Deirdre Collins | Hoopla Focal

Your cúpla focal, hand embroidered with grá in Dublin💚
(She/her)
advocate with Sjögren's Ireland @Sjogrensirl

[Sjögren's Ireland @SjogrensIrl]

Happy #WorldSjogrensDay to everyone!

To mark the day, we are excited to announce that the major research project we have been collaborating on, is now well underway in @RCSI_Irl.

SYNERG-IE aims to address the challenges in the recognition, diagnosis and management of Sjögren’s.

[Sjögren's Ireland @SjogrensIrl]

We are so excited to hear that recruitment started today for the new Sjögren’s research team in @RCSI_Irl

If you’re passionate about arthritis research, then check these great jobs out 👇

[Michelle Flood @shellflood]

-Patient Representative Researcher https://t.co/yR38cK7lN4
-Postdoc 1 (@FrankMoriarty): https://t.co/fAMevJS2NP
-Postdoc 2: https://t.co/2BQFx97LUM
-Interaction/Visual Designer: https://t.co/ydIH8mEQlX
-Research Fellow/Programme Manager: https://t.co/3B1OuvBSKf

@SjogrensIrl

[Michelle Flood @shellflood]

Delighted to advertise five positions for the SYNERG-IE Programme, an interdisciplinary five-year HRB-funded programme focused on #Sjögren’s.

Please see the links below for information and closing dates.

Two PhD positions will also be advertised soon.

Retweets appreciated!

[Imelda May @ImeldaOfficial]

As important as ever

Thanks Matthew Rose-Nel for making and adding @rachelmaehannon vocals 💚

[Daniel Lambert @dlLambo]

Please RT/Share

🎁We have just launched our 2023 Direct Provision Christmas Toy Drive - we are once again aiming to raise €80,000 in one week to get toys for every child.

Let's give this kids a Céad Míle Fáilte! 🇮🇪🌏

👉Donate/more info here: https://t.co/PExcUBe09S

[Sjögren's Ireland @SjogrensIrl]

Really excited to represent Ireland 🇮🇪 at the 1st Annual Conference for Sjogrens Patients today in Greece 🇬🇷. Great to meet friends from @SjogrensBSSA and beyond

Many thanks to @SjogrenEurope 🇪🇺for a wonderful event 👏👏👏
#ACSP #Sjogrens

[Sjögren's Ireland @SjogrensIrl]

📢 Calling all people with #Sjogrens for this important survey, which was co-designed by our patient advocacy group & @RCSI_Irl researchers. Thanks in advance for your support!

#Rheumtwitter #Sjögren #PPI
#loveirishresearch #sjogrenssyndrome

[Dr Joan Ní Gabhann-Dromgoole @JGabhann]

We need participants with Sjögren’s to take part in a research study which aims to explore quality of life, mental health and attitudes towards complementary & alternative medicines

To find out more & take part in the study click here:
https://t.co/8afrSFfLAi

@RCSIPharmBioMol

[Sjögren's Ireland @SjogrensIrl]

Our 2023 webinar is now available to watch on YouTube 📺

Many thanks to @JGabhann @shellflood @OcularOirg @RCSI_PPI_Ignite and everyone who participated in the event.

[Sjögren's Ireland @SjogrensIrl]

Great to see @DublinAirport doing a survey on the travel needs of people with disabilities.

https://t.co/ro0jgMcNLu

[Donal Fallon @fallon_donal]

This Friday, a live Three Castles Burning with the playwright Jimmy Murphy recalling 'Dead As Doornails', to mark Cronin's centenary year. Part of @MoLI_Museum First Fridays. Free in, followed by poet Eva Kenny, drinks by Liberties Whiskey Distillery. Doors at 6 - don't be late!

[Kulturhist. museum @Kulturhistorisk]

Can you imagine the amount of thread needed to weave a sail for a Viking ship?

In the #VikingAge, spindle whorls were an essential tool in textile production. Let us show you how they were used 👇

[Phibsborotidytowns @PhibsTidyTown]

Celebrating the Royal Canal's biodiversity — a series of free workshops.
The next one is Sunday 3 September at 2pm exploring the fascinating & diverse world of canal insects — from dragonflies to butterflies and beyond.
#RoyalCanal
More info: https://t.co/9iuRR3kY17

[Dr Joan Ní Gabhann-Dromgoole @JGabhann]

2 years ago, my daughter Emily battled sepsis, losing her hair. Now 7, she's donating her regrown hair to support those facing hair loss

Help her fundraise for @CMRF_Crumlin & @RapunzelFoundat

Support & share:
ttps://www.idonate.ie/fundraiser/EmilyDromgoole

[Victoria Stokes @victorialstokes]

#journorequest I'm looking for Irish self-employed women and employed women in senior roles to talk to me about how they navigate chronic illness and career. For a women's mag (online) DMs are open. Drop me a line today if you can help.

[RCSI @RCSI_Irl]

A first-of-its-kind for Ireland, a study published today has been co-designed by RCSI researchers and #Sjögrens patients.

The survey results give insights into the impact of Sjögren’s on patients' quality of life and mental health.

➡️ https://t.co/fL9j9ynV54

#RCSIdiscover #PPI

[Sjögren's Ireland @SjogrensIrl]

Deirdre Collins @HooplaFocal & Gráinne Tynan @Gra_Tynan will give updates from the Sjögren’s Ireland advocacy group.

#Worldsjogrensday #Worldsjogrensday2023 #Sjogrens #SjogrensSyndrome #Ireland #Patientadvocacy #PPI #Autoimmune #Rheumatology #Arthritis #Rheumtwitter

[Sjögren's Ireland @SjogrensIrl]

Following on from the success of our #Sjogrens webinars in '21 & '22, we are delighted to host our next webinar to mark #WorldSjogrensDay 2023 with @RCSI_Irl @RCSI_PPI_Ignite @OcularOirg .

📅 Sat 15 July @ 11am

Book now: https://t.co/SYpML7x3wU

A 🧵on our speakers: