Christin, a Swedish patient with #MECFS, dies at age 39. She had a tough ride and struggled to get help but was often dismissed and neglected by care providers. The link describes some of her desperate interactions [in Swedish]. Rest in peace, Christin.❤️
https://t.co/dxvSS4Vmkz
Dr Alastair Miller: "Without GET and CBT we have nothing."
The evidence shows that CBT and GET do not work. We never had anything. Pretending otherwise has only delayed progress.
The European ME Alliance is launching a survey that will compare the situation and experiences of patients with #MECFS across Europe. All European patients are invited to participate.
https://t.co/qVNMM5wnI1
"Believe a person when they tell you how they're feeling. Don't dismiss them, don't disregard them. Believe them, and have compassion," disabilities advocate Rivka Solomon gives her #BriefButSpectacular take on advocating for people with chronic illness.
If anyone is interested, I see that straight forward criticism of Professor Sharpe is misrepresented as abuse again. Note the pejorative label “science police” for critics that the accuser uses. The bias in the #PACEtrial affects the care of 30M patients with #MECFS worldwide.
Are you a scientist who suffers from paranoia and has unhelpful beliefs that all criticism is harassment? The Lightning Process will help you! Say STOP to all unhelpful beliefs and engage in a stimulating scientific debate instead of indulging in victimhood! Choose to be happy!
Det här vill jag ha hjälp att sprida. Min bok om sjukförsäkringen, tre års forskning summerad. Och jag tycker faktiskt jag säger några saker som är väldigt viktiga.
(Använd mitt efternamn som rabattkod för 15% goa procents rabatt på hela inköpet)
https://t.co/P8P9nuiaTz
Ron Davis was up till 12:30am working on ME/CFS last night. Just reminding you all that while you’re suffering he’s working as hard as he can to make progress. It’s happening.
Linda med svår ME får ingen hjälp. Hon är en av många som fått diagnosen ändrad av en viss psykiater i Linköping. Utan att ha träffat eller undersökt personen ifråga. Vissa har han inte ens träffat. Tänk om någon journalist vill granska detta.
https://t.co/YgG7kpSrbI