John Trowsdale

now semi-retired, I'm rediscovering my love of painting. visit my gallery in the link below to view and maybe buy?

[John Trowsdale @JohnTrows]

@Crohnoid @bottomline_ibd I started with palpitations, which took almost a year of tests including a Rubidium heart scan before I got the all clear with no long term damage. 2 yrs on, the palpitations are few, and only mild think it was a valve letting some blood back the wrong way. But very uncomfortable

[John Trowsdale @JohnTrows]

@Crohnoid @bottomline_ibd No difference at all, certainly no high. But I only made my second infusion before it affected my heart.

[John Trowsdale @JohnTrows]

@Crohnoid @Chunkwithcrohns Thanks Nigel, I must remember ‘Citrafleet’ for next time. Moviprep is pretty disgusting after the first glass, I think drinking this is the worse part of the whole unpleasant process.

[John Trowsdale @JohnTrows]

@utritionista @nataliesparacio To me you’re in denial, it’s great you’re in remission and looking after yourself, but that is not cured unfortunately. And while we try to educate the public about C&C you are undoing all that good work.😏

[John Trowsdale @JohnTrows]

@Crohnoid Yeah I had to pay for my flu jab for years until I started Azathioprine 😏

[John Trowsdale @JohnTrows]

@Crohnoid Same here, I have found a new appreciation in life since my operation. Feel blessed just driving to work with all the healthy folks.

[John Trowsdale @JohnTrows]

Positive tweet, February I had a small bowel resection removing 19cm of bowel, after anti TNF therapy didn’t work. Late May I was on the summit of my 114 peak in the Lake District.
#positivity #ibd #CrohnsDisease #LakeDistrict

[John Trowsdale @JohnTrows]

@Chunkwithcrohns Good news, fingers crossed 🤞 you stay well👍

[John Trowsdale @JohnTrows]

@Chunkwithcrohns Not sure but maybe 6-MP mercaptopurine?

[John Trowsdale @JohnTrows]

@bottomline_ibd I also had heart palpitations on it, so was stopped 😏

[John Trowsdale @JohnTrows]

@IBD_PC Best wishes 😊👍

[Nigel H 🎸🎸🎸🎸🥁 @Crohnoid]

Later in the year the Costing Crohn's Study will be needing help from Crohn's patients in the UK. Please could you follow @CostingCrohns to keep up-to-date and RT. Thanks
#costingcrohns

[TheChronicAdventurer @ForEveryIBD]

Thankfully when taking medications I've not yet had this reaction but I know lots of others with Crohn's Disease and Ulcerative Colitis who have. I hope the medication is helping Dynamo. https://t.co/UybxXizCGo

[John Trowsdale @JohnTrows]

@CrohnsColitisFn Absolutely agree, had I not stayed under the health care systems radar for 25 years I might not have needed to lose 19cm of small bowel in February.....keep your disease in check.

[John Trowsdale @JohnTrows]

@IBD_PC Lol 😆 no dignity in hospital. Just remember, she maybe hot, but she poo’s as well 😜👍

[John Trowsdale @JohnTrows]

@CrohnsEffect The therapy his fella brings to our family is irreplaceable. He was so gentle with me after I’d had surgery. In his eyes, he had an injured pack member I guess.

[John Trowsdale @JohnTrows]

@IBD_PC Good luck and hope they get you sorted and under control one way or another 😊👍

[John Trowsdale @JohnTrows]

@tomasthestoma @Crohnoid I really don’t think there is a lot between them, in terms of unpleasantness. Maybe not as many folk have had an Endoscopy?

[John Trowsdale @JohnTrows]

@Crohnoid I did Nigel, and for three days I could smell my own bile through the tube!!!
Yes elephant man I can identify with, when the bag came off I was able to go walkabout in the ward, with this big plaster holding the tube in place I did feel like elephant man 😊