Garrief

This is worse than chit chat at a work conference cocktail hour.

[FSR @StopSarcoidosis]

Join the #sarcoidosis community in hosting your own Steps for Sarc Mini-Match this week to support April's Sarcoidosis Awareness Month. Pledge a contribution to FSR and invite friends/family to match - donations can be doubled! Start now: https://t.co/R1zZON9RtK

#StandUpForSarc

[FSR @StopSarcoidosis]

Signs & symptoms of #sarcoidosis vary widely depending on the organs affected. It is important to discuss all symptoms with your physician so they can develop the best treatment plan for your unique case.
Learn more: https://t.co/54oWkVaD9W

#sarcoidosisawareness #standupforsarc

[FSR @StopSarcoidosis]

Join FSR for an in-person Congressional Briefing on Clinical Trials Diversity to be held in Washington, DC, on May 24, 2023.

Learn more and register: https://t.co/ww2bqeJ7Db

#sarcoidosis #raredisease #DEI #sarcoidosisawareness #sarctwitter

[FSR @StopSarcoidosis]

Listen in as host John Carlin talks to Sam W. and the pain she has experienced due to #sarcoidosis and her difficult path to diagnosis.

Listen here: https://t.co/kBFqEUav81

#sarcoidosisawareness #raredisease #podcast #sarctwitter

[Garrief @Garrief1]

There’s a scholarship for people with rare diseases, such as sarcoidosis? The #RAREis Scholarship Fund is now accepting applications at https://t.co/i7BgQIvJMR.
Apply now: https://t.co/dR6NCEGOzz

#sarcoidosis #RareDisease

[Garrief @Garrief1]

Until 11pm CST, every dollar donated is matched up to a total of $10k. Please donate towards sarcoidosis research!
#GivingTuesday2022
#stopsarcoidosis @StopSarcoidosis
https://t.co/OM1qGZe5NF

[FSR @StopSarcoidosis]

THANK YOU to all who have supported our efforts to raise $5,700+ towards our match and our overall #GivingTuesday goal of $40,000. Help make this the most impactful #GivingTuesday. Donate now! https://t.co/ERGLGpRKSK
#GivingTuesday #Sarcoidosis #MakeItVisible #SnowflakeStory

[Garrief @Garrief1]

@SarcoidosisofLI @pulte Oh wow! I'm surprised to hear this! I hope you get home before Christmas.

[FSR @StopSarcoidosis]

Did you know #sarcoidosis may impact intimate relationships and an individual’s sexual wellness? Join us on Tuesday, December 6th to learn from Jillian Bissar, social worker and sexual health advocate!

Register now: https://t.co/Wl5GjlmT1W
#sarcoidosis #sarcoidosisawarness

[Garrief @Garrief1]

Registered and can't wait to attend!

[FSR @StopSarcoidosis]

Chronic diseases can be challenging to manage. Join us tomorrow 11/19 for a free webinar to learn how to manage those difficult times with Sandra Manley-Eichler, a Behavioral Health Integration Clinician.
Register now: https://t.co/OWysOAj8Ua
#sarcoidosis #sarctwitter

[Garrief @Garrief1]

@StopSarcoidosis Registered! Can't wait to see this.

[FSR @StopSarcoidosis]

Don’t waste time, and register for our next Skin #sarcoidosis webinar next Wednesday, November 16, 2022! Our expert William Damsky, a physician-scientist, will join us to answer all your questions.

Register now: https://t.co/GtIhDvcj7F

#skinsarcoidosis #sarcoidosisawareness

[FSR @StopSarcoidosis]

In this USA Today piece, Mary McGowan, CEO of FSR, & Erica Courtenay-Mann, FSR ACTe Now Patient Advisory Committee member, discuss the importance of inclusivity in #sarcoidosis clinical trials.
Read here: https://t.co/FHu5UUXNch
Take the patient survey: https://t.co/wYpSrLaPsJ

[Tricha Shivas @TrichaShivas]

Nice meta-analysis of treatment JAK-inhibitors targets #acr22 @StopSarcoidosis #sarcoidosis #sarctwitter

[FSR @StopSarcoidosis]

Thank you to FSR Global Sarcoidosis Clinic Alliance Member, @TempleHealth for a great meeting and tour of the clinic. @rtg03 @tmbronzel @dianedriscoll #sarcoidosis #SarcTwitter #stopsarcoidosis

[Garrief @Garrief1]

I am proud to support @stopsarcoidosis for the #IgnoreNoMoreACTNow Campaign to Advance Clinical Trials for #Equity in #Sarcoidosis. Click to learn more https://t.co/H74nxbdz2c #ClinicalTrials #Research #RepresentationMatters #RareDisease
https://t.co/wPoTkQ2XD5

[Garrief @Garrief1]

I was on the Sarc Fighter Podcast! It was great talking to John Carlin about my experience with sarcoidosis. #sarcfighter #stopsarcoidosis
https://t.co/LoFzIeNNuV

[Garrief @Garrief1]

Help me make a difference in our community! Volunteering allows your choice to be heard! Join me by becoming an FSR Global Sarcoidosis Clinic Alliance Volunteer Leader. Learn more: https://t.co/PPqg6ypdQr #sarcoidosis #stopsarcoidosis #sarcoidosisawareness
https://t.co/RwIv9O1wXl

[Garrief @Garrief1]

Help me make a difference in our community! Join @stopsarcoidosis for an informative webinar on becoming an FSR Global Sarcoidosis Clinic Alliance Volunteer Leader. https://t.co/X6YR3ahL88 #sarcoidosis #stopsarcoidosis #sarcoidosisawareness

[aTyr Pharma @aTyrNews]

Did you know that #sarcoidosis is 2X more common in women than men? Our Phase 3 EFZO-FIT™ #clinicaltrial is currently recruiting women and men in the U.S. with #pulmonarysarcoidosis. To learn more and see if you might be eligible to participate: https://t.co/eemaa96kRE