HSCOVID

Global Hidradenitis Suppurativa COVID-19 Registry

[HSCOVID @hscovid]

If you have HS and were diagnosed with #COVID19, we want to hear from you!

Collaborators around the world created a registry to better understand clinical course and outcomes for HS patients diagnosed with COVID-19.

Survey: https://t.co/JZWvHosKYK

#HidradenitisSuppurativa

[HSCOVID @hscovid]

Updated findings from our registry! We are still collecting responses from HS patients and providers at https://t.co/aDvb5dCy75

#hidradenitis #hidradenitissuppurativa #HS #HSCOVID

[HSCOVID @hscovid]

If you live the Bay Area with #HidradenitisSuppurativa, there is a free online support group beginning on January 25th! This support group is open to those with #HS, caregivers and loved ones.

https://t.co/QzlJOhuduX

#HopeforHS #hidradenitis

[HSCOVID @hscovid]

We are still collecting responses!

[HSCOVID @hscovid]

If you have HS and were diagnosed with #COVID19, we want to hear from you!

Collaborators around the world created a registry to better understand clinical course and outcomes for HS patients diagnosed with COVID-19.

Survey: https://t.co/JZWvHosKYK

#HidradenitisSuppurativa

[HSCOVID @hscovid]

Biologic therapy is not associated with increased COVID-19 severity in patients with hidradenitis suppurativa: Initial findings from the Global Hidradenitis Suppurativa COVID-19 Registry
#openaccess #hs #HidradenitisSuppurativa

https://t.co/Xrbztp25kl

[HSCOVID @hscovid]

The COVID-19 pandemic is unfortunately not over. Check out our latest findings from the @HSCOVID registry, and report any new cases at https://t.co/JZWvHosKYK

https://t.co/xRFvPfVxKT

@hsforg @HSFoundationorg

[HSCOVID @hscovid]

The COVID-19 pandemic is unfortunately not over. Check out our latest findings from the @HSCOVID registry, and report any new cases at https://t.co/JZWvHosKYK

https://t.co/xRFvPfVxKT

@hsforg @HSFoundationorg

[HSCOVID @hscovid]

Check out our preliminary findings published in @JAADjournals

The Global @HSCOVID Registry found that HS patients who get COVID-19 on biologics do NOT have increased COVID severity.

Check out our complete findings at
https://t.co/xRFvPfVxKT

@hsforg @HSFoundationorg

[HSCOVID @hscovid]

Check out our preliminary findings published in @JAADjournals

The Global @HSCOVID Registry found that HS patients who get COVID-19 on biologics do NOT have increased COVID severity.

Check out our complete findings at
https://t.co/xRFvPfVxKT

@hsforg @HSFoundationorg

[HSCOVID @hscovid]

Preliminary results from the HS COVID Patient Registry!

https://t.co/JZWvHosKYK

#HidradenitisSuppurativa #HS #dermtwitter #research
@UCSF @hsforg

[HSCOVID @hscovid]

Preliminary results from the HS COVID Patient Registry!

https://t.co/aDvb5dU9vF

#HidradenitisSuppurativa #HS #dermtwitter #research
@UCSF @hsforg

[HSCOVID @hscovid]

Preliminary results from the HS COVID Patient Registry!

https://t.co/aDvb5dU9vF

#HidradenitisSuppurativa #HS #dermtwitter #research
@UCSF @hsforg

[HSCOVID @hscovid]

Preliminary results from the HS COVID Patient Registry!

https://t.co/JZWvHosKYK

#HidradenitisSuppurativa #HS #dermtwitter #research
@UCSF @hsforg

[HSCOVID @hscovid]

A great thread by @UCSF dermatologist Dr. Haley Naik. Click to read her insights on the post below and to read the research letter regarding barriers to care for #HidradenitisSuppurativa.

@UCSFMedicine @UCSFHospitals @hsforg
#dermtwitter #dermatology

[BJD @BrJDermatol]

Our next question is for @haleynaik: you have previously written about the barriers to HS care. How has the pandemic exacerbated these barriers? #BJDTalks

Read more about barriers to HS care from Dr. Naik and colleagues here 👇

https://t.co/VBHRKLPWu3

[Haley Naik @haleynaik]

@BrJDermatol These data will help us understand how HS pts specifically fare with COVID, and whether biologics confer an increased risk of severe COVID illness or complications.

[Haley Naik @haleynaik]

@BrJDermatol We now know from studies in other conditions that patients on biologics who contract #COVID may do as well or better than their non-biologic counterparts.

[Haley Naik @haleynaik]

@BrJDermatol There was also concern that #biologics and immunomodulator therapy might put patients at an increased risk for severe #COVID illness, leading patients to stop the medications that were controlling their #HS either on their own or under MD direction.

[Haley Naik @haleynaik]

@BrJDermatol A barrier we want to better understand right now is vaccine hesitancy among HS patients. We are launching a vaccine hesitancy survey the coming days to better understand this concern. Stay tuned! #BJDtalks

[Haley Naik @haleynaik]

@BrJDermatol Thanks for this really important question. HS patients face many barriers in getting care for their condition: getting the correct diagnosis, accessing knowledgeable providers in their vicinity, accessing the medications, accessing mental health and pain management resources.

[Haley Naik @haleynaik]

@BrJDermatol The pandemic worsened many of these barriers, and created new barriers to HS care. Early in the pandemic, accessing providers for disease flares or maintenance care was challenging. Groups like @hsforg and #ehsf2021 put out guidance to help patients navigate care during that time

[Haley Naik @haleynaik]

@BrJDermatol One of the most important barriers has been a lack of information about how HS patients are doing with #COVID-19 and COVID #vaccines. We have been working to mitigate that barrier through the Global @HSCOVID registry-https://t.co/gEnThnSYzO @annemichlow @ichoseoptimism @BJDEditor