"this shouldn't take very long" I say, a person with adhd, about to interview someone for a pa job.
45 min later, having discussed the social construction of disability verses age-related-impairment, and the use of septum piercings as queer flagging: "oh no"
#AdventuresInCare
Having further thoughts about the connection between "disabled bodies as labour sites", "disabled people's HOMES as labour sites", and the tendency of agency carers to assume that can walk right in without introducing themselves or waiting on permission.
#adventuresInCare
Having "disabled bodies as labour sites" thoughts but I can't quite put them in words
Like, it looks like a home/house to the people doing/directing the labour (care) so it's "home based", even if it's not the disabled person's home?
#AdventuresInCare
and every time I want to be like
"hay if someone came to your door and didn't introduce themselves or ask who you were, just said hi and stared at you for a bit and then pushed their way in and expected to see you naked, would that be fine?"
#AdventuresInCare
hay sociology and philosophy people
what is a term for "person + body + objects required for interactions with physical/social/sensory world + personal space + modes of communication and social presence"
like, it's not "body" because I want to include clothes/mobility aids/aac programs etc.
and it's not "personal space" because for e.g. a backed up aac configuration, or a mobility device even when it's in a different place from me, or "choice between speech and aac"
Don’t disclose, and you get overlooked for opportunities because you’re demanding or flawed for “no reason”. Disclose, and you get overlooked because they question your capability (ie “autistic ppl can’t lead teams bc of poor social skills”) —
It’s this balancing act between trying to convince them “I promise I’m not too disabled to work here and I can do the same work as anyone else!” and “I swear I’m actually disabled please give me this minor accommodation here’s my personal medical info and life story” —
A quick note about employment discrimination. They never SAY “you can’t work here because you’re disabled”, they just make the environment increasingly hostile and refuse to accommodate your needs as a disabled person. And you have to self advocate CONSTANTLY while being gaslit —
They won’t discriminate because you're disabled, that would be wrong 😑 they’ll discriminate because they built their competency framework around an able-bodied neurotypical ideal and you don’t fit it, therefore you’re not qualified 🫠 and that’s just “fair” 🫠🫠