Global Hidradenitis Suppurativa Atlas (GHiSA)

#globalhealth
#hidradenitissuppurativa
#epidemiology

[International League of Dermatological Societies @ILDSDerm]

Just launched! The First Global Hidradenitis Suppurative (HS) Report is out! Produced by GHiSA, in collaboration with and with the ILDS, it offers crucial insights into Hidradenitis Suppurative (HS). The report is available for free download at https://t.co/lXVZRS7CCZ

[The Dermatology Digest @derm_digest]

A new report offering a comprehensive overview of #HidradenitisSuppurativa, including its diagnosis, impact & treatment is now available for download from the @GlobalGhisa, an international non-profit organization working with @ILDSDerm. https://t.co/JFMc2NdEOD

[Global Hidradenitis Suppurativa Atlas (GHiSA) @GlobalGhisa]

Exciting News from GHiSA

We are thrilled and honored to have met with the Psoriasis, Vitiligo, Atopic Dermatitis, and Epidermolysis Bullosa Atlas during the EADV 2023 in Berlin, a meeting arranged by the ILDS🤝🌐

[Hidradenitis Suppurativa (HS) Ireland @hsireland1]

The Global Hidradenitis Suppurativa Atlas (GHiSA) (@GlobalGhisa) is a non-profit active, available, and evidence-based organization. The mission of GHiSA is to create and promote expert #healthcare of #HidradenitisSuppurativa #patients globally.
See: https://t.co/LN7G8YkPXy

[Gregor Jemec @gbj_jemec]

Information on HS for patients - the school for patients who want to learn about their disease

[Global Hidradenitis Suppurativa Atlas (GHiSA) @GlobalGhisa]

We are happy to announce that GHiSA's first in-person steering committee meeting has taken place!

Stay tuned for updates on our progress!

#hidradenitissuppurativa #globalhealth #ILDS #dermatology #who

[Global Hidradenitis Suppurativa Atlas (GHiSA) @GlobalGhisa]

GHiSA is proud to have held a successful session at the #EHSF2023

Thank you to everyone who attended our session, and we look forward to continued collaboration to drive positive change in global health.
#Dermatology #globalhealth #ILDS #Hidradenitissuppurativa #MedTwitter

[Global Hidradenitis Suppurativa Atlas (GHiSA) @GlobalGhisa]

GHiSA is proud to be part of the upcoming EHSF 2023 conference!

Join us at the EHSF 2023 and let's work together to shape the future of Hidradenitis Suppurativa

https://t.co/u7OCq2r1Ma

#EHSF2023 #dermatology #ILDS #HidradenitisSuppurativa #GlobalDermatology #MedTwitter

[Global Hidradenitis Suppurativa Atlas (GHiSA) @GlobalGhisa]

🇫🇷 F stands for France, Fantastic and Finished! 🇫🇷
France has officially finalised the data collection!
Thank you to Dr Guillem and the volunteers for their important contribution to GHiSA - Amélie, Anne-Sophie, Chantal, Christelle, Marianne, Marion, Myriam, Samantha and Sylvia

[Gregor Jemec @gbj_jemec]

...and there is more directly comparable, #datadriven #epidemiology to come. #hidradenitis is becoming a part of #globalmedicie

[Global Hidradenitis Suppurativa Atlas (GHiSA) @GlobalGhisa]

This study was an initiative of the Global Hidradenitis Suppurativa Atlas (GHiSA). Please see our website for more information - https://t.co/uHCRSjMwA4

[BJD @BrJDermatol]

🌐Most of the available prevalence data for #HidradenitisSuppurativa is from Europe, USA and Australia

🇬🇭This study reports on the prevalence and demographics of HS in Ghana with comparisons to data from other countries

https://t.co/EfrRlG9C64

[BJD @BrJDermatol]

🌐Most of the available prevalence data for #HidradenitisSuppurativa is from Europe, USA and Australia

🇬🇭This study reports on the prevalence and demographics of HS in Ghana with comparisons to data from other countries

https://t.co/EfrRlG9C64

[Global Hidradenitis Suppurativa Atlas (GHiSA) @GlobalGhisa]

@BrJDermatol This study was an initiative of the Global Hidradenitis Suppurativa Atlas (GHiSA). Please see our website for more information - https://t.co/uHCRSk4FOc

[GlobalSkin @IADPO]

Welcome to our newest Members!

@GlobalGhisa (https://t.co/kwa7LWuGai) #Hidradenitis

#MiaThrives (https://t.co/BmnWPZkPCm) #EpidermolysisBullosa

Bald and Beautiful #Alopecia Warriors

#AAPDA (https://t.co/DOmMjeqOui) #Eczema

[Global Hidradenitis Suppurativa Atlas (GHiSA) @GlobalGhisa]

🇱🇰 Good day - good news!🇱🇰

Sri lanka has received ethical approval. They will start the data collection right away!
What do you think the prevalence of HS in Sri Lanka will look like?

#srilanka #globalhealth #medtwitter

[Global Hidradenitis Suppurativa Atlas (GHiSA) @GlobalGhisa]

GHiSA is currently on the lookout for new global collaborating partners. Do you want to join GHiSA? Visit our website and reach out to us: https://t.co/DsfqDVF26T

#GHiSA #hidradenitissuppurativa #dermatology #EADV #HS #epidemiology

[Global Hidradenitis Suppurativa Atlas (GHiSA) @GlobalGhisa]

We are proud and honoured to receive support from @asdvafrica
The true burden of Hidradenitis Suppurativa (HS) in Africa is close to unknown due to a lack of studies. Currently, GHiSA is investigating the epidemiology of HS in 11 countries spread across Africa!
#MedTwitter

[Global Hidradenitis Suppurativa Atlas (GHiSA) @GlobalGhisa]

GHiSA is growing🇧🇩🇵🇱🇩🇿🇳🇬
We are excited to announce that Bangladesh, Nigeria, Poland, and Algeria have finalised the data collection!
Thank you to the global research partners for the data collection!
#globalhealth #WHO #GHiSA #epidemiology #medtwitter #Hidradenitissuppurativa

[Rune Kjærsgaard Andersen @Rune_K_Andersen]

One of the biggest problems concerning the disease #hidradenitis_suppurativa, is that the global, and in most instances national disease burden is still unknown.
When such basic information is still lacking how can we expect stakeholders to realize the scope of the problem? 🤔

[Rune Kjærsgaard Andersen @Rune_K_Andersen]

In Denmark the figure is well known. 0.2% of the population have been diagnosed with HS.
https://t.co/xgAENb5gfT (if for some reason you cannot access the article, reach out to me at https://t.co/wf8li1oizo)
However as HS is still widely unknown how many go undiagnosed?