Jo Hunt (activism, also @JoElizaHunt for papers)

Disabled psy therapist, researcher & activist. #MECFS #longCovid. she/her. Animal lover. Here for intersectional social justice

[Jo Hunt (activism, also @JoElizaHunt for papers) @HealthHubris]

Sharing my new paper on #longCovid, #MECFS, welfare reform politics and the risk of history repeating itself.

Situates the PACE trial, psych lobbying of the state ref ME etc. in its wider (bio)political context.

#disability #benefits

[Jo Hunt (also blogging at @HealthHubris) @JoElizaHunt]

My new paper on welfare reform politics and the risk of #longCovid following the trajectory of stigmatised conditions such as #MECFS. Includes health & disability White paper, macro-politics of the PACE trial, psy-corporate-state alliances etc.

https://t.co/Olw4W0KvAY

[Katy B @KatyBruce108]

However safe this space feels for #pwME & LC
for many reasons some will always feel far more comfortable not sharing the specifics of what theyre going through & the degree to which they're suffering here in a public space
Thinking of those all suffering who are quiet & private

[Jo Hunt (activism, also @JoElizaHunt for papers) @HealthHubris]

A few peeps asked if I could unpack some of my academic papers on disability-affirmative psychotherapy as an emotional support for ppl who choose it …

… I’ve sought to do so in this blogpost, with focus on #MECFS

https://t.co/Yt1u2lR9sD

[Jo Hunt (activism, also @JoElizaHunt for papers) @HealthHubris]

@macharenga De nada 😊

[Jo Hunt (activism, also @JoElizaHunt for papers) @HealthHubris]

New series of blogposts looking at politics underpinning the #biopsychosocial model of #chronicillness & #disability, notably welfare reform & the interests of the academic-state-corporate nexus. #MECFS #longCovid #longhaulers https://t.co/PmL54skjCk

[Jo Hunt (activism, also @JoElizaHunt for papers) @HealthHubris]

@quasar9uk @DressFor_ME @ABrokenBattery Interesting … I know a fair few links that used to navigate to helpful webpages don’t work any more!

[Jo Hunt (activism, also @JoElizaHunt for papers) @HealthHubris]

@quasar9uk No worries at all! 😊 I’ve managed to publish a fair few peer reviewed papers on these injustices now as well as blogposts, I was hoping the papers might encourage some people to stop pretending like this isn’t happening … one of the latest is here: https://t.co/Sa84qDp6j0

[ME/CFS News @MECFSNews]

The #MECFS Research Roadmap Report has been published. It is a a cross-sectional, multidisciplinary
discussion of current ME/CFS research, organized by the @NIH.

https://t.co/vFRi5Ic4Ef

[Simon J Duffy @simonjduffy]

Last night we had a brilliant @FestOfDebate @citizen_network on hosted by @SHU_AWRC
What is Health?
Jack Czauderna (my hero) explained what the Peckham Experiment can teach us about the link between community and health. @EmmaLatimer3

[Whitney Dafoe @DafoeWhitney]

How could the same facility that rushes people to the ER to save their lives actively kill someone just down the hall?  This is beyond psychologizing physical illness, it seems like these medical staff do not see the humanity in Severe ME/CFS patients; As if we are so sick and decapacitated already that they see some version of the word "invalid" and death does not seem like a loss of human life to them.  

1. Carla cannot drink enough water to stay alive nor tolerate an NG tube at home
2. Carla is stuck in NHS care with no other choice or options for care
3. NHS staff are not giving her access to fluids with the same procedure they do within minutes in the ER to non ME/CFS patients

This is not simple neglect, this is not malpractice, this is manslaughter at best and murder at worst.

#SaveCarlasLife
#Dontletmedie
#BringMillieHome

@NHS @NHSuk @DHSCgovuk @CommonsHealth

#mecfs #SevereMECFS #LongCovid #pwME

[DPAC @Dis_PPL_Protest]

“Disability cuts: Work isn’t the pull Sunak thinks it is”.

A response in @Freedom_Paper to recent welfare reform announcements & some context around the current world of work.

Disabled people contribute - waged or not.

Please RT

#WorkIsntWorking

https://t.co/wzIZmD4ee4

[DPAC @Dis_PPL_Protest]

#NoToAS

Liz Carr documentary Better off Dead?
Airs on BBC1 9pm

Tomorrow Tuesday 14th May 2024

https://t.co/PRaB5KfeMY

[DPAC @Dis_PPL_Protest]

Connecting people & connecting struggles.

#SolidarityInAction

[DPAC @Dis_PPL_Protest]

#FundDisabilitySupport
#HandsOffWhaikaha

Please show solidarity to disabled New Zealand activists as they ramp up resistance against the New Zealand Government against cuts to disability support

We are totally with disabled allies in New Zealand
RT
https://t.co/oP7A7bIi5B

[Sara Anne Willette ♿️🌈👩🏻‍💻𓅆 @amethystarlight]

It’s doggie booster day!

My service dogs wear a PM2.5 valved masks inside their airflow muzzles.

I have Common Variable Immune Deficiency, putting me at high risk of hospitalization and death from even minor infections.

[Jo Hunt (activism, also @JoElizaHunt for papers) @HealthHubris]

@LongCovidAdvoc Thanks Claire, fab piece!

[Long Covid Advocacy 💙 @LongCovidAdvoc]

This has been in the stacks for a while, but with a few updates, it's ready to go.
Explore with us the intersection of the brain retraining methods such as the Lightning Process, the Gupta Program and the Biopsychosocial model applied to ME and Long Cvd.
https://t.co/IZINAx2Tia

[Dan Wyke 🦠➡️🧠🔥 @Dan_Wyke]

When you get #MECFS you also typically suffer a catastrophic loss of trust in the healthcare system. The safety net you thought was there doesn't exist and you keep on falling and falling. #wato

[Jo Hunt (activism, also @JoElizaHunt for papers) @HealthHubris]

@8Eevert @elle_carnitine @JoElizaHunt Thanks so much! 🙏🏻

[Jo Hunt (activism, also @JoElizaHunt for papers) @HealthHubris]

@NickyProctor @Channel4News @GranadaReports @BBCNews @TheNewsAgents @BBCRadio4 Thanks so much!