"For the last 9-months, my wife, Brooklyn has been pregnant with a very sick baby boy. Three or four months ago, we learned that the baby had severe hydrocephalus. Back in the old days, hydrocephalus was called, 'water on the brain' - too much brain fluid. Ultimately, we were referred to Cincinnati Children's Hospital, where we were told by several of the most highly regarded fetal specialists in the country that his condition was dire. The baby's condition was 'off the charts bad'. It was so extreme that the specialists stopped measuring and monitoring his fluid level because, at that point, it didn't really matter. The MRIs were sickening to look at.
We were told, point blank, that there was over a 90% chance that the baby would either die shortly after birth or have such severe cognitive impairments that any quality of life would be hard to imagine. We had a meeting with palliative care regarding the use of life-sustaining measures and had detailed, awful, and emotional discussions about the ethics of when we might need to remove or cease such measures - which would result in the baby 'passing away peacefully.
Brooklyn relocated to Cincinnati and lived in a hotel close to the hospital - in case she went into labor. I commuted back and forth. On July 8th, Brooklyn did indeed go into labor. Literally, 15 minutes before they wheeled her back to start the C-section, we had another meeting with doctors regarding the use of a breathing tube and at what point we might need to remove that tube and let the baby go to Heaven. Guess what? The baby came out crying - which was the sweetest sound I ever heard.
In a nutshell, Charlie Schnarr stayed in infant intensive care until yesterday - when we all came home. He seems to be a normal, beautiful baby doing all the things that babies do. He has mild ventricular enlargement, but we can deal with that with checkups.
How did this happen?!
The doctors said, 'We do not have and cannot come up with a medical explanation for what we've witnessed here. Somehow his brain found a way to naturally clear the blockage or re-route the fluid that was causing the oppressive backup of brain fluid. During the last week, I heard the words, 'divine intervention' and 'miracle' more times than I could count. Nurses with decades of experience and esteemed, nationally admired doctors were flabbergasted but jubilant. Because of the domino effect of friends, family, clients, colleagues, and even strangers praying and asking others to pray for us, I do not doubt that there were thousands of people praying for us.
I'm a practical person that certainly believes in science and medical technology, but I absolutely know, from the bottom of my heart, that God was involved in this. I give ALL of the credit and glory to Him. Prayer is positively powerful. God is real, and He still performs miracles."
: Nick Schnarr
For nine months, we lived with a heavy question: Would our son survive?
Halfway through the pregnancy, we were told the devastating news—our baby had severe hydrocephalus. The fluid in his brain was so extreme, specialists eventually stopped measuring it. “It doesn’t matter anymore,” they said.
The odds were crushing: over 90% chance he wouldn’t survive long after birth—or would live with devastating impairments. We even sat down with palliative care to prepare ourselves for the possibility of letting him go peacefully.
Brooklyn moved closer to the hospital in case labor came early. I drove back and forth, holding my breath through every mile.
And then came July 8th.
The morning of the C-section, we had another meeting about possibly removing life support.
But then... he cried.
Charlie came into the world with a cry that stunned the room. Strong. Loud. Alive.
He spent time in the infant ICU, but day by day, he defied every expectation. And yesterday—he came home.
Charlie eats, wriggles, cries, and sleeps like any healthy baby. The only sign of his diagnosis is some mild ventricular enlargement, which doctors say we’ll monitor. But otherwise?
They have no explanation.
His brain somehow cleared the blockage. Rerouted the fluid. Reversed the impossible.
And suddenly, doctors—seasoned, pragmatic professionals—started using words like “miracle.”
We believe it too.
We believe in medicine. We believe in science. But we also believe in God. And in the thousands who prayed alongside us. Somehow, against every odd, Charlie is here. He wasn’t supposed to be.
But he is.
And we will never stop giving thanks.
Happy 41st birthday, Watoto Church!
It’s 41 years today since we launched on Easter Sunday, 22 April 1984 - what a remarkable journey!
Our hearts are bursting with joy, thanking God for His faithfulness over the years. Thank you, too Watoto Family, for being part of this incredible story.
As we celebrate today, we look to God for boldness, strength and courage to continue celebrating Christ and caring for our communities—all for the glory of His name.
“In life change is the only constant… so everything you have to today will change. The change can be either positive or negative. So in between we have to be change managers.”
@NButeraba@ManCaveUg
I have had the privilege of engaging with many amazing people with super personal brands and the question I always ask is how they built their brand. All answers are similar!!!
A personal brand is simply a mirror of the public saying, “we can trust this guy with what he says he can do.”
It takes years (3-5 years) to build a personal brand and there are things you have to do that are non negotiable. Some of these include;
1. Self awareness. Know yourself better
2. Knowing your purpose/mission
3. Cultivating an audience
4. Feeding the audience with the desired information
5. Being consistent. Keep going
6. Having a givers mindset. Give knowledge, joy, encouragement etc
7. Finally, stay true to your brand but be open to new ideas to support iteration. Stay relevant with the times.
Makes sense!
Always cross check and find out if it’s true.
Even if it’s true, ask yourself if you really need to say it( calls for wisdom)
Is it kind? Ask yourself how you would want it spoken to you before you speak!
Mark your calendars for the 19th of October, 2024, as we gather in Mbale City for a cause that touches lives. Whether you’re ready to tackle a 10km or 5km run, enjoy a walk, or participate virtually, your involvement makes a difference. #CURErun24#helpkidsheal