Hope4Aubrie @Hope4Aubrie - Twitter Profile

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Hope4Aubrie @Hope4Aubrie

over 5 years ago

What is Mitochondrial Disease? 💚 #mitowarrior #mitonchondrialdisease #mitoawareness #hope4aubrie

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Hope4Aubrie @Hope4Aubrie

over 5 years ago

Today I spoke to our legislators about the #STATact which would help accelerate treatment options for rare and ultra-rare diseases. 30 million people in the US are affected by rare diseases. This bill could help save Aubrie’s life one day 💚 #EveryVoiceMatter #RareDC2021

Hope4Aubrie's tweet photo. Today I spoke to our legislators about the #STATact which would help accelerate treatment options for rare and ultra-rare diseases. 30 million people in the US are affected by rare diseases. This bill could help save Aubrie’s life one day 💚 #EveryVoiceMatter #RareDC2021 https://t.co/uMlndgUzWg

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Hope4Aubrie @Hope4Aubrie

over 5 years ago

We are excited to be attending the virtual #RareDiseaseWeek on Capitol Hill with @EveryLifeOrg! This is a great opportunity to represent the Mito ARS genes with legislators. Families from all over the country gather to advocate for policy change! #CureARS #RareDC2021

Hope4Aubrie's tweet photo. We are excited to be attending the virtual #RareDiseaseWeek on Capitol Hill with @EveryLifeOrg! This is a great opportunity to represent the Mito ARS genes with legislators. Families from all over the country gather to advocate for policy change! #CureARS #RareDC2021 https://t.co/UHZMKogXxr

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Hope4Aubrie @Hope4Aubrie

over 5 years ago

Raising Awareness 💚💚💚 @UMDF #mitochondrialdisease #mitochondrialmedicine #mitoawareness

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Who to follow

WMDW

@MitoAware

World Mitochondrial Disease Week raises awareness of mitochondrial disease on a global scale through educational, fundraising and advocacy activities.

Maria Clara Zanellati

@MC_Zanellati

Post-Doc, metabolism and organelle dynamics at @UNC_CBP

Hope4Aubrie @Hope4Aubrie

over 5 years ago

Wanted to share this link for those who were looking to understand and navigate mitochondrial disease 💚 thank you @UMDF https://t.co/9Xumn81E9c

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Hope4Aubrie @Hope4Aubrie

over 5 years ago

The cutest face 😍 #cutenessoverload #mitochondrialdisease #mitowarrior #raregem #follow

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Hope4Aubrie @Hope4Aubrie

over 5 years ago

@UMDF #mitochondrialdisease #raredisease #raregem #hope4aubrie #mitowarrior #mito

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Hope4Aubrie @Hope4Aubrie

over 5 years ago

𝗔𝘂𝗯𝗿𝗶𝗲’𝘀 𝗚𝗲𝗻𝗲𝘁𝗶𝗰 𝗩𝗮𝗿𝗶𝗮𝗻𝘁𝘀- Aubrie has 2 genetic variants on the AARS2 gene. This is a recessive disorder on her nuclear DNA. If you are reading this and there is someone in your family that has a similar mutation on the AARS2 gene, please contact us -

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Hope4Aubrie @Hope4Aubrie

over 5 years ago

We are interested in learning more from other families or partnering together to help raise money for future research.

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Hope4Aubrie @Hope4Aubrie

over 5 years ago

Aubrie had a great weekend spending some time with Dad 💓 Happy Monday! #familyfun #mito #mitowarrior #familyweekend

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Hope4Aubrie @Hope4Aubrie

over 5 years ago

Aubrie, hard at work 😂 #funny #cute #love #family #hardatwork #busygirl #cutekid

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Hope4Aubrie retweeted

United Mitochondrial Disease Foundation @UMDF

over 5 years ago

Mitochondrial diseases are often under-recognized and misunderstood. Mito University provides patients, families, caregivers and clinicians with the resources, facts and knowledge to better navigate their journey. Visit Mito U today https://t.co/LvJBaTNCfV

UMDF's tweet photo. Mitochondrial diseases are often under-recognized and misunderstood. Mito University provides patients, families, caregivers and clinicians with the resources, facts and knowledge to better navigate their journey. Visit Mito U today https://t.co/LvJBaTNCfV https://t.co/4CWPYQvLSx

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Hope4Aubrie @Hope4Aubrie

over 5 years ago

Throwback to Aubrie showing her stripes on #rarediseaseday 💚 #showyourstripes #RareDisease #aars2 #mito

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Hope4Aubrie retweeted

My Mito Mission @MyMitoMission

almost 7 years ago

Learn more about who we are and what we do!💚⚡️ https://t.co/YRwCuH6cV0 #mitochondrialdisease #mymitomission #mitochondrialhealth #mitochondrialsupport #mito #volunteer #causes #donate #change #activism #nonprofit #dogood #charity

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Hope4Aubrie @Hope4Aubrie

over 5 years ago

Aubrie is the youngest with her specific genetic mutation to show symptoms. However, we are hopeful that this was caught early, and we can take steps to try and prevent symptoms or inadvertently make symptoms worse. #mitoawareness #mitokid #mitowarrior #mitochondrialdisease

Hope4Aubrie's tweet photo. Aubrie is the youngest with her specific genetic mutation to show symptoms. However, we are hopeful that this was caught early, and we can take steps to try and prevent symptoms or inadvertently make symptoms worse.

#mitoawareness #mitokid #mitowarrior #mitochondrialdisease https://t.co/SRavXuf0qX

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Hope4Aubrie retweeted

WMDW @MitoAware

about 6 years ago

Thank you for everyone who was involved with the World Mitochondrial Disease Week.💚We greatly appreciate everyone’s involvement in raising the public profile of mito. 🙏 #wmdw #mitochondrialdisease #mito #mitoawarenessweek #mitoawareness #lightupformito

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Hope4Aubrie retweeted

The Lily Foundation @4Lilyfoundation

over 5 years ago

By becoming a regular giver you can bring hope & positive change to the lives of people with #mitochondrialdiseases - families like Jessica's. Find out how you can make a difference today: https://t.co/Ix9oCpwPC0 #lilyfoundation #fuelforlife