ICE Syndrome Research Consortium

Consortium of researchers, clinicians, and patient advocates working together on Iridocorneal Endothelial (ICE) Syndrome

[UniMelbDOVS @UniMelbDOVS]

Congratulations to Prof Algis Vingrys, Dr George Kong and Dr Selwyn Prea on their development of an at-home glaucoma monitoring device. Read more here: https://t.co/QODIlAHPWs
In collaboration with @EyeResearchAus & @EyeandEarHosp

[Damien Harkin @DamGerryHarkin]

Following up on my recent post, a video explaining the membership options for my YouTube channel on #histotechnology is now available.

The membership perks for "Trainee" and "Client" members include access to an online training course
https://t.co/cYTAmnFlqu

#PathTwitter

[Rare Disease Day @rarediseaseday]

📢Attention everyone who is living with a rare disease, or is a carer for someone that is- we want to hear from YOU!!!

Contribute to #RareDiseaseDay today by sharing your story- you never know who you might help.
👉 https://t.co/kKUw8KJZDq

[Damien Harkin @DamGerryHarkin]

The profits from this online course in #histotechniques will be used to support research into the cause(s) of Irido-Corneal Endothelial (ICE) Syndrome.
@ICEconsortium
@IBMScience
@NS4Histotech
@ICMLS2
@PathologyRCPA
@csmls
#PathTwitter

[Damien Harkin @DamGerryHarkin]

For those studying #histotechnology #PathTwitter
I'm pleased to announce the launch of my online course in histological techniques.
You can now access the course via joining as a "Trainee" member of my YouTube channel.
https://t.co/6TwqZ5nB9u

[Rare Voices Australia @RareVoices]

We thank the Hon @GregHuntMP for his support of Rare Disease Day & for his willingness to engage with RVA as the rare disease sector works towards the best possible health & wellbeing outcomes for Australians living with a rare disease.

#RareDiseaseDay

https://t.co/Xf9JY5CbSc

[Rare Disease Day @rarediseaseday]

It's 7PM in UTC+10, which means the Gold Coast of Australia is joining the global chain of lights!

👉 Check out all of the buildings being lit up around the world today https://t.co/LRb1IGhZBZ

#LightUpForRare

[ICE Syndrome Research Consortium @ICEconsortium]

Consortium members at @QUT have launched a national surveillance study to establish how many Australians live with ICE + collect key details of medical history for analysis. Please DM us if you are a patient or eye care professional & would like to participate in the study.

[ICE Syndrome Research Consortium @ICEconsortium]

There are 300 million people worldwide living with a #raredisease. When you try to imagine that many people, suddenly rare diseases don't seem quite so rare.
#showyourstripes #RareDiseaseDay #icesyndrome

[ICE Syndrome Research Consortium @ICEconsortium]

Iridocorneal Endothelial Syndrome (#ICEsyndrome) is a #raredisease of the cornea, progressing from glare and halo vision, to drastic iris changes and secondary glaucoma - ultimately causing blindness. Some aspects of it can be managed, but not yet cured. We want to change that!

[Rare Disease Day @rarediseaseday]

Kicking off the Global Chain of Lights...it's New Zealand and the East Coast of Australia!

👉Check out all of the Rare Disease Day illuminations happening across Australia and New Zealand: https://t.co/LRb1IGhZBZ

#LightUpForRare

[Damien Harkin @DamGerryHarkin]

@DrCatherineBall @ICEconsortium A quick reminder to all clinicians managing patients with ICE syndrome in Australia
@RANZCOeyedoctor
@OptometryAus
that we are conducting a national clinical surveillance study.

To participate, contact us at [email protected]

[Dr Natalie McKirdy @Nat_Mac26]

Enjoying the @Vision2020Aus National Research Workshop. Insightful presentation by Janice Besch @NNIDResearch and fruitful discussions with researchers, clinicians, and opticians to identify the key priorities for #visionresearch in Australia to create a roadmap moving forwards.

[ICE Syndrome Research Consortium @ICEconsortium]

@DrCatherineBall @ourANU @QUT Incredible to see the stark difference in cell shape (morphology) between the two images. Thanks for sharing!

[Clear Vision Research @clearvisionanu]

Congratulations @joshchutan! What a fantastic opportunity and we can’t wait to see what you do!