Jessica Martin

Doctoral Student @mrccbu | @OxExpPsy Graduate

[Jessica Martin @JessmartinP]

I am super grateful to have had the opportunity to work with the amazing families that are part of the @coinstudykcl community on this project and my fabulous co-authors @KatieRobertsonE @KBGenesBrains @RichardsLabUoB @GaiaScerif and @CharlotteRTye!! (3/3)

[Jessica Martin @JessmartinP]

I published my first, first author paper on PsyArXiv! In the paper, we explored the experiences of parents of children with rare neurogenetic conditions across the first year of the COVID-19 pandemic in the UK. (1/3)
https://t.co/LJSjfsarOw

[Jessica Martin @JessmartinP]

Importantly, parents highlighted that challenges experienced by their families prior to the pandemic were exacerbated. We concluded that the pandemic might serve as a context in which these difficulties are recognised & addressed in post-pandemic & future emergency contexts (2/3)

[Jessica Martin @JessmartinP]

@Stansted_Exp are trains still running between London Liverpool Street and Stansted airport?

[BEE_Study @BEEStudy_]

We want to remind you that the BEE-PP project is still recruiting! Take the survey here, and feel like you’re really making a difference in research into early epilepsy🐝https://t.co/3tGy8yPe5x

[Jessica Martin @JessmartinP]

@FassiLuisa This is such a mood!!!

[Jessica Martin @JessmartinP]

@SarahCharlesNC has written a great thread on our new #preprint! It was a privilege to work with a fantastic team headed by @CharlotteRTye and all of the families in the @coinstudykcl community to understand the impact of #COVID19 on families of children with #RareDisease.

[Sarah Charles PhD @SarahCharlesNC]

#PrePrint Alert: My colleagues and I at @Kingspsychol, as well as researchers from Oxford, Cambridge, and Birmingham, conducted a study assessing the #mentalhealth and behaviour of at-risk families during the first COVID lockdowns in the UK in 2020 https://t.co/eMc9TbPV6q 1/8

[Charlotte Tye @CharlotteRTye]

🚨Postdoc alert🚨
Interested in the overlap between epilepsy & autism? Join the @BEEStudy_ tracking brain development of infants with epilepsy to identify predictors of behavioural outcomes. Deadline Nov 10th.
Pls RT & get in touch with any questions!
https://t.co/T6AVFGjBbD

[CoIN Study @coinstudykcl]

As part of the #CoINStudy, we asked parents what was causing them the most stress during the Covid-19 pandemic. We found that CoIN parents are most concerned about their child's education, future, and wellbeing. To find out more, check out our blog post⬇️

https://t.co/5fui2S1OWJ

[BEE_Study @BEEStudy_]

❗️Calling parents of children aged up to 11 years old and diagnosed with epilepsy by 12 months old! We are inviting you to take part in the BEE-PP survey which is focused on priorities in #epilepsy research. Funded by @KingsCollegeLon and @wellcometrust:
https://t.co/F9dmvm7E1g

[Jessica Martin @JessmartinP]

@camraredisease Thank you, @camraredisease! I look forward attending more events in the future!

[Jessica Martin @JessmartinP]

Starting my PhD in #RareDisease this week perfectly coincided with @camraredisease’s #RAREsummit21. I particularly enjoyed reading the many patient voiced publications, which are a great place to start for research and industry to make a meaningful contribution!! 🧬

[Jessica Martin @JessmartinP]

And a great virtual lobby too 🤩

[Jessica Martin @JessmartinP]

A great opportunity for caregivers of children with early-onset #Epilepsy to share their information needs and priorities for research with a great team doing fantastic research!

[BEE_Study @BEEStudy_]

📣Keep an eye out for our @KingsCollegeLon and @wellcometrust funded patient and public involvement project: Brain development in Early Epilepsy Parent Priorities (BEE-PP) Project opening this week! Read more here: https://t.co/ZdDVbvWN27 #epilepsy #PPI

[Jessica Martin @JessmartinP]

Spontaneous lost village anyone!…

[CoIN Study @coinstudykcl]

Last month @coinstudykcl attended the International @TSC Research Conference #ITSCRC2021 hosted by @UKTSA. On our blog📖read about @JessmartinP's experience, including what it was like presenting to an international audience and receiving an #ECR award! 🎉
https://t.co/5fui2S1OWJ

[CoIN Study @coinstudykcl]

55% of families reported there were significant positive changes for their family and community during the UK's first lockdown! To mark #positivemediaday we explored these positive changes. To see the full infographic, visit our blog: https://t.co/5fui2RKdy9

[Jessica Martin @JessmartinP]

See our website (https://t.co/ZqZjX8PhJ0) for more preliminary findings, as well as written and video blogs from our research team! (2/2)

[Jessica Martin @JessmartinP]

Delighted to be given the experience to share the @coinstudykcl with delegates at the #ITSCRC2021. Stay tuned for findings later this year as we explore the impact of #COVID19 on families wellbeing during the first lockdown and overtime (1/2)

[Tuberous Sclerosis Association @UKTSA]

The last 18 months have been difficult for everyone, with the TSC community especially finding it hard. Now, at #ITSCRC2021 we’re pleased to welcome Jessica Martin to discuss how the wellbeing of families with children who live with TSC has been impacted as a result of covid-19

[Charlotte Tye @CharlotteRTye]

Great work investigating sleep in TSC by @BissellStacey and colleagues @RichardsLabUoB at #ITSCRC2021 ! Looking forward to collaborating on @EDiTS_Study soon. Check out @KatieRobertsonE poster about sleep in infants w/TSC (#57)