Good luck to just under 200 runners taking on the London Marathon today for Meningitis Research Foundation.๐โโ๏ธ๐
Your miles are making a life-saving difference. Weโre cheering you on every step of the way. ๐
#LondonMarathon#MeningitisAwareness
<1% of meningitis research funding targets lifelong impacts, yet 1 in 5 survivors face disabilities.
โจThatโs why weโre offering grants of up to ยฃ50k for research in the UK, Ireland & LMICs.
Apply now ๐https://t.co/LoCb7iRGLF
#Meningitis#MeningitisResearch#ECRChat
Today on World Meningitis Day, we remember all those we've lost and the lives that have been forever changed by this devastating disease. By lighting the road ahead, we also see our path towards a world free from meningitis #WorldMeningitisDay
๐ฏ๏ธ Wherever you are in the world, join the millions of people who will illuminate something on the 5th October at 20:30 (8.30pm).
Share it online using #WorldMeningitisDay or #DefeatMeningitis
Learn more: https://t.co/RFAh9KfhfU
โ ๐ง Weโve taken over #ToxicAirPlaygrounds in London, Manchester, and Birmingham ๐งโ
99% of playgrounds in the UK have dangerous levels of air pollution. Children deserve to breathe clean air while they play ๐
Join us in the fight for clean air: https://t.co/oJwPx0y7on
We need the new government to push for a 'fit for purpose' NHS. I'd welcome greater public investment in early diagnosis for health conditions that put the biggest strains on the system and we need driven members to push forward changes like these #UKElection2024
A historic win for the Labour Party today. My best wishes to the new wave of MPs that'll be joining parliament at such a fractious time in UK politics, and at a time when the public they serve are truly divided and their faith in the political system was at an all time low.
It is vital that the Party now turns their excitement at this long awaited victory into determination and drive for change, addressing key issues in the economy, public services and the environment.
The Your life and CF survey is back and we want to hear from you!
Last year, 1000 of you told us about your experience of life with CF.
Because of you, we were able to continue to campaign for long-lasting and meaningful change.
โก๏ธ https://t.co/Iu0QyljdLI
"The challenge of living with #cysticfibrosis is invisible. Except to the ones who live it."
This is Kieron's story. Find out how you can share your own #CFTruths by visiting our website. ๐
โก๏ธ https://t.co/Kkbz7fMx0A
Had a fantastic day at the Marathon yesterday cheering on the #TeamCF runners. Loved this video and all of the emotion crossing the line for one of our runners
๐ ๐๐ค ๐ฉ๐๐ ๐พ๐ก๐๐จ๐จ ๐ค๐ '23
We, along with thousands of others, will never forget today. It was a privilege to share the streets of this incredible city with you all today.
Already counting the days 'til we get to do this all again โค๏ธ
#LondonMarathon#WeRunTogether
We want to wish all of our London Marathon runners the best of luck for today - you are all superstars โจ
Don't forget to tag us in your photos ๐ธ and use #TeamCF in your posts.
See you at the finish line!
It's #ThankYouThursday! Today we are absolutely over the moon to announce the support of the @TNLComFund for three years to support our Work Forwards employment programme - thank you to everyone who has made this possible! ๐
In response to PM @trussliz's speech at the #ConservativePartyConference today, David Ramsden, our Chief Executive, said: "It is disappointing that the Prime Minister did not take the opportunity today to offer some reassurance to people with cystic fibrosis..." (1/3)
My daugter was born with CF. She didn't choose her condition.
Her medication isn't optional. It keeps her alive. She shouldn't have to pay for these life saving drugs - CF prescriptions need to be made exempt! #reviewthelist@Jeremy_Hunt@CommonsHealth
People in England living with life-long conditions like cystic fibrosis shouldn't be paying prescription charges when their health outcomes are so dependant on their medication #ReviewTheList@Jeremy_Hunt@CommonsHealth
Sir David Amess MP had been a long and valued friend to the CF community, especially championing access to Orkambi and Kaftrio.
We were saddened to hear news of his death and offer our deepest condolences to his family for their loss at this difficult time.