@huntingtonsc

A national network of volunteers and professionals working together to find a meaningful treatment for Huntington disease.

[@huntingtonsc @HuntingtonSC]

March is #SocialWorkMonth! This week, we’re spotlighting Pamela Jacobson, RCD for Fraser Valley, Interior/Northern BC & Yukon.

"It is an honour to walk alongside people who are affected by this consuming disease, to get to know them, and to offer support on their journeys.”

[@huntingtonsc @HuntingtonSC]

Huntington disease may be rare, but the power of our community is anything but. Today, on #RareDiseaseDay, we stand together—𝗥𝗔𝗥𝗘𝗹𝘆 silent, 𝗥𝗔𝗥𝗘𝗹𝘆 alone, 𝗥𝗔𝗥𝗘𝗹𝘆 defined, and 𝗥𝗔𝗥𝗘𝗹𝘆 stopped. Together, we are 𝗥𝗔𝗥𝗘𝗹𝘆 anything less than strong 💙💜

[@huntingtonsc @HuntingtonSC]

We’ve moved! As of February 1st, you can find us at 375 Hagey Blvd, Suite 114, Waterloo, ON N2L 6R5. Don’t worry—if you send mail to our previous home, it’ll still reach us thanks to mail forwarding. Looking forward to welcoming you to our new space!

[@huntingtonsc @HuntingtonSC]

🚨 Tax Deadline Extension: Remember, you have until 𝗺𝗶𝗱𝗻𝗶𝗴𝗵𝘁 𝗼𝗻 𝗙𝗿𝗶𝗱𝗮𝘆, 𝗙𝗲𝗯𝗿𝘂𝗮𝗿𝘆 𝟮𝟴 to have your donation count as a tax deduction for the 2024 year. Donate online today to receive your tax receipt and support HSC: https://t.co/9Z44Jp4JSX. Thank you!

[@huntingtonsc @HuntingtonSC]

📢 Save the Date: Registration for our 2025 #HuntingtonHeroes walk opens 𝗠𝗮𝗿𝗰𝗵 𝟰 – but that’s not all! We’ll also reveal our lineup of walk T-shirts, sweats, and HD Awareness Month T-shirts and hoodies, available for purchase and delivery before the big day. Stay tuned!

[@huntingtonsc @HuntingtonSC]

There are lots of ways to support HSC – you can donate your money or your time. Bonus – some employers will help the HD cause as well. We’ve made it easy to check to see if your employer will match your volunteer time with cash or double your donation: https://t.co/wANs6Wtfv3

[@huntingtonsc @HuntingtonSC]

Happy Family Day! At HSC, we see the power of family and community every day. Today, we celebrate the connections that bring us hope and the communities that feel like home. Wishing our incredible HSC family a day filled with love and togetherness 💙💜

[Joanne K @JoanneKaattari]

📚 Hello from our Bookish Fortress! This bleak winter hit me hard & hope seemed in short supply. To bring a bit of good into the world, my hubby & I decided to hold a "Book Sale of Hope" in May 2025 in #Barrie to raise money & awareness for @HuntingtonSC & Huntington's Disease.

[@huntingtonsc @HuntingtonSC]

We are looking for feedback on the types of support groups you’d like to see offered in Saskatchewan. This short anonymous survey will take just 5 minutes. Your answers will help us plan programming that meets your needs. Take the survey now: https://t.co/vJWN4YOCNn

[@huntingtonsc @HuntingtonSC]

Want to share your thoughts on testing for Huntington disease (HD) modifier genes? Columbia University researchers want to hear from you—help shape the future of HD testing: https://t.co/YSiN5s74pT @ColumbiaMed

[@huntingtonsc @HuntingtonSC]

🌸 Another incredible Amaryllis season!

With 23,748 kits sold, over $5,000 in donations, and nearly $350,000 in revenue – WOW!

Congrats to our 2024/25 Amaryllis Photo Festival winner, Lorraine Pearson. In second place is the equally stunning, Barry Kemp. Thank you everyone!

[@huntingtonsc @HuntingtonSC]

🍕 Happy National Pizza Day! Thanks to you, our Domino’s fundraiser raised over $500 for Huntington disease services and research. Want to bring a pizza fundraiser to your community? Download our toolkit to get started: https://t.co/FuVvd9qire

[@huntingtonsc @HuntingtonSC]

Did you know that…Symptoms of HD often intensify in stressful situations, which can lead to misunderstandings with law enforcement and increase the risk of misinterpretation or conflict in crisis situations. #FactualFriday

[@huntingtonsc @HuntingtonSC]

We are excited to follow the research of Dr. O'Donoghue, our HSC Research Chair, as he and a fabulously talented team investigate personalized therapies for Huntington disease and other genetic disorders. @SchulichMedDent

[Schulich WesternU @SchulichMedDent]

Congratulations to the #SchulichMedDent researchers who received new funding from @CIHR_IRSC. This was one of the most successful funding competitions in a decade and will advance 18 critical research projects @WesternU.
Read more: https://t.co/kIFq7Cmpfx

[@huntingtonsc @HuntingtonSC]

🌺 The HSC 2024 Amaryllis Photo Festival is live! Cast your vote here: https://t.co/jFlPhjRkyA. Voting closes February 7 at 11:59 p.m. PST. Winner announced on February 10. Thank you to everyone who submitted their stunning Amaryllis photos—you truly inspire hope!

[@huntingtonsc @HuntingtonSC]

Navigating legal challenges with HD can be difficult, especially when law enforcement is unfamiliar with its symptoms or behaviours. Our new fact sheet, "Criminal Offenses and HD," offers suggestions to navigate these interactions more successfully: https://t.co/V6dRJJlfM3

[@huntingtonsc @HuntingtonSC]

📸🌺 LAST CHANCE! Submit your Amaryllis photo by TOMORROW, January 30 to [email protected]! Don’t miss your chance to be featured in HSC publications and beautifully displayed on our 2025 Amaryllis campaign box. For more details, visit: https://t.co/iD0PGWxk6o

[@huntingtonsc @HuntingtonSC]

📢 Reminder: The federal government extended the deadline for 2024 tax-eligible donations to Feb. 28, 2025, allowing more time for charities like HSC to process donations due to Canada Post delays. Your gift truly makes a difference. Donate online today: https://t.co/9Z44Jp5hIv

[@huntingtonsc @HuntingtonSC]

🐾 Join RaceHD for the Toronto Zoo Move Your Paws Race! On Saturday, February 22, 2025, lace up your shoes and help make a difference – for families affected by HD and the Toronto Zoo’s beloved polar bears. Let’s move our paws for a purpose – register now: https://t.co/jOXVbrQX6W

[@huntingtonsc @HuntingtonSC]

Did you know that…Each person experiences HD in a unique way. Even if you have cared for someone with HD in the past, the person with HD for whom you care now may live with HD in a totally different way. #FactualFriday