"#EHDS approach to primary use of #healthdata holds a lot of tangible promises for patients. Secondary use will bring results in the longer run, as they won't be immediately visible to the public." says @GozdeBriggs from the @eupatientsforum at #HIMSS24EUROPE.
#RWE and #patientregistries are gaining a momentum as tools to inform regulatory and HTA decision making. @DataSaves_Lives and @IMI_EHDEN host a much needed bootcamp event for patient organisations.
📢 Today, we were at #ESMOGI to kick off our 8th annual Masterclass & we gather leading experts to discuss:
🔹Priorities for Digestive Health Research
🔹Tailored Treatment for Digestive Cancers
🔹Latest Updates from GI Cancer Congresses 2023
#DiCEMasterclass2023#WCGIC2023
✅Are you a #youngpatient advocate?
✅Are you between the ages of 18 and 29?
✅Are you passionate about building a better future for young patients?
Then you may want to consider joining @epfyouthgroup! #Applications remain open until 31 July.
➡️https://t.co/NMZaoQlVpS
👉EPF is travelling to Italy today!
Why? Together with @PFMDwithPatient, @eupatients, and many others, we join the face-to-face edition of #PEOF, the Patient Engagement Open Forum.
Curious to learn about what we are up to in the following days? Stay close for more!
🇪🇺 Celebrating #EuropeDay by supporting important causes! 🌍🤝 Today, I'm spending my Europe Day by preparing for a presentation and panel discussion representing @DataSaves_Lives, taking place tomorrow. Stay tuned 🛟 #DataSavesLives
"Where there is political will, a lot can happen" @mayacmat mentions the importance of #patientengagement in #HTA during her keynote speech at #EPF20.
This gives a nod to our new project #EUCAPA, a joint effort to build patient community capacity in HTA: https://t.co/M0ymw4ZBOm
Delighted to be in the beautiful city of #Lisbon to host our second #DataSavesLives Bootcamp!
We can't wait to meet our #PatientOrganisation ambassadors for 2 days of learning, collaboration and FUN as we discuss key #AI topics in #healthcare.
Stay tuned!
🛟 Day 2 of the #DataSavesLives boot camp is underway!
▪️First, hearing from @MTrucl about @eupatientsforum work on #ArtificialIntelligence
▪️Then, playing a serious game via @1visionhealth
▪️ and finally wrapping up these two days with the ambassadors and looking to the future!
[1/6] 📢 Did you read @eupatientsforum's February edition of The Patient Perspective? Stay updated and find the latest in the world of #patientadvocacy here.
Read the thread for a roundup!
HIRING | Are you looking for a #newjob? Be our #CapacityBuilding Assistant.
The @eupatientsforum team is looking for a new colleague to assist in the roll-out of our Capacity Building activities.
More about the #vacancy here: https://t.co/HCEcD34XuP
🗓️Deadline: 12 March 2023
To mark International Angelman Day, we spoke with Margaux Vanham, whose son, Lucas, was diagnosed with the rare disease. Read about why sharing #HealthData and taking part in research studies is so important to families here. #AngelmanSyndrome#IAD2023#ASFShowtheLove❤️