IBDoc and me

Follow the journey of man versus Crohn’s with the power of IBDoc

[Sahara Fleetwood-Beresford 🌱 Patient Advocate 🩺 @Sahara88uk]

Final #CrohnsAndColitisAwarenessWeek back to basics!

Life changes due to #Crohns & #Colitis with @IBDSuperHeroes

#IBDSuperHeroes #CrohnsDisease #UlcerativeColitis #IBD #IBDAwarenessWeek #CCAwarenessWeek #IBDawareness #IBDVisible #IBDWarrior #ItTakesGuts #IBDlife

[IBDrelief @ibdrelief]

What causes #IBD? The answer is we don't really know. This article explores some factors thought to be involved...

https://t.co/OyXtjzdWcM

[#GetYourBellyOut @GetYourBellyOut]

How many times did you make an appointment to discuss your symptoms before finally being referred on for additional tests and ultimately a diagnosis of #Crohns #Colitis #IBD?? Too many, right?

[IBDoc and me @IbdocMe]

Anybody else struggling to get a reply from their #IBD team?

10 days later after a flare and #calprotectin result in the thousands, I have had zero response.

Been down all the usual channels, consultants secretary, writing letters.

Suggestions?

#torycuts
#crohnsdisease

[IBDoc and me @IbdocMe]

@thepursuinglife Kicking the inner critic is rather difficult I’m finding.

[IBDoc and me @IbdocMe]

@chr0nicallycute Wow, incredible! What a community! How did the surgery go?

[Charlie Lees @charlie_lees]

These thoughts are further expanded in my recent talk on the IBD Exposome

You can watch it here https://t.co/dV6pI6A11Z

[Ru 🌸♿️ (she/they) 🎀 @RollWithRu]

hey friends it’s been a while🌸

i have unfortunately had to pursue surgery privately due to wait times and lack of communication from the nhs

as you can imagine this is a steep cost, so if anyone has anything at all to spare please consider donating:

https://t.co/cI1wwj1Iuk

[IBDoc and me @IbdocMe]

@Crohnoid The older I get the longer the recovery takes from a #colonoscopy, a week to recover physically BMs take three weeks to get back to normal.

[IBDoc and me @IbdocMe]

@DoctorMayJay This doesn’t look good for people with a chronic illness like myself. Im worried.

[Frances Ryan @DrFrancesRyan]

If you’re chronically ill and heading to university, get yourself a copy of @lifeofpippa_’s book. This survival guide is perfect reading for anyone trying to balance health, lectures, and the pub.

Buy here: https://t.co/ETKOS61wTY

[IBDoc and me @IbdocMe]

@kathfantastic Three in one night! Were your exes on a night out together😜

[IBDoc and me @IbdocMe]

@bottomlineibd Hope you get sorted soon.

[IBDoc and me @IbdocMe]

@kathfantastic I’m on 8 weeks, don’t think it’s working, been on it 9months. 😞

[Propel a Cure for Crohn’s Disease @propelacure]

@propelacure is launching a major fundraising project! We need volunteers to join us on our mission to CURE CROHN'S DISEASE. Contact us to learn more! #crohns #crohnsdisease

https://t.co/znqkmhCxRS

[IBDoc and me @IbdocMe]

@kathfantastic Do you do 8 weeks per Stelara injections?

[Charlie Lees @charlie_lees]

6 weeks until the hotly anticipated @BritSocGastro IBD Investigators Day

3rd October in Edinburgh's @eicc

Over 120 people registered already

There is a lot of exciting and important IBD research happening across the UK

Link to register below