I don't have many photos of me from when I was at my sickness with #IBD - mostly because I shied away from them being taken as I felt so awful.
But here's one my mum found the other day. Putting on a brave face at my nan's house in Plymouth on her 90th birthday in 2001.
Just a few months later I was having a blood transfusion at St Thomas' Hospital as my haemoglobin had fallen to 5 or 6. I couldn't stand up and I was seeing stars...
It is difficult to be reminded of those traumatic times, but it is also a reminder that better days can, and.often do, lie ahead. Never lose hope!
It was great to reconnect w/ old friends &advocates in person! We learned a ton,shared thoughts about various topics, &had vulnerable discussions. Throughout the long wkd,we planned new ways to help serve the #IBD community.
I'll be sharing more 📸 &insights soon.
#crohns#UC
Hey y'all, I need some help!
My @facebook acct was hacked 2 wks ago. I reported it but my account is gone. Its like I no longer exists. I have no access to my Pages. I've tried reaching out to FB about it but Ive gotten nothing from them
Does anyone know someone that can help?
I'm sick of people attacking Biden for not being in Ohio but instead traveling to Ukraine & Poland to meet Zelensky and stand up to Putin.
- There are 7 Federal Agencies now operating in East Palestine
- Not a single life and NO property has been damaged or destroyed in East Palestine
- Yes, East Palestine should be taken seriously, but Biden's presence would not help anything, and likely would hurt by adding to the chaos
- Biden's presence in Ukraine and now Poland shows Putin and the World that we stand with democracy
- Biden's presence means the rest of NATO has the confidence to continue supporting Ukraine and democracy
- Biden's presence shows Putin and the world that we are not backing away
While Trump coddled Putin at the expense of democracy, Biden stands with Zelensky, NATO and democracy.
Biologics for management of #Crohns#guidelines by Italian Group for #IBD
🇮🇹 Recommendations:
🔆from induction to maintenance of clinical remission
🔆from optimization & de-escalation of treatments
🔆dealing with perianal #CD & post-operative
recurrence
https://t.co/D9dDUHF7FD
I always have a little bit of anxiety in the days before a major holiday because there's a small kernel of worry about needing care at a time when it might be difficult to obtain.
My #IBDMoms and dads and other parents and parents-to-be: please register for this event to learn from the OG, @UmaMahadevanIBD. This is a golden opportunity and I hope you can take advantage of it, and pass it along to others who are not on the Twitters! @PIANOIBD@IBDMoms
“My role as a registered dietitian is supportive of both treatment goals. I can’t provide medical nutrition therapy without the medicine component, & since diet isn’t ultimately the cause of #IBD, it works best as a complementary therapy, not as a cure.” https://t.co/j32zGHaHHK
Day 5 of #CCAwarenessWeek!
Today I share my once a week injection of vitamin #B12.
Crohn’s and B12 deficiency sometimes go hand in hand.
Have a discussion with your #IBD team and see if this is something your body needs.
#IBDvisible#IBDCantStopMe