Zeba Gufran زیبا گوفران

Parent of a SMA Fighter's
#BattleAgainstSMA #SMAfreeIndia

[Dhruv Rathee @dhruv_rathee]

My next video will be on Quran and Bible

Will release soon, most probably tomorrow. It will be quite an eye opener for many people :)

[Moumita_SMA_Mom @MoumitaG_17]

#everylifeprecious #HealthForAll #right2health #Right2Life Requesting support to continue her treatment with Risdipalm

[Cure SMA Foundation of India 🇮🇳 @curesmaindia]

Tk u @healfoundation1 n @SPAGAsia @saysaman 4 d opprnty n 4 including #patientvoice a part of 2day's prgm #HealthcareChangemakersConclave. @curesmaindia Co-founder, Ms Archana Panda represented d #collectivevoice of Indian #SpinalMuscularAtrophy Community @MoHFW_INDIA @NITIAayog

[Cure SMA Foundation of India 🇮🇳 @curesmaindia]

Many Congratulations @aiimsjodh_rare @drkuldeep @dr_didel @aiims_jodhpur for being approved as the CoE in Rajasthan 👏👏👏. This was much awaited n long due. We look forward 2 working with u 4 d betterment of #SpinalMuscularAtrophy #RareDisease community.

[Cure SMA Foundation of India 🇮🇳 @curesmaindia]

We are thankful to Dr @Swasticharan for this initiative & support to the #RareDisease Community 🙏 We are also thankful to Dr Madhulika Kabra,Dr.Seema Kapoor,Dr.Sheffali Gulati,Dr Ratna Puri,Dr.Aastha,Dr.Neerja, Dr.Ranjana,Dr.Seema Thakur, Dr.Sunita & many more for the support 🙏

[Cure SMA Foundation of India 🇮🇳 @curesmaindia]

We are proud to be invited by the Central Health Ministry @MoHFW_INDIA to celebrate Rare Disease Day in collaboration with @aiims_newdelhi ,@theonlycheb & MAMC. Our Co-founder Ms Archana Panda shared our vision & mission. Heartfelt gratitude to all the esteemed institutions 🙏

[Cure SMA Foundation of India 🇮🇳 @curesmaindia]

Thanks so much @doctorsoumya ma'am 4 sparing time 2 meet @curesmaindia TN state coordinator Ms.Manopriya 2day.
V r very happy 2 present to u @curesmaindia Calendar made by paintings of our #SMArtWarriors battling #spinalmuscularatrophy. Thanks 4 yr compassion n support 🙏.

[Soumya Swaminathan @doctorsoumya]

@curesmaindia Full of admiration for your spirit & continued advocacy for #spinalmuscularatrophy affected children. There are now effective treatments #Spinraza & #ZolGenSMA but they are not accessible. Request the companies to consider technology transfer so it can help thousands of children

[Cure SMA Foundation of India 🇮🇳 @curesmaindia]

@curesmaindia wishes a very happy Holi 2023 to everyone!

We hope n pray for a colourful n beautiful lives for all #SMArtWarriors , dedicated caregivers n parents.

[Abhay Karandikar @karandi65]

Gene therapy using viral vectors has recently emerged as a potent tool in the field of molecular medicine & the licensing of the technology to Reliance Life Sciences represents a significant step forward in developing innovative solutions to address unmet medical needs.

[Abhay Karandikar @karandi65]

Delighted to share this great news from @IITKanpur.
We have licensed a groundbreaking #GeneTherapy technology to Reliance Life Sciences. This will lead to significant advancement in developing treatments for many hereditary eye diseases.
@reliancegroup

[Abhay Karandikar @karandi65]

It was a pleasure to host Mr. K. V. Subramaniam, President of Reliance Life Sciences along with Dr Venkat Ramana and Mr Praveen Sharma for the MoU signing.
@reliancegroup @IITKanpur @paniitindia

[Cure SMA Foundation of India 🇮🇳 @curesmaindia]

On the occasion of #RareDiseaseDay
@AsterMIMS & @iapindia Calicut with @curesmaindia ,conducted an online cultural event & art competition.Our #SMArtwarriors outperformed themselves & made the event super fun ! Thanks Dr Smilu (our pillar), Dr Preetha & all staff of @AsterMIMS 🙏

[Cure SMA Foundation of India 🇮🇳 @curesmaindia]

Thanks @iprdkerala for always being compassionate & thoughtful 🙏
Quoting Mathrubhumi news : "For children who cannot walk or are bedridden, 'school' is now at home. Virtual class projects are started for differently abled children who have got admission in public schools"

[Cure SMA Foundation of India 🇮🇳 @curesmaindia]

Many thanks & hearty congratulations to the author Ms @nileenaatholi @mathrubhumi
for this wonderful series of articles 💐. We hope this award will once again remind everyone of the issues we are facing on a daily basis & also raise the awareness about this gruesome disease!

[Cure SMA Foundation of India 🇮🇳 @curesmaindia]

Heartfelt gratitude to all the guests for addressing the various issues related to rare diseases. They interacted with the kids suffering from SMA and other rare diseases and understood the plight of the kids. Thanks once again from the bottom of our hearts 🙏
#BattleAgainstSMA

[Cure SMA Foundation of India 🇮🇳 @curesmaindia]

We thank the Chief guest Dr Bheerappa, @icmr_nims, Dr Ashwin Dalal, @DBT_CDFD, Dr Radha Rama Devi, Sandor Life sciences, Prof T Usha Rani, Nilofer Hospital, Dr Ramesh Konanki, @Rainbowhospitas , Dr Amaresh Singh, DPH, Dr Pari Plavi, Genome Foundation, Dr Suryaprabha, NIMS 🙏

[Cure SMA Foundation of India 🇮🇳 @curesmaindia]

We thank the Director Dr Vijayalakshmi & her team from Institute of Genetics and hospital for genetic diseases along with @curesmaindia & @CamomileHealth for organising the program ‘The Need of the hour and way forward to strengthen the Rare Disease ecosystem’.
#RareDiseaseDay

[abhinand @abhi_bioinfo]

Great feeling participating in the #racefor7 walk as a part of @curesmaindia team. Creating awareness on #RareDisease #spinalmuscularatrophy

[NDTV @ndtv]

🔴 #BREAKING | Zomato's co-founder Gunjan Patidar resigns: Reuters https://t.co/H5ElXQmJzM