoscience

[Dana Parish @danaparish]

🚨 This is called BAD FAITH journalism. Same tired playbook as Lyme.

Chronic, incapacitating infections w curious biology are often handled the same way: deny chronicity, downplay suffering, emphasize “it’s all in your head,” cherry-pick studies that fit the narrative, ignore pts who are clearly disabled by measurable immune dysregulation, persistent pathogens, microclots, mitochondrial damage, or reactivated infections.

Rinse, repeat. 🤮 😡

[Thoni Gilles (PhD) @GillesThoni]

Ceci arrive partt, même en 🇫🇷. "Près d’1⃣ parent d'enfants souffrant de covid long / d'EM sur 4⃣ a subi un signalement au bureau de protection de l'enfance pour mise en danger du bien-être de l’enfant!"
L'ignorance sur ces maladies conduit à penser q les parents sont maltraitants

[moi m'EM @GSOUAF1]

@GillesThoni Inquiétant

[Long Covid Advocacy 💙 @LongCovidAdvoc]

Dr Elinor Cleghorn on the catastrophic framing of ME as a mass hysterical incident in the US & UK.

We had a truly fascinating discussion - highly recommended.

To watch the whole interview link 👇

[moi m'EM @GSOUAF1]

En 2007!

[moi m'EM @GSOUAF1]

Les CDC ont fait une vidéo sur l’#emsfc ! Un peu d’inspiration pour le @Sante_Gouv & @stephanie_rist en France ?

[Adam @ABrokenBattery]

The CDC made a public awareness ad about #MECFS in 2007.

I’m not aware of a similar public health campaign since, despite millions affected and the lack of awareness that exercise can make people worse.

[The Vertlartnic @TheVertlartnic]

Scientists Baffled As Infections Continue Despite Hand Sanitizer Near Door

[Clément Gaillard, PhD @ClementGaill]

Les rejets de chaleur des climatiseurs sont-ils mal évalués ?

Vu que tout le monde parle de climatisation, on va se concentrer sur un sujet essentiel pour l’urbanisme et les espaces publics : la pollution thermique.

UN FIL 1/27

[Association Winslow Santé Publique @winslow_la]

🥳 La Fresque du COVID arrive à Paris !

La fresque du COVID est un atelier d’éducation populaire qui invite les participantEs à réfléchir autour de la pandémie de COVID toujours en cours, ses enjeux, ses cons��quences, et les différents moyens d’agir.

📅 C’est quand ? 👇

[Christoph Ströck @cstroeckw]

ME/CFS,

is one condition I strongly encourage you to put on your radar: Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME/CFS). ME/CFS is one of the most severe and neglected chronic diseases that is not rare. In its worst forms, patients are completely bedridden, unable to tolerate light, sound, or human interaction. Quality of life is among the lowest of any illness.

Despite all this, research funding has historically been extremely low relative to disease burden, largely due to long-standing mischaracterization and bias, including the fact that many patients are women.

ME/CFS sits at the intersection of immunology, neurology, and metabolism, involving complex multi-system dysfunction. This is exactly the kind of problem where AI can have an outsized impact by integrating complex data and uncovering hidden leads.

Please take a closer look. Your involvement could make an extraordinary difference to many millions affected globally.
Thank you 🙏

[Gavi, the Vaccine Alliance @gavi]

Epstein-Barr virus stays hidden in our immune systems, only to reactivate decades later. New research could point to a solution.

The full story: https://t.co/7lNYSSqnhk

[The Sick Times @thesicktimes]

A “unifying” hypothesis of the mechanisms, triggers, and risk factors for myalgic encephalomyelitis (ME), is gaining support. Further evaluation and development of a potential drug depend on funding. https://t.co/b7d7zNy9I1

[moi m'EM @GSOUAF1]

@endlessrevolt @GarciaVictor_ @LEXPRESS Merci! Belle démonstration !

[Dr Hélène Rossinot @helenerossinot]

Marre des anti masques privilégiés

[Yaneer Bar-Yam @yaneerbaryam]

Historically, Andes hantavirus outbreaks in Argentina were concentrated in rural regions of Patagonia, where geography and low populations limited transmission.

That is very different from cities, cruise ships and international travel.

https://t.co/rLuNgVjpkh

#AndesHantavirus

[Maître Pandaï @Panda31808732]

"C'est une maladie peu connue en France : l’encéphalomyélite myalgique. Pourtant, elle transforme la vie de près de 300 000 Français en cauchemar."

Elise, 18 ans : "Certains disent que notre fatigue est équivalente à une absence de sommeil pendant...

https://t.co/QerKu1w7Np

[Vlad Vexler @VladVexler]

1 in 200 humans on earth are missing from their own lives due to ME. ME is a devastating physical illness that makes rubble of the lives of patients and families. Clinically, we’ve known it’s real for decades. Biologically, we had proof by the 1990s. But society still acts like it’s not real. This is a historic injustice. #MEAwarenessDay

[moi m'EM @GSOUAF1]

🧡👀👏🧡

[Tom Kindlon @TomKindlon]

The website for the new French advocacy group VoxEM has launched. It "brings together myalgic encephalomyelitis patients and relatives.
To make our voices heard, we organize actions online and in the public space, all over France."
Website (French)
https://t.co/YBDJ5868Sw