HOPE for SCD

Non-Profit Educational Org dedicated to creating patient education tools related to Sickle Cell Disease using research based best practices for Adult Learners

[HOPE for SCD @HOPEforSCD]

#WorldSickleCellDay- it affects more people than you think! Pass it on. https://t.co/VrQhlFqrnk

[Jamie Mansaray @JamieMansaray]

@HOPEforSCD “Mobile Health Technology App Development Survey for Sickle Cell Disease Adolescents and Young Adults.”
https://t.co/DKlJvm0mwz

[Agios @AgiosPharma]

September is #SickleCellAwarenessMonth. We’re proud to partner with the #SickleCell community and amplify their voices. Learn more about our commitment to #SickleCellDisease through the inspiring video and song created by #SickleCell warrior, DeMitrious. https://t.co/gE6bqKSQdD

[HOPE for SCD @HOPEforSCD]

Our last Talking Tuesday read aloud is tomorrow at 2:00pm EST! Our ED Lisa Rose will be reading her book, “Sickle What?” The focus will Be on Chapter 2- genetics and “gene shopping”! This book was medically reviewed… https://t.co/svBlGhdxcJ

[HOPE for SCD @HOPEforSCD]

Our last Talking Tuesday read aloud is tomorrow at 2:00pm EST! Our ED Lisa Rose will be reading her book, “Sickle What?” The focus will Be on Chapter 2- genetics and “gene shopping”! This book was medically reviewed… https://t.co/STTrZGbV69

[Boost Oxygen @BoostO2]

@HOPEforSCD https://t.co/abZYbcYATK

[Baba Inusa @PdbInusa]

@KingsCollegeLon @lifecourse_KCL @KingsGHP new lancet paper on transition from paediatrics to adults in @HOPEforSCD

[Gary Gibson @GaryAGibson]

Random thought...the only thing more agonizing than watching someone in a #SickleCell crisis is being the patient who is experiencing it. Truthfully, there is nothing like it.

[Sickle Cell 101 @sicklecell101]

"We now have a therapy that significantly improves hemoglobin levels, has a favorable safety profile and reduces the anemia and hemolysis," states Elliott Vichinsky, M.D.

Oxbryta will be available to patients in the U.S.
⁠⁠
#oxbryta #FDA #sicklecell #sicklecell101 ⁠

[As One Foundation @AsOneFoundation]

It's #GivingTuesday Eve! Tomorrow's the day and we are so excited to officially join the movement. Give a little, save a life! Donate here to help our #TraitWarriors https://t.co/NDU2JIdp2m

[Sickle Cell 101 @sicklecell101]

… and stronger than most. Don’t forget it.

Tag someone who needs this.

#teamsicklecell #sicklecellanemia #sicklecell #sicklecell101

[HOPE for SCD @HOPEforSCD]

Learn more about #ClinicalTrials. We can't expect a cure without our own participation! #sicklecell #educationiskey https://t.co/xVWiL4hHA6

[HOPE for SCD @HOPEforSCD]

Calling all caregivers. Simple online research study for $50! your child must be 6 or older. Patients 16 and older can also participate!
Contact- Elisa at [phone] (text is easier for her) or you can email her at [email protected]

[HOPE for SCD @HOPEforSCD]

The last Warrior U was amazing. Check out this series on FDA. How can we as patients engage them? Sign up below! #sicklecell #clinicaltrials #FDA #WarriorU https://t.co/eEizZ1sRqQ

[HOPE for SCD @HOPEforSCD]

There have been a lot of questions about genetics and the punnet square. Here is a video we made to help you understand! https://t.co/dh4FmA56qn https://t.co/dh4FmA56qn

[J @NoNeinNeeNon]

#LeadershipSummit2019
#SC3LeadershipSummit @HOPEforSCD #SickleCell Social Media Training!!!

[HOPE for SCD @HOPEforSCD]

@HealthiVibe is conducting research interviews with 18-40 year old #sicklecell patients regarding a new app...reimbursement provided, check it out! Call to see if you qualify

[HOPE for SCD @HOPEforSCD]

grant funding opportunity through @gbtpharma for CBOs. Deadline 5/1/2019, check it out! https://t.co/YTFO09spTP https://t.co/YTFO09spTP

[HOPE for SCD @HOPEforSCD]

absolutely true! https://t.co/SiDWZ1D73I

[HOPE for SCD @HOPEforSCD]

There have been a lot of questions about genetics and the punnet square. Here is a video we made to help you understand! https://t.co/dh4FmA56qn https://t.co/dh4FmA56qn

[HOPE for SCD @HOPEforSCD]

This is a fantastic idea. Blood saves a person living with #sicklecell more often than we know. Thank you donors! https://t.co/xmCXlWlTDd