@EuroSPE important that there is joined up effort globally across all rare conditions not just endocrine rare diseases. I know Congenital Hyperinsulinism International CHI is keen!
https://t.co/hIov6gbERA
How often do children/patients have hypoglycaemia due to Hyperinsulinism? A large UK Continuous Glucose monitoring (CGM) dataset that will help us understand more. One for patients and families living with Hyperinsulinism and for Pharma/Regulators..
@EuroSPE#obesityESPE It would be good to discuss weight gain in schools so that children and parents are aware. It would be important to take away the stigma with weight gain but recognise this as a health problem. We need to stop blame but work with teens and their parents
@EuroSPE#obesityESPE Even at referral, doctors and General paediatricians donβt have the resources to tackle weight gain in the early stages. By the time a referral is made to an endocrinologist, a number of complications have already happened.