❤️🙏 ANOTHER MRI. ANOTHER ANSWERED PRAYER!
NO EVIDENCE OF DISEASE!!! 🎉❤️
Today, Braelyn had another brain MRI, and I am absolutely OVERJOYED to share that it once again showed NO EVIDENCE OF DISEASE!
NO CHANGE from her August MRI!
And just FOUR DAYS AGO, on Friday, November 6, Braelyn received her 5th DCVax-L treatment in London! 🇬🇧
I cannot begin to describe the emotions.
After more than three years of fighting this devastating brain cancer, three major brain tumor surgeries, radiation, countless treatments, and more fear than I ever imagined a mother could endure, we are now celebrating another MRI showing NO EVIDENCE OF DISEASE!
I wish I could tell you that the scanxiety gets easier. But it doesn’t. At least not for me.
Every MRI brings back the memories of devastating scans, heartbreaking news, and the terrifying uncertainty of what might come next.
I still find myself holding my breath, praying desperately for those words.
And today, we heard them again.
NO EVIDENCE OF DISEASE. ❤️🙏
My heart is overflowing with gratitude.
To every single person who has prayed for Braelyn, supported our family, donated to help make her treatments possible, shared her story, or simply sent us words of encouragement—THANK YOU!
You have helped carry us through the darkest days of our lives, and you are now helping us celebrate some of the brightest.
And to Northwest Biotherapeutics ($NWBO), the brilliant Dr. Linda Liau at UCLA, and the extraordinary Professor Keyoumars Ashkan at King’s College Hospital—there are simply no words adequate to express our gratitude.
Thank you for your dedication, your compassion, and your determination to bring new hope to patients facing this devastating disease.
Braelyn is 19 years old. She’s attending college. She’s dreaming about her future.
And today, once again, her MRI shows NO EVIDENCE OF DISEASE!
GOD IS GOOD! ❤️🙏
#DCVax #BrainCancer #BraelynsFight #NoEvidenceOfDisease
#DCvaxForBraelyn
❤️ IT’S OFFICIAL! WE’RE MEETING PRESIDENT TRUMP TOMORROW! 🇺🇸
Braelyn and I have been invited to attend tomorrow’s rally for Darline Graham in Clemson! We’ll be seated in the VIP section AND have the opportunity to meet President Trump in the “click line”!
Ben is cutting his work trip short, and we’re hoping he’ll make it home in time to join us!
We’ll have only seconds with the President, but I intend to make every one of them count. I’ll also be bringing information for him and his staff about Braelyn, DCVax-L, and the barriers American patients face trying to access promising treatments developed right here in the United States.
This is an extraordinary opportunity, but we’re hoping it can become something even bigger.
PLEASE HELP US GET THE ATTENTION OF THE WHITE HOUSE PRESS TEAM! 🙏
We would love the opportunity for a longer conversation with President Trump or his administration about how we can make these treatments accessible to American patients.
Please SHARE, REPOST, and TAG anyone who might help get Braelyn’s story in front of the right people!
Three years ago, Braelyn was given just months to live. Today she’s 19, attending college, and her latest MRI shows NO EVIDENCE OF DISEASE RECURRENCE!
Her story deserves to be heard. And so do the stories of countless other patients fighting for access to promising treatments.
@realDonaldTrump@DrOzCMS@WhiteHouse
#DCVaxForBraelyn #DCVax #PresidentTrump
Northwest Biotherapeutics. $NWBO
Curing cancer by activating our own immune systems outside of the body and training them to recognise the cancer, and then re-injecting cancer killing cells.
This is working on glioblastoma - one of the very hardest to treat cancers. The technique works on all solid tumours.
My one position I could see being a 100x to 1,000x.
MHRA approval in the UK is apparently imminent - then I expect that all hell breaks loose on the share price!
I have been waiting almost 3 years to write these words:
NO EVIDENCE OF DISEASE. 🙏❤️
Today we met with Braelyn’s neurosurgeon, Dr. Linda Liau at UCLA (telehealth).
When our local radiologist read Braelyn’s August 28 MRI as “no evidence of disease recurrence,” we were thrilled—but I was afraid to fully exhale.
I knew Dr. Liau and the UCLA tumor board would scrutinize every millimeter of those images.
What if they saw something the local radiologist missed?
Today, Dr. Liau told us that she and the tumor board had thoroughly reviewed Braelyn’s MRI.
They were amazed.
There is NO VISIBLE TUMOR.
Even the ~10% Dr. Liau had to leave behind during surgery because of its intimate involvement with critical structures is no longer visible.
She emphasized how amazed and pleased the entire tumor board was by such a complete response at this point.
Her assessment: the prior radiation and the ongoing DCVax appear to be working very well.
Their recommendation after also reviewing the Keytruda regimen Braelyn recently started?
KEEP DOING WHAT SHE’S DOING.
😭🙏
First and foremost, we give ALL thanks and glory to God.
People all over the world have prayed for this girl. I cannot begin to express how humbled and grateful we are.
But tonight I also cannot stop thinking about how close Braelyn came to never having this opportunity.
Earlier this year, her tumor was enormous and growing rapidly.
We sought help from multiple surgeons—including at prestigious institutions.
We were told further surgery was too risky.
We were offered the same old options: chemotherapy and photon radiation that would affect most of her brain, given the size of her tumor.
Her tumor is MGMT-unmethylated, so for Braelyn, chemo was all risk with little to no benefit.
And then a stranger I met here on X changed everything. @ThomasOwenMcCa1 connected us with Dr. Liau.
After reviewing Braelyn’s case, one of the first things she said was:
“This girl needs surgery right away.”
I told her we knew that. We just couldn’t find anyone willing to do it.
I asked if SHE would.
“If you can get her to me, I will do her surgery.”
We got Braelyn to UCLA.
Within two weeks, Dr. Liau operated and removed ~90% of a massive tumor spanning three lobes, stopping where continuing would risk critical structures.
And this time, her tumor tissue was PROPERLY PRESERVED.
That tissue was ultimately sent to England and used to manufacture Braelyn’s personalized DCVax vaccine.
She has now received 3 induction doses + her first booster.
And today?
The tumor that Dr. Liau had to leave behind is no longer visible on MRI.
Think about that.
And then think about what could have happened if we had simply accepted “there’s nothing else we can do.”
THIS is why I will not stop advocating for reform.
Patients should not have to find potentially life-saving treatment options accidentally through strangers on social media.
Patients should be told about legitimate investigational options when standard treatment offers little hope.
Patients undergoing tumor surgery should be informed BEFORE surgery about preservation of tissue that could potentially be used for personalized treatments.
And patients should have the right to make informed decisions about which risks they are willing to take.
Promising science means very little if the patients who need it cannot access it.
Braelyn is living proof of why access matters.
Tonight, though, advocacy can wait for just a moment.
Tonight I’m her mom.
And I finally get to say the words I have begged God to someday let me say:
NO EVIDENCE OF DISEASE.
Thank You, God.
Thank you, Dr. Liau.
Thank you to everyone who opened a door, donated, shared her story, fought for her and prayed for our girl.
There is always light, even in the darkest places.
Tonight that light is shining incredibly bright. ❤️🙏
#DCVaxForBraelyn #CureNotCovered
@greta@kshaughnessy2@andrewcaravello
The interview that triggered Donald Trump, so much that he lashed out on TruthSocial against Malcolm Turnbull after the former Aus PM dismantled him just earlier on Bloomberg🔥
If Trump is bothered by this, I’m sure he would very much appreciate that you don’t share it around.
I have written an open letter to Sean Doyle, CEO of British Airways about the recent changes to the Executive Club. If you agree with me, please retweet! @British_Airways@SimonCalder@lisaminot https://t.co/gR0m6heTTS
“Some regard private enterprise as if it were a predatory tiger to be shot.
Others look upon it as a cow that they can milk.
Only a handful see it for what it really is- the strong horse that pulls the whole cart.”
Winston Churchill
Free speech matters.
The Spectator, when threatened by an NHS supplier to 'cancel' me from an event on cancer for a hefty fee, said no.
That deserves credit - thank you @afneil, @FraserNelson and team.
Let's keep fighting for open debate in 2024.
https://t.co/bA1cdLmIFh
Quite frankly, I don't care about which expletives certain Government advisers decided to use on certain days.
I care about the millions of children who had large parts of their childhood stripped away from them.
Or the young parents too frightened or unable to get a tumour checked.
Or the thousands forced to die alone.
Or the victims of domestic abuse, locked away with their abuser.
Or the small business owners, forced into bankruptcy.
Or the vast numbers of people suffering, and often dying, in pain at home without sufficient medical help
Or the tens of millions who had their lives cruelly put on hold, entirely unnecessarily.
I could go on and on and on.
This inquiry is asking all the wrong questions, and is failing the countless people failed by lockdowns.
An extremely concerning development.
I have been booked to speak at the Spectator's 'How to fix Britain’s cancer crisis' debate at the Conservative Party Conference for some time.
I was recently informed by the organisers that the sponsor of the event, an NHS supplier, threatened to pull their substantial sponsorship fee unless I was removed from the panel.
With full credit to the Spectator, they refused this blatant attempt at censorship at great financial cost.
I don't pretend, or want, to be the most popular person at NHS HQ. But if, as I suspect, they were involved in the attempted cancellation then that is worrying.
I spent over 40 years in the NHS, a period as the WHO cancer chief and have been involved in the development of cancer infrastructure in almost every country in the world.
They may not like my views, but I think that they're based in enough experience to be worth hearing.
In fact, I've been very careful not to be too forthright on how I feel about how healthcare is delivered in the UK.
That certainly won't be the case from now on.
I also heavily suspect that NHS disdain for my critical opinions has contributed to their refusal to help reopen the Rutherford cancer centre network - capable of helping 20,000 patients a year.
It is all extremely murky.
I am looking forward to speaking at the event tomorrow and outlining how I believe we can fix Britain's cancer crisis.
High on the agenda is eradicating the blasphemy culture surrounding the NHS. It is not a world-beating health service and the longer we lie to ourselves that it is, the more patients will suffer.
England rugby can’t afford its own team – but the RFU certainly knows how to pay its boss
@TimesSport@owenslot on the curious case of Bill Sweeney’s big bill.
https://t.co/xSckZ1DYl6
@AirCanada Sitting in Calgary waiting for the delayed AC146 to Toronto. Seeing as I had to pay for my seat last year it’s a shame you haven’t managed to organise a pilot for the flight in the intervening 4 months!
@matthwilliams@NWBIO@braintumourrsch@BrainTumourOrg Dude, in your comment trashing DCVax-L’s successful GBM trial, you didn’t disclose to JAMA nor the audience your affiliation with Optune, a competing product. Shameful, glaring conflict of interest. $NWBO
$panr #panr $pthrf @EnergyHobbs
To everyone following this spectacle. Telemachus/David Hobbs is an O&G veteran and globally acknowledged expert in the sector. Thankfully you don't have to believe me. He's co-authored Reports and various sector Papers with Daniel Yergin. 1/
@JamieNimmo63 $panr $pthrf #panr@ST_Business
Seems Jamie hasn't seen fit to correct the record or provide a cogent explanation for his continuing use of the disgraced Fraser Perring as an ethical OTR source. Disappointing journalism from a paper of record.
@Rational_Rascal@RogerHyman1 Been sailing and just hit land, figuratively rather than literally.
Not had time to catch up on all the fun this week but sloppy work by the Josh Bros. Not sold a single share (partly because only have VHF radio coms when offshore) because $PANR a class act with great assets.