It's #Red4Research today, where we celebrate all the people who make research happen - participants, researchers, clinicians... too many to name here! We're grateful to you all! #whywedoresearch
Wilma Robins who has been involved with @MPSSocietyUK since it started is our new Vice Chair. We’re so grateful for the work she does. Find out more about Wilma and our other Trustees here: https://t.co/qrURR093DH
Research into miscarriage prevention showed that progesterone could help where women were experiencing bleeding and had a history of pregnancy loss. The treatment, adopted by NICE, could prevent 8,000+ miscarriages each year! https://t.co/aZAlf6BL5l
#BePartOfResearch#NHS75
A lovely article on our R&D Team & upcoming International Clinical Trials Day. Celebrate with us on Friday 19th or consider joining Pathway to Research. Details 👇 Please like/share/RT!
https://t.co/gzhQuQ30Q3
#ICTD2023#whywedoresearch @WHHNHS w special thanks to Comms team!
Please fill in the online survey https://t.co/KRGHVl4wX3 to help improve our understanding of life with MPS IVA Morquino. This research is being done to understand barriers to retention of care in MPS patients. It will inform the direction & approach for future patient support.
Mucopolysaccharidosis IVA (MPS IVA), or Morquio A syndrome, is an ultra-rare, multi-systemic disorder. A Managed Access Agreement (MAA) was set up to monitor outcomes in England for people as part of a pathway to reimbursement. Read the manuscript here https://t.co/RpYtYRgHjD
Just finished 40 hours of clinical shifts in 3 days to help cover junior colleagues who I completely support in their strike action.
Understand the disruption this has caused but is completely necessary.#strike#JuniorDoctorsStrike#fairpay
All babies may benefit from protection from RSV infection (respiratory syncytial virus). Newborn to 12 months old babies may be eligible to participate in a research study. Halton one step closer to taking part! Visit https://t.co/IHVOuXqRwL for more info on the study & sign up.
Congratulations the Dr Paul and team at Kiltearn Medical Centre on recruiting the 1st patient in @NIHRCRN_nwcoast to The Harmonie Study. Massive achievement. #endRSV#RSVHarmoniestudy 👏👏👏👏
MPS member Louis Garthwaite has been on enzyme replacement therapy for MPS II Hunter since he was 8, but he hasn't let his condition define him. Read his inspiring account of how he navigates college, sports and travelling the globe on pg. 16, here: https://t.co/lJZvyXpvKt.
Member Gracie Mellalieu recently appeared on the BBC Lifeline Appeal to raise awareness of The Sick Children’s Trust, that provided a ‘Home from Home’ for her parents while Gracie was receiving surgery in London due to complications of MPS IVA. More here: https://t.co/7nVgoeLP6F