Generation Patient

Bringing together young adults with chronic and rare conditions through meetings, events, and programs. 100% young adult, disability-led.

[Generation Patient @genpatient]

🌟 Young adult patients like Peyton find community and opportunities through @genpatient’s programs! Help support our work with the link below. Every contribution makes a difference and is greatly appreciated. 💙

https://t.co/RG09Y0FGwG

#PatientAdvocacy #ChronicIllness

[About IBD (Amber): Writer, Advocate, Podcast Host @aboutIBD]

My email newsletter goes out today (Tuesday)! In it, you'll get links to events and new stuff from @genpatient, @connecttocure, @charlie_lees, @PCORI, Ostomy 101, and more! Get it with only an email address: https://t.co/xdxAxsmSQC

[Generation Patient @genpatient]

Created by experts from @BostonChildrens, @UMBaltimore, the @PatientsProgram, @ibd_india, @KECKSchool_USC, & the @genpatient team with support from @PCORI.

[Generation Patient @genpatient]

Introducing our Guidance Document & Companion Checklist for researchers! 🩺 Co-designed by expert researchers & young adult patients, these tools advance patient-centered research on #PeerSupport! Check them out:
🔗 https://t.co/8RKrv73O9B
🔗 https://t.co/bakPoaNEZD

[Generation Patient @genpatient]

The Guidance Document offers a framework for designing & evaluating authentic, cross-disease peer-support interventions. The Checklist is a handy best-practices reference. Both offer insights on patient engagement, ethics, & methodology concerns. #MedicalResearch #ChronicIllness

[Generation Patient @genpatient]

Designed to help patients and community-led orgs build sustainable peer-support programs to meet the #MentalHealth needs of #YoungAdult patients, with tips on:

✅ Outreach
✅ Facilitation
✅ Accessibility
✅ Engagement
✅ & developing peer support in lower-resource regions!

[Generation Patient @genpatient]

Introducing a resource guide to creating authentic peer-support spaces for young adult patients! 🔗 Explore the toolkit here: https://t.co/PqsJuJuAWW

#PeerSupport #ChronicIllness
#MentalHealthAwarenessMonth

[Generation Patient @genpatient]

Please share with any young adults with chronic conditions in a field like social work, counseling, community health, or peer-to-peer work.

More about the role: https://t.co/IfanD6rNCX

[Generation Patient @genpatient]

The U.S. Surgeon General’s ‘23 report lists young adults with chronic conditions/disabilities as populations with some of the highest incidences of loneliness & isolation. This #isolation can have significant, lasting effects on our mental health.

#MentalHealthAwarenessMonth

[Generation Patient @genpatient]

Generation Patient is committed to building connections and community for our fellow young adult patients through our peer-support groups. Due to high demand, we’re expanding our network of peer support facilitators!

#YoungAdults #ChronicIllness

[IBD India @ibd_india]

For World IBD Day, a few of our community members across ages and geographies, tell us about their journeys and their wish for the future.

We applaud their courage and thank them for helping #makeIndiaIBDaware

Watch the video here - https://t.co/z4SDrVy8GL

[Generation Patient @genpatient]

It is critical that any policy solution addresses the root causes of high costs, including the need for #PatentReform to promote competition and increase access to affordable generics and biosimilars.

#DrugPricing #PatientAdvocacy

[Generation Patient @genpatient]

Read our statement on Trump’s #ExecutiveOrder on drug pricing! The “Most Favored Nation” policy aims to cut #DrugPrices in the US by aligning them with lower costs in other developed countries, where Americans often pay 2-3x more for the same meds

🔗 https://t.co/2YbonaRWwc

[Generation Patient @genpatient]

We urge the Trump Administration to engage directly with patient communities and public stakeholders to fully understand the needs of those affected by high drug prices.

[Generation Patient @genpatient]

Check out this article by Grace Shults explaining how repeated patent lawsuits delay the entry of affordable generics, driving up costs for patients and threatening the sustainability of the generic drug industry. 

Read more: https://t.co/N91jyRL2iw

#PatentReform #HealthEquity

[Generation Patient @genpatient]

As patients, it's critical that we protect our right to make informed decisions about what we put in our bodies based on reliable information. That's why we’re working to help pass a bill ensuring safer, more truthful spaces on social media.
🔗More info: https://t.co/o7vodoGiqh

[Generation Patient @genpatient]

BIG NEWS! Our Executive Director @snehdave98 met with @Harry_Windsor and other youth leaders advocating for safer social media and AI use. 🙌
More via @TechCrunch:
https://t.co/7P4lv0gZoL

[Generation Patient @genpatient]

Sneha expressed our concerns:
➡️ Influencers being paid to promote prescription meds 💊
➡️ Pharma ads targeting young people across social media 

We're calling for stronger collaboration between the #FDA and FTC to improve regulation of #RxAds on social media!

[Patients For Affordable Drugs NOW @P4ADNOW]

Last week, the Senate Judiciary Committee advanced a slate of bipartisan, pro-competition bills aimed at cracking down on patent abuses and lowering drug prices. This vote marks a significant step forward to enacting reforms that deliver relief to patients and taxpayers.