HDSA San Francisco Bay Area Chapter

Updates and news from the Huntington's Disease Society of America San Francisco Bay Area Chapter. #LetsTalkAboutHD. Recommendations? email [email protected]

[HDSA San Francisco Bay Area Chapter @HDSA_SF]

Explore the Voice of the Patient Report to hear directly from people and families living with Huntington’s disease — their stories, struggles, and hopes that will help shape the future of care and advocacy. https://t.co/bvm8LlCb3Z

[HDSA San Francisco Bay Area Chapter @HDSA_SF]

@crutchertherese https://t.co/l6t47m1AYQ

[HDSA San Francisco Bay Area Chapter @HDSA_SF]

Check out this volunteer opportunity on Idealist https://t.co/07B6raPR07

[HDSA San Francisco Bay Area Chapter @HDSA_SF]

This year’s convention promises to be an inspiring gathering of patients, families, caregivers, researchers, and advocates all coming together to learn, share, and build hope for the future. Register here: https://t.co/JnXN36BdQ0

[HDSA San Francisco Bay Area Chapter @HDSA_SF]

2 year data from the votoplam trial suggests disease progression may slow; AMT-130 heads to the UK for regulatory review; pigs reveal immune cells invading the HD brain; and new science zooms in on toxic huntingtin fragments. https://t.co/0vygYXPNau

[HDSA San Francisco Bay Area Chapter @HDSA_SF]

Gene therapy startup Latus Bio has raised another $42 million to start its first clinical trials, where it will try to sidestep issues that have set back a more advanced competitor. Read the article here: https://t.co/9TIiiqMgfo

[HDSA San Francisco Bay Area Chapter @HDSA_SF]

MAY IS HD AWARENESS MONTH. Here are three simple ways to support HD Awareness Month: Share on Social Media, post using #LetsTalk AboutHD, Share Your Voice, and Promote the $50k Match. Donations can be made at: https://t.co/mOTew1U0Xy

[HDSA San Francisco Bay Area Chapter @HDSA_SF]

A recent study suggests that strengthening the brain's own clean-up system could slow Huntington’s disease. https://t.co/L0OXDXWz1A

[HDSA San Francisco Bay Area Chapter @HDSA_SF]

Thank you to every walker, runner, volunteer, donor, supporter, and team who helped make this year’s event such a success. A special thank- you to Ernesto for capturing the day so beautifully through his photos. Click here to view the walk photos: https://t.co/J43Q7Do2Mq

[HDSA San Francisco Bay Area Chapter @HDSA_SF]

May is Huntington's Disease awareness month. We come together to raise awareness, honor the strength of families impacted by HD, and remind them they are not alone. Every dollar donated will go even further thanks to a generous 2x1 Match https://t.co/sbaenJuLqM

[HDSA San Francisco Bay Area Chapter @HDSA_SF]

Prilenia's application for European approval of pridopidine was quietly withdrawn 6 months ago, in November 2025, after the EMA had already recommended refusing the drug. Here's what happened, and why you're only hearing about it now. https://t.co/zks7O8OKBa

[HDSA San Francisco Bay Area Chapter @HDSA_SF]

May is Huntington's disease awareness month. We will beat HD in a few years! #letstalkabouthd #hdawareness

[HDSA San Francisco Bay Area Chapter @HDSA_SF]

May is HD Awareness Month. Help raise awareness, support families impacted by HD, and remind them they are not alone. Thanks to a generous 2-to-1 match, every dollar donated will have triple the impact for HD families across the country. https://t.co/kM6W3LMbDI

[HDSA San Francisco Bay Area Chapter @HDSA_SF]

The pictures taken at the event will be uploaded to the Chapter website soon!

[HDSA San Francisco Bay Area Chapter @HDSA_SF]

Here are more pics from the event!

[HDSA San Francisco Bay Area Chapter @HDSA_SF]

We had a fantastic day at the San Jose THW. We had a great turnout, with more than 45 adult runners and about 10 youth runners participating. A HUGE THANK YOU to our sponsors, donors, teams, team captains, volunteers, and participants for making this event such a success!

[HDSA San Francisco Bay Area Chapter @HDSA_SF]

Join us on Saturday, May 16, for a 5K walk and timed 5K run. Enjoy music, breakfast, silent auction items, raffle prizes, and awards for top fundraisers. Thank you to our sponsors and donors for supporting this event. https://t.co/L8YwdkBSNR

[HDSA San Francisco Bay Area Chapter @HDSA_SF]

Here is the latest copy of the HDSA Marker: https://t.co/PVsE8lyYjf Please read through The Marker, as it contains much important information on HD Research and research pipeline for the local HD community.

[HDSA San Francisco Bay Area Chapter @HDSA_SF]

May is HD Awareness Month. Help raise awareness, support families impacted by HD, and remind them they are not alone. Thanks to a generous 2-to-1 match, every dollar donated will have triple the impact for HD families across the country. https://t.co/kM6W3LMbDI