GetOnDowns

Support for families of children with Down's syndrome.

[GetOnDowns @GetOnDowns]

Another successful meeting, looking forward to the public consultation and hopefully a powerful and useful #DownSyndromeAct @SKinnock @APPGDS

[National Down Syndrome Policy Group @NDSPolicyGroup]

Thank you Minister @SKinnock @DHSCgovuk for working with the @APPGDS & @NDSPolicyGroup to ensure the #DownSyndromeAct guidance is meaningful, robust & will improve outcomes for all. Reassuring timelines are confirmed for public consultation. @DamianHinds @garrettflo #AndrewCooper

[GetOnDowns @GetOnDowns]

Looks like it was a very productive meeting. Good to see @garrettflo from the @NDSPolicyGroup Advisory Group sharing ICB information.

[National Down Syndrome Policy Group @NDSPolicyGroup]

A packed agenda incl. delays & ongoing issues with the #DownSyndromeAct guidance, the #AssistedDyingBill, & reported changes to EHCP eligibility. Thanks to Cambridge Uni @CIDDRG for their Alzheimer’s presentation & @garrettflo for sharing the Advisory Group ICB challenge results.

[National Down Syndrome Policy Group @NDSPolicyGroup]

Disappointing that the #DownSyndromeAct guidance is yet further delayed, but this provides an additional opportunity for the @DHSCgovuk to listen to ongoing concerns about the content & work productively with stakeholders to create robust & meaningful guidance, now long overdue.

[GetOnDowns @GetOnDowns]

Great response from a letter by a member of the @NDSPolicyGroup Advisory group @EastLancsDS
Thanks @AndyMacNaeMP for listening.

[GetOnDowns @GetOnDowns]

Fabulous Fionn!

[National Down Syndrome Policy Group @NDSPolicyGroup]

✉️ Postcard from New York where NDSPG Founding Office Fionn from @fionnathan spoke about improving support systems at the 14th World Down Syndrome Day Conference supported by his fellow NDSPG Ambassador @garrettflo 👏🏻👏🏻👏🏻

#WDSD25
#DSI

[GetOnDowns @GetOnDowns]

Thank you all for your support, big thanks to @Bobby_Dean @NDSPolicyGroup

[National Down Syndrome Policy Group @NDSPolicyGroup]

Thank you to MPs who supported @grahamstuart's @HouseofCommons #DownSyndrome debate on behalf of their local groups, highlighting ongoing issues with the #DownSyndromeAct guidance. #FitForPurpose @DamianHinds @GoAndrCoop @ThurrockJen @JessBrownFuller @karinsmyth @LiamFox

[GetOnDowns @GetOnDowns]

@Bobby_Dean we are all really grateful for your support at the @HouseofCommons debate on the #DownSyndromeAct Thank you for listening, understanding and acting on our behalf.

[GetOnDowns @GetOnDowns]

Thank you to MPs who supported the @APPGDS @grahamstuartMP call for a @HouseofCommons debate highlighting widespread concerns with the Down Syndrome Act Guidance #DownSyndromeAct #FitForPurpose  @DamianHinds @LiamFox @Bobby_Dean

[Portsmouth Down Syndrome Association 💚 @PortsmouthDSA]

Nearly two thirds of respondents @rcpsych are not confident that consent can act as a safeguard. "This bill should be overwhelmingly rejected" say leading expert psychiatrists. #AssistedDying @kimleadbeater @danny__kruger @DavidAltonHL @MoncktonR

[National Down Syndrome Policy Group @NDSPolicyGroup]

Our open letter supported by 62 groups across UK representing interests of disabled people highlights need for cautious, inclusive & comprehensive examination of assisted dying proposals https://t.co/YggSHj0d1V

[GetOnDowns @GetOnDowns]

Get on Down’s supports this @NDSPolicyGroup @Bobby_Dean

[National Down Syndrome Policy Group @NDSPolicyGroup]

An open letter signed by 60+ organisations raises serious concerns about the potential impacts of legalising assisted dying, urging @UKParliament to uphold their safeguarding duties & ensure legislation does not inadvertently harm the most vulnerable in society #AssistedDyingBill

[GetOnDowns @GetOnDowns]

Great job!

[Harris Sutton @HarrisSutton1]

Huge congratulations to Billy, who attended the Sutton Community Awards Evening and proudly received his Outstanding Young Person Award!🏆
A well-deserved recognition for his incredible achievements. We’re so proud of you, Billy!👏 #SuttonAwards2024 #OutstandingYoungPerson #HASU

[Harris Sutton @HarrisSutton1]

Huge congratulations to Billy, who attended the Sutton Community Awards Evening and proudly received his Outstanding Young Person Award!🏆
A well-deserved recognition for his incredible achievements. We’re so proud of you, Billy!👏 #SuttonAwards2024 #OutstandingYoungPerson #HASU

[GetOnDowns @GetOnDowns]

Very proud of these young men- Outstanding Young Person Award #suttoncommunityawards2024 well done Billy and Ben!

[GetOnDowns @GetOnDowns]

👏👏👏👏

[National Down Syndrome Policy Group @NDSPolicyGroup]

Productive @APPGD @HouseofCommons with valuable contributions from @DownsCheshire & @NDSPolicyGroup Advisory Group highlighting their day to day challenges with education, employment, housing & healthcare. @davidgoss @jackmrankin @GoAndrCoop @BaronessHollins @DamianHinds

[National Down Syndrome Policy Group @NDSPolicyGroup]

Productive @APPGD @HouseofCommons with valuable contributions from @DownsCheshire & @NDSPolicyGroup Advisory Group highlighting their day to day challenges with education, employment, housing & healthcare. @davidgoss @jackmrankin @GoAndrCoop @BaronessHollins @DamianHinds

[GetOnDowns @GetOnDowns]

Well done Billy, proud of you!

[Harris Sutton @HarrisSutton1]

Billy has been nominated for the Outstanding Young Person of the Year Award at the Sutton Community Awards 2024!The award celebrates people under 21 who bring credit to the borough through exceptional academic, sporting, artistic, or cultural achievements. Well done, Billy!🌟👏

[APPG for Down Syndrome @APPGDS]

Delighted to relaunch the @APPGDS with excellent cross party support, welcoming our new co-chairs, @DamianHinds @GoAndrCoop
Thanks to our new members & @NDSPolicyGroup & particularly our policy network leaders, @fionnathan, Ed @garrettflo for their informative presentation.

[GetOnDowns @GetOnDowns]

👏👏👏

[National Down Syndrome Policy Group @NDSPolicyGroup]

Another important day for all people with Down syndrome as we celebrate the relaunch of the @APPGDS. Proud to provide the secretariat once again and support our MPs in this vital work.

[GetOnDowns @GetOnDowns]

@Bethany40644990 is smashing this role!

[National Down Syndrome Policy Group @NDSPolicyGroup]

Series 2 @BBCOne Sherwood continues tonight. Looking forward to seeing the talented Bethany Asher’s character developing on-screen:

“With one scene, we begin to reevaluate Stephie's role in this season, her place in the harsh world, & it is refreshing.”

https://t.co/kcKjzU27EV