TripleH

[TripleH @HankiHarper]

New genes coming soon!!!

[Global Edmonton @GlobalEdmonton]

One-year-old Harper Hanki has won a “lottery” being run by a pharmaceutical company to receive a multi-million dollar treatment for spinal muscular atrophy. #ab #alberta

@HankiHarper

https://t.co/Av0BZYq7vN

[TripleH @HankiHarper]

@bambkb You are dumber than dumb.

[TripleH @HankiHarper]

@TaylorMadeCA @BrookeHenderson Congrats! 🇨🇦🇨🇦

[TripleH @HankiHarper]

@RiggsBarstool @gfore @AkChin_SoDunes 94

[TripleH @HankiHarper]

@Transport_gc You're fucking idiots

[TripleH @HankiHarper]

@rdesai711 @NHL Eh- fuq u cuzin

[TripleH @HankiHarper]

@JustinTrudeau Can you not

[CityNews Edmonton @CityNewsYEG]

Medical advancements have drastically changed the prognosis for children born with Spinal Muscular Atrophy (SMA) in recent years, and soon more Canadian babies will be screened at birth for the genetic disease.

[TripleH @HankiHarper]

@canadaposthelps can you please refund my package that hasn't moved since November 30?!
#superannoyed

[TripleH @HankiHarper]

Good news for other kids waiting for the same treatment!!
#fucksma

[Courtney Theriault @cspotweet]

NEW:

Health Canada approves Zolgensma, the one-time gene therapy for young kids with spinal muscular atrophy (SMA).

Known as the world's most expensive drug, it previously required Canadian families to fundraise the $1.8M price tag.

#yeg #yyc #ableg #cdnpoli

[TripleH @HankiHarper]

@michland15 @Digital_Pigeon @nielsonTSN1260 @JasonGregor @GenePrincipe Connected on insta!
Let's get to work. Every Canadian should have access to this treatment!!💪💪💪

[TripleH @HankiHarper]

@EvanJPretzer Political leaders like MLA Shane Getson, @DaneLIoydMP @KellyMcCauleyMP @tomkmiec have been great advocates for us through it all

[TripleH @HankiHarper]

@EvanJPretzer Agreed! Our system and processes regarding rare diseases need a complete overhaul.

[TripleH @HankiHarper]

@GlobalEdmonton New designer "genes" coming to Alberta soon!!!💪💪

[TripleH @HankiHarper]

@DaneLIoydMP You nailed it Dane! We are so grateful for all your support and advocacy. 💪🙏🏼🤘

[TripleH @HankiHarper]

@ChrisLaBossiere Marty looks stuck! 🤦‍♀️

[TripleH @HankiHarper]

@GlobalEdmonton New genes coming to Alberta!!!

[TripleH @HankiHarper]

Wooooooooooooo!!!!!

[Edmonton Warriors Minor Lacrosse Club @EdmWarriors_lax]

Congratulations to the Hanki Family, Harper will be heading to Calgary next month for her medical treatment. 👏

[124 Street Business Association @shop124street]

Have you met @HankiHarper?
She's suffering from a very rare, life-threatening illness that will claim her life if she doesn’t receive treatment within the year. https://t.co/i2kCe8UYxV