IDEA

We are the International Diaphragmatic & hiatus hernia, Eventration & Abdominal Wall anomalies alliance. Working together for better outcomes what a great idea!

[Marian Knight MBE @Marianfknight]

We are trying to work out what is a successful treatment for a child with a surgical condition such as #gastroschisis #exomphalos #Hirschsprungs. Please can you send the link below to anyone who has or cares for a child with a surgical condition, or who had surgery as a child?

[Naomi Wright @PaedsSurgeon]

#Gastroschisis Protocols & Videos are live on the @GlobalPaedSurg website. ⁦@GICSurgery⁩ ⁦@me4_so⁩ ⁦@Me4Ped⁩ ⁦@SoMe4GS⁩ ⁦@BAPS1953⁩ ⁦⁦@BAPS_IAC⁩ ⁦⁦@emakasa⁩ ⁦⁦@eaameh⁩ ⁦@Soji_Ademuyiwa⁩ ⁦ https://t.co/O1ThezNKOQ

[Naomi Wright @PaedsSurgeon]

Just published! #Gastroschisis: A Successful, Prospectively Evaluated Treatment Model in a Middle-Income Country ⁦@Me4Ped⁩ ⁦@me4_so⁩ ⁦@SoMe4GS⁩ ⁦@GICSurgery⁩ ⁦@BAPS1953⁩ ⁦@rcsi_cosecsa⁩ ⁦@GlobalPaedSurg⁩ ⁦⁦ https://t.co/niAroIVgnV

[Paolo De Coppi @paolodecoppi]

Free up your diary for the 11th November for the Spitz&Kiely Symposium on CDH and 73rd Simpson-Smith Lecture by Dr Patricia K Donahoe @MassGeneralNews @GreatOrmondSt @UCLchildhealth @CDHUK_CHARITY

[Naomi Wright @PaedsSurgeon]

Challenges and Outcome of #Gastroschisis at a Tertiary Institution in North-Eastern #Nigeria | #GlobalSurgery #congenital #anomalies ⁦@GICSurgery⁩ ⁦@BAPS_IAC⁩ ⁦@BAPS1953⁩ ⁦@GlobalPaedSurg⁩ ⁦@UNICEF⁩ ⁦@mendingkids⁩ ⁦ https://t.co/TjbRwUV0CF

[IDEA @IDEA_ALLIANCE]

Covering some of the #congenitalanomalies within our #alliance great work @PaedsSurgeon and team including @GlobalPaedSurg @CDHUK_CHARITY and many more. #cdh #gastroschisis #omphalocele #exomphalos

[CDH UK @CDHUK_CHARITY]

Fantastic study, lots of data, great collaboration, good to be a part of such a huge team! #cdh #congenitaldiaphragmatichernia @ernica_ern @IDEA_ALLIANCE @PlatformCHD_NL @CDHAustralia

[CDH UK @CDHUK_CHARITY]

Thank you @BAPSCongress @BAPS1953 @BAPS_IAC for a really helpful and informative 3 days. Thanks to @MedAllApp for helping to make the virtual event user friendly. We hope to foster further collaboration through new connections made at the congress. Great work all! #baps2021 #cdh

[Sprint Paediatric Surgery @SprintPaedSurg]

Excited to have more than 60 participants in the Sprint Saturday session today.

Thank you, Professor Mark Davenport, for the excellent teaching on complex gastroschisis.

Registration link: https://t.co/zT9wvm4J1D

https://t.co/Qor7LL0eRZ
@BAPS1953
@dr_aniyogi

[BAPS @BAPS1953]

Very topically, Prof @LostyPaul & Prof D look at FETO in light of @NEJM recently publishing the results of the two TOTAL trials looking at the role of fetal tracheal occlusion (FETO).

https://t.co/WND4GBvdmk

@tripsrepuk #some4pedsurg

[ERNICA @ernica_ern]

Join the EJP-RD course "Diagnosing Rare Diseases: from the Clinic to #Research and back" designed for individuals with a keen interest in diagnostic research and #rarediseases @fdmaladiesrares @EJPRareDiseases

More information here: https://t.co/UnK1rp0PYS

[CDH UK @CDHUK_CHARITY]

Did you know that this week is Autism Awareness Week? 🧩
We recognise that some Children with CDH can sometimes be diagnosed with developmental issues and this can include autism or related disorders, such as sensory issues. So we fully support this initiative! #waaw #cdh

[Rachael Caswell @rachaelcaz]

Thank you @CDHUK_CHARITY for this beautiful bundle of goodies delivered to my daughter today. It put a smile on her face as she prepares for the unknown 💜

[Edwina Wrenn O'Connell @MsEdwina]

On #WSPD2019 this is my story, how I overcame horrendous bullying for looking different, my mental health and being told to kill myself on two separate occasions by my former fellow students. #limerick #MentalHealthAwareness #CyberBullying #omphalocele
https://t.co/ytlackRFrj

[IDEA @IDEA_ALLIANCE]

Are you a #cdh #gastroschisis #omphalocele #exomphalos group or larger organisation wanting to collaborate with other likeminded groups/organisations and looking for a platform to share your vision & work? Then please contact us by sending a message #together #research #support

[IDEA @IDEA_ALLIANCE]

Today is World Birth Defects Day. Help to spread #Awareness of #BirthDefects by joining in the ‘I care’ campaign https://t.co/FkQtHplPdZ #cdh #gastroschisis #omphalocele #exomphalos #manybirthdefects1voice #wbdd #WorldBDday

[IDEA @IDEA_ALLIANCE]

One of our members @CDHUK_CHARITY has released a new podcast episode chatting with Faye & Callum about their challenges with #cdh and #NF1

[CDH UK @CDHUK_CHARITY]

I published new episode:Rare Disease Day 2021 interview, please check it out. https://t.co/YOkH78sVhg #cdh #awareness #RareDiseaseDay2021 @rarediseaseuk @eurordis @RareConnect @rarediseaseday

[CDH UK @CDHUK_CHARITY]

Congratulations Callum on being awarded a coveted Blue Peter Badge! Some of you will recognise Callum and his Sister from our CDH news broadcasts 🥰 @BBCOne @Linds_bluepeter
@cbbc #cdhuk #cdhero
#CDH #bluepeter #congratulations

[PSTRN @pstrnuk]

DEFECT study is starting in 1 week! Time to get excited! Email: [email protected]

[IDEA @IDEA_ALLIANCE]

@sbattrawden So very sorry. Love and thoughts to her family and all who knew her

[Naomi Wright @PaedsSurgeon]

#gastroschisis mortality is >75% in many #LMICs compared to <2% in #HICs - effective surgical systems are required to save these #neonates & 100,000s of others who die from #birthdefects #SurgicalSystemBestBuy #UNGA75 #globalsurgery ⁦@theG4Alliance⁩ https://t.co/O1ThezNKOQ