Pernilla Ekström

Socionom. Hatar orättvisor!! En av MillionsMissing. ME/CFS.

[Pernilla Ekström @pernillaekstro1]

Tips till dig med ME men även till de som drabbats av långtids covid kan ha användning för detta.

"Pacing och hjälp att hantera livet med ME/CFS"
https://t.co/NfBm7pkNRG

[Whitney Dafoe @DafoeWhitney]

Talking Again in 2025

I started eating again in 2024.  After 11 years not eating a crumb of food or even drinking a drop of water.  I got all fluids and nutrition from tubes inserted into my body.  For 11 years.  

In 2025 I have another big improvement to announce.  

I have started ‼️ TALKING ‼️ again after 12 years of not saying a word to anyone!  

What will 2026 bring❓

Talking has been truly AMAZING.  A slow process, it started when I slowly started feeling like I could talk again, but my stress response was still very high about it and it was hard to breach that stress wall and say the first words to someone.  I first talked to my best friend, who I am really close with, comfortable with and feel very safe with so my stress levels are lower with her.  I practiced talking to her on calls and video calls for about 6 months before talking to anyone else.  Then I moved on with a few more close friends.  It was hardest with my parents and caregiver because of the incredibly high stress I have been through with them in the past during my sickest years - my stress response seems to still be high with them - sensing danger likely due to a PTSD response mixed with the messed up fight or flight response in ME/CFS.  But I am now talking to everyone!  It is sooo much easier with my caregiver to just tell her what I need instead of pantomiming every little thing for sometimes a long time until she figures it out.  What a relief!  And I can have conversations with friends and loved ones!  

I just said goodbye to a lifelong friend who is dying and I got to talk to her on the phone and tell her how much she means to me, the impact she has had on my life, how wonderful she is; And then say goodbye.  It was profoundly sad, but it meant the world to me that I got to talk to her and say goodbye at all.  She is not online and does not text, so it would have been so devastating not to have that last connection with her…

Read, watch or listen to the whole post on my blog!
https://t.co/yD9kRoMttN

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#mecfs #chronicillness #pwME #LongCovid #Disability

[Carl Bildt @carlbildt]

I don’t want to hear any 🇪🇺 statement that the 🇺🇸 has the right to defend itself. This is a clearcut violation of international law.

[Magda Gad – Gad World @gad_media]

Vad står man inför när man går i krig med Iran?

Israel har stridit i Gaza sedan oktober 2023 och ännu inte besegrat Hamas.

Irans landyta är:
4 500 gånger större än Gaza.
75 gånger större än Israel.
nästan 4 gånger större än Irak.
2,5 gånger större än Afghanistan.

Irans folkmängd är:
39 gånger större än Gaza.
9 gånger större än Israel.
Mer än 2 gånger större än Irak och Afghanistan.

Gaza angränsar till Israel, är invaderat av Israel, är under israelisk blockad och ockupation.
Mellan Tel Aviv och Tehran är det 1 600 km fågelvägen.

Hur tänker man vinna det här kriget? Hur ser en seger ut?
Vad finns det för risker med att destabilisera Iran utifrån vad som skedde i Irak, Afghanistan och Libyen?

[Kenan Habul @Kenan_Habul]

Varenda gång ni hör en svensk minister eller liknande prata om "tvåstatslösning" visa dem den här bilden och fråga dem: hur?

[Met4Cast - UK Weather @Met4CastUK]

I’m surprised what’s happened in Switzerland isn’t a bigger story.

An entire town wiped off the map by a glacier collapsing, likely as a direct result of our warming climate.

This is like something out of a disaster movie.

[Jonna Sima Bank @jonnasima]

Benjamin Dousa kallar Gaza helvetet på jorden. Men han stoppar bistånd till UNRWA som har infrastrukturen för att hjälpa på plats.

”Tragiskt”, säger UNRWAs högsta chef i Gaza om svenska regeringens beslut. https://t.co/MGTZzZo7Lp

[Kenan Habul @Kenan_Habul]

Om ni inte orkar eller bryr er läsa om de palestinska barn vars ben bokstavligen pulveriseras kanske kan ni läsa den här grekiska läkaren som var i Gaza berättar hur israelerna noggrant arbetade för att förstöra sjukhusutrustning.
Inte konstigt att de vägrar släppa in press.

[Pope Leo XIV @Pontifex]

The situation in the Gaza Strip is increasingly worrying and painful. I renew my heartfelt appeal to allow the entry of dignified humanitarian aid and to bring an end to the hostilities, whose heart-rending price is borne by children, the elderly, and the sick.

[Jan Eliasson @JanKEliasson]

Finns en gräns för cynism o grymhet hos Israels extrema regering?
Den släpper in lite mat efter tryck utifrån , inte pga nöd o död.
Den vill ockupera Gaza och fördriva miljoner civila.
Den utökar bombningar som hindrar
eldupphör o befrielse av gisslan.

300 FN-pers dödats.

[Pernilla Ekström @pernillaekstro1]

@kibialacannelle @grishund @LisaGranberg Misstänker att jag inte skickade några länkar.

[Carl Bildt @carlbildt]

Very strong statement by 🇺🇳 @UNReliefChief Tom Fletcher to the Security Council on the situation in Gaza. The situation is grim - and deteriorating.

[Sarah Wilkinson @swilkinsonbc]

Israeli gunboats fire on Palestinian fishermen in the Mediterranean Sea off the coast of Gaza city: many are returned to shore bullet-wounded

[Yanis Varoufakis @yanisvaroufakis]

Nothing to do with October 7. The escalation of Israel's genocide had been planned since 2017 https://t.co/aM545MZEw6

[Carl Bildt @carlbildt]

Now 🇮🇱 occupation forces are denying Palestinian children in East Jerusalem their education. This definitely is not a path to peace. https://t.co/BkelfUQ8DU

[Francesca Albanese, UN Special Rapporteur oPt @FranceskAlbs]

Get.
Israel.
Out of Gaza.

And the West Bank. And east Jerusalem.

[Niklas Orrenius @niklasorrenius]

Viktig granskning. Tänk att det ännu är så här. Jag är 51 år. Sen jag var barn har det varit så här i Sverige. Jag trodde att det skulle ha blivit bättre. Detta är skamligt och i längden farligt.

Bra Aftonbladet att belysa det. Bra alla som upprörs.

https://t.co/GOIagIvFlE

[Sten Helmfrid 🇺🇦 🇬🇱 @StenHelmfrid]

Documentary. Five medical doctors open up about living with infection-associated chronic conditions: “They reflect on how becoming patients themselves radically changed their views on medicine, science, and what needs to change in healthcare.” #MECFS

https://t.co/Z7gfuBX8wx

[Anil van der Zee © @AnilvanderZee]

1) OMG we did it‼️‼️

In this film for #MEawarenessmonth, five medical doctors open up about living with #PAIS/#IACC conditions like ME, #longCOVID, and chronic #Lyme. It’s a format that I believe has never been shown before, not just in the Netherlands

https://t.co/XxPQ9bQxI3

[Francesca Albanese, UN Special Rapporteur oPt @FranceskAlbs]

Illegal settlers: who they are.