Ingrid Schneider

[Ingrid Schneider @Ini3007]

@CortDoesScience Do you mean CSF-Leaks : SIH or cPDPH ?

[Ingrid Schneider @Ini3007]

@CortDoesScience So true

[Ingrid Schneider @Ini3007]

@heyalexmoore YT

[Ingrid Schneider @Ini3007]

@sziabellaciao @Fee_Linke @ap_schulz Ach echt ?

[Andrew L Callen MD @AndrewCallenMD]

One feature I wanted was the ability to generate a simple summary patients can bring to appointments or upload to their chart.

The app can export a report showing symptom trends, treatments, medications, and flat test results in one place.

[Andrew L Callen MD @AndrewCallenMD]

One thing I’ve learned from caring for patients with #spinalCSFleaks is that many already track their symptoms, upright time, treatments, and medications in notebooks or spreadsheets.

After seeing this repeatedly (and learning a lot from patients who have been doing this thoughtfully for years), I have built a simple app to help organize that information and generate a clear recovery timeline that can be shared with their doctors.

My hope is that making this information easier to track and export may help facilitate better care, and eventually research.

Hoping to release #Upright soon and will keep the community posted.

[Andrew L Callen MD @AndrewCallenMD]

"When people are suffering, they need more than good medicine. They need people who can make sense of what is happening to them." - Atul Gawande

Join us for this event where patient voices and medical expertise unite to reshape our understanding of #CSFLeaks from the inside out.

[Spinal CSF Leak Foundation @spinalCSFleak]

Announcing our 2nd annual Bridging the Gap conference! This year’s theme is “Past, Present, and Future.” This TWO-DAY in-person & virtual conference will take place November 2-3, 2024, and will be free for patients. We'll be sure to let you know when registration opens!

[Peter Kranz @PeterGKranz]

@AndrewCallenMD @DrIanCarroll Great work @AndrewCallenMD @DrIanCarroll ! Data on outcomes on patients with orthostatic headache with negative imaging is a critical need - so glad it’s being addressed. This is one of our largest knowledge gaps - we need more attention to this population in particular.

[Ingrid Schneider @Ini3007]

@spinalCSFleak At Zoom we have no Connection , it is loading and loading ….

[Ingrid Schneider @Ini3007]

@spinalCSFleak The Conference is not available online at Zoom, the Connection is loading and loading ….🙁

[Spinal CSF Leak Foundation @spinalCSFleak]

Spinal CSF leak patients: Make your voice heard at our “Bridging the Gap” conference coming up this November 11. Visit https://t.co/myJEl8qAd9 for more information! #becauseyourduramaters

[Ingrid Schneider @Ini3007]

@CheersTo____ Which Materials do not up the Same ? They Said sth. About it?