I am a Christian. I have had the neuroimmune disorder ME, Myalgic Encephalomyelitis, since 1991. From North Somerset, currently in County Down. Isaiah 40 v 31.
Read my book "Looking back with ME - Living for a quarter of a century with the neuroimmune disorder ME" on my website. Go to -
https://t.co/dmZfV7nfGB
Also available as an ebook & paperback from @DayOneCM including reviews –
https://t.co/fUUf4JE9jq
#myalgicencephalomyelitis
How to check your current benefits award, including PIP, online
https://t.co/0KhwgQTf8S
“The government have introduced a service which allows you to check the rate and length of your benefits award & download proof of entitlement.”
https://t.co/sjiIVdkxxN
#pwME#MECFS
Study finds gastrointestinal symptoms play clinical role in ME/CFS
https://t.co/iBa8sAuuVW
“in ME/CFS gastrointestinal (GI) symptoms are not just prevalent, but also a clinically relevant dimension of the disease.”
https://t.co/sjiIVdkxxN
#myalgicencephalomyelitis#pwME#MECFS
A Sovereign Protector I have
Unseen, yet for ever at hand,
Unchangeably faithful to save,
Almighty to rule and command.
https://t.co/RjePzID9a6
https://t.co/sjiIVdkxxN
#sundayhymns
From @MEAssociation GOV UK shares interim report on Timms Review of PIP, calling current system ‘not fit for purpose’
https://t.co/55hki46sL0
“Millions of disabled people are being failed by a benefit that is no longer working ...”
https://t.co/sjiIVdkxxN
#pwME#MECFS
James Smith – Evening Devotional for 9th July
‘I will be their God.’
“they shall have My wisdom to guide them; My power to protect them; My love to assure them; My mercy to save them; My holiness to sanctify them; and My Spirit to comfort them.”
https://t.co/Y1nqFun4EH
From @MEAssociation Overcoming barriers in ME/CFS research: the CureME participatory model
https://t.co/BsvnBELwyc
“Key takeaway: Better study design and meaningful patient involvement can improve the reliability and relevance of ME/CFS research”
https://t.co/sjiIVdkxxN
#MECFS
From @MEResearchUK NHS Template Services for ME/CFS & long COVID
https://t.co/rs6ClUlXrE
"Officials in the Department & NHS England are currently actively considering whether a specialised service for very severe ME/CFS should be commissioned"
https://t.co/sjiIVdkxxN
#MECFS
Lift high the Cross, the love of Christ proclaim,
Till all the world adore His sacred Name.
Come, Christians, follow where our Saviour trod,
Our King victorious, Christ, the Son of God.
https://t.co/ZFoaKLMcxQ
https://t.co/sjiIVdkxxN
#sundayhymns
From @MEResearchUK Parliamentary Question on disease burden and research funding
https://t.co/zkiSzAXK5b
"... we recognise that this has been an under researched area and the Government is committed to funding high-quality research ..."
https://t.co/sjiIVdkxxN
#pwME#MECFS
From @MEResearchUK Long term follow up of women with ME/CFS in Serbia
https://t.co/DyuB5B3kSg…
"... 85% developed another ‘clinically significant disease’ by the end of follow up, & ME/CFS symptoms had worsened for 15%."
https://t.co/NsYL9j19Dj
#myalgicencephalomyelitis#pwME
New webpage
Over the last year or so, quite a lot of new things have been added to my website, including many items which can be downloaded - so an Index of Downloads has been added to the site. Go to -
https://t.co/ZBZ4Lfks86
https://t.co/sjiIVdkxxN
All praise to God Who reigns above
The God of all creation
The God of wonders, power and love
The God of our salvation
With healing balm my soul He fills
The God Who every sorrow stills
To God all praise and glory!
https://t.co/kV9YXhfcFT
https://t.co/sjiIVdkxxN
#sundayhymns
From @MEResearchUK New tools to assess levels of activity and participation in children and young people with post-acute infection and vaccination syndromes and/or ME/CFS developed
https://t.co/IAH2oTk0QI
https://t.co/sjiIVdkxxN
#myalgicencephalomyelitis#pwME#MECFS#MyalgicE
From @MEResearchUK Chronic stress and brain fog in ME/CFS – more evidence for dysfunction of the HPA axis in ME/CFS
https://t.co/M6KTvpXo2R
“… a review paper that explores potential disease mechanisms linking chronic stress to “brain fog,”
https://t.co/sjiIVdkxxN
#MECFS
From @MEAssociation Mapping the Symptom Profile & Burden of ME/CFS: Insights from the TIMES Survey
https://t.co/wXH27i83t9
“ME/CFS causes a heavy multi-system symptom burden ... the cumulative effect was severe or very severe.”
https://t.co/sjiIVdkxxN
#pwME#MECFS
All hail the pow’r of Jesus’ name!
Let angels prostrate fall;
Bring forth the royal diadem,
And crown Him Lord of all;
Bring forth the royal diadem,
And crown Him Lord of all!
https://t.co/2oB0c6FJq6
https://t.co/sjiIVdkxxN
#sundayhymns