Specialist clinicians, nurses & supporting professionals who treat people with sarcoma on the island of Ireland. Founded 2014. Retweets not endorsements
I was disappointed to learn this morning that the combination of pembrolizumab and lenvatinib for patients with advanced endometrial cancer (https://t.co/JZ2ZPDTx0C) has been turned down for reimbursement by the HSE.
Until now, there has been an expanded access programme, and I do have a number of patients with a sustained response to treatment.
As of right now, I understand that for those patients still benefitting from the treatment, the pharmaceutical companies will continue to supply the drug free of charge to the HSE.
Needless to say, I did not learn this from the HSE. The HSE have put in place a tracker for drug reimbursement: https://t.co/arfEBAJju5
Maybe it is me, but I can find nothing about this decision on the tracker.
When a major decision like this is made, the least that should be done is that the decision is published, oncologist should be notified, so that patient expectations can be managed in the clinic.
In the graph below (from the NEJM publication cited above), going forward, in Ireland, for advanced endometrial cancer, second line, the blue line is private healthcare insurance, the red line is public healthcare.
Sad to see.
➡️ 2024 was an amazing yr for recruitment to clinical trials across all RT departments in 🇮🇪
➡️ 2️⃣5️⃣9️⃣ patients recruited!!!
➡️SLRON passed NCCP target of 6% of pts on trials!
➡️IRROGs aim is to one day exceed that target nationally as our RT trial portfolio continues to grow 📈
I attended the “7th @IrishSarcoma Group Meeting” today.
Thanks to everyone for detailed discussions on comprehensive multimodal & multidisciplinary care models across Ireland & UK for sarcoma cancer patients. 🇮🇪🇬🇧👏🏼
Shout-out to @charles_gillham for his closing remarks. 🫳🏼🎤🔚
Aisha Miah eloquently presenting the rationale for altered radiotherapy fractional schedules in soft tissue sarcoma..
For now hypofractionated pre-op RT should not be standard of care but trials in planning @ctosociety @aisha_miah @TheBSG_UK
Progress in Irish sarcoma services since its inception in 2014 is heartening and today Risteard O’Laoirde, Director NCCP opens our 7th scientific meeting. Promises to be a great day of learning and networking @charles_gillham @hseNCCP
7th Irish Sarcoma Group meeting will take place in The Talbot Hotel, Fri October 18th with this stellar line up of international (and many well known national) speakers. Please share widely. Hope to see you there! @hseNCCP @IrishCancerSoc @IANOCancerNurse
🌻 Irish Sarcoma Group Patient Information Day in conjunction with Sarcoma Cancer Ireland🌻
Join us for a day filled with valuable information, support, and connection for sarcoma patients and their families.
7th Irish Sarcoma Group meeting will take place in The Talbot Hotel, Fri October 18th with this stellar line up of international (and many well known national) speakers. Please share widely. Hope to see you there! @hseNCCP @IrishCancerSoc @IANOCancerNurse
"He was the most resilient person, an inspiration”
Megan Coleman, wife of the late Kevin Coleman & Radiation Oncologist Dr Charles Gillham on raising awareness about sarcomas and taking on the 4 Peaks Challenge in Kevin’s memory
#IrelandAM | @charles_gillham