September is pulmonary fibrosis awareness month. As the month kicks off I can’t help but take time to think about the many patients and their family members I have had the privilege to work with over the last 8 years working in this specialty. #pfmonth
Good news - you can help too! The #SOARact aims to improve access to supplemental O2 and care for those living with it. Please call congressional leaders and ask them to support the #SOARact
You can reach them via the capitol switchboard at 202-224-3121
It is one of my favorite days - PFF Hill day. Today I get the honor of advocating for my patients by meeting with our congressional offices and asking them to support pulmonary fibrosis research and supplemental oxygen reform. #pffhillday#pulmonaryfibrosis#advocate#soaract
If you work with patients who have advanced lung disease take some time to listen to the new episode of the @ats Breathe Easy Podcast with guest @CAJonesMD. He shares some great info and approaches to palliative care and hospice for patients https://t.co/Udby3VPJSP
This Philly girl is one hundred percent a Philadelphia Eagles fan (the rest of our ILD & Sarcoid team can attest to this)…but it is pretty awesome to see that Houston Texan Tavierre Thomas will be wearing @StopSarcoidosis cleats for @nfl#MyCauseMyCleats
Thrilled to present the next Penn Pulmonary and Critical Care fellowship class! They are already exceptional and are on their way to being true leaders in our field! @PennPulmonary
@ahajaricase @muralir0 @davidweillmd@PFFORG@ahajaricase dang we should have connected at some point! Would have been great to meet for real and not just n zoom/twitter…maybe in Chicago 2025!
Dr. Katzen is sharing his research with patients this morning. What a great opportunity for patients to hear about the hard work that is going into discovering more information about pulmonary fibrosis which may lead to new ways to treat the disease #pennild#pffsummit2023#pff
The Nurse and Allied Health session yesterday was one of the highlights of the @PFFORG summit for me. When we come together and share our knowledge and experiences our patients benefit so much. #pffsummit2023#ild#pff
Lori Flint shares with us how to address the challenges of care in ILD. She so eloquently reminded us caring for these patients is complex but as a team we can work to improve the care and experience of our patients #pffsummit#pff#ild
Imagine an oxygen company telling you they can not give you oxygen supplies so you can leave your home…this happens to my patients. Please ask your congressional leaders to pass supplemental oxygen reform. Visit this link to send a message to Congress. https://t.co/IqYaAIN2dc
Do you see patients with cough or shortness of breath? Please take a moment and check out this video - you may come across a patient with #ILD …@ThreeLakes_TLF and @accpchest want you to have the tools to recognize this rare diagnosis https://t.co/jkJWwLsVmU
Happy #RareDiseaseDay
This video promotes an educational toolkit for PCPs that hopes to close the gaps to diagnosis in #ILD like pulmonary fibrosis. Please help me share it to raise awareness for these complex lung diseases: https://t.co/WlEVlSyBUl