A packed agenda incl. delays & ongoing issues with the #DownSyndromeAct guidance, the #AssistedDyingBill, & reported changes to EHCP eligibility. Thanks to Cambridge Uni @CIDDRG for their Alzheimer’s presentation & @garrettflo for sharing the Advisory Group ICB challenge results.
Disappointing that the #DownSyndromeAct guidance is yet further delayed, but this provides an additional opportunity for the @DHSCgovuk to listen to ongoing concerns about the content & work productively with stakeholders to create robust & meaningful guidance, now long overdue.
✉️ Postcard from New York where NDSPG Founding Office Fionn from @fionnathan spoke about improving support systems at the 14th World Down Syndrome Day Conference supported by his fellow NDSPG Ambassador @garrettflo 👏🏻👏🏻👏🏻
#WDSD25#DSI
@Bobby_Dean we are all really grateful for your support at the @HouseofCommons debate on the #DownSyndromeAct Thank you for listening, understanding and acting on our behalf.
Our open letter supported by 62 groups across UK representing interests of disabled people highlights need for cautious, inclusive & comprehensive examination of assisted dying proposals https://t.co/YggSHj0d1V
An open letter signed by 60+ organisations raises serious concerns about the potential impacts of legalising assisted dying, urging @UKParliament to uphold their safeguarding duties & ensure legislation does not inadvertently harm the most vulnerable in society #AssistedDyingBill
Huge congratulations to Billy, who attended the Sutton Community Awards Evening and proudly received his Outstanding Young Person Award!🏆
A well-deserved recognition for his incredible achievements. We’re so proud of you, Billy!👏 #SuttonAwards2024#OutstandingYoungPerson#HASU
Huge congratulations to Billy, who attended the Sutton Community Awards Evening and proudly received his Outstanding Young Person Award!🏆
A well-deserved recognition for his incredible achievements. We’re so proud of you, Billy!👏 #SuttonAwards2024#OutstandingYoungPerson#HASU
Billy has been nominated for the Outstanding Young Person of the Year Award at the Sutton Community Awards 2024!The award celebrates people under 21 who bring credit to the borough through exceptional academic, sporting, artistic, or cultural achievements. Well done, Billy!🌟👏
Delighted to relaunch the @APPGDS with excellent cross party support, welcoming our new co-chairs, @DamianHinds@GoAndrCoop
Thanks to our new members & @NDSPolicyGroup & particularly our policy network leaders, @fionnathan, Ed @garrettflo for their informative presentation.
Another important day for all people with Down syndrome as we celebrate the relaunch of the @APPGDS. Proud to provide the secretariat once again and support our MPs in this vital work.
Series 2 @BBCOne Sherwood continues tonight. Looking forward to seeing the talented Bethany Asher’s character developing on-screen:
“With one scene, we begin to reevaluate Stephie's role in this season, her place in the harsh world, & it is refreshing.”
https://t.co/kcKjzU27EV