Marisa Troy

Living w #IBD & an #ostomy. #Migraines. #ChronicPain. #PTSD. #Patient #Advocate. @ibd_hu
Showing others they aren't alone in their struggles! 🤗

[Madhura Balasubramaniam @rebelliousgut]

@MondayNightIBD @EliLillyandCo @thisimmunelife @nataliesparacio @aboutIBD @mustbthemusic @Crohnoid @IldikoMe @gutsyknots @JournalingIBD @ownyourcrohns @Sahara88uk #MondayNightIBD #IBDPoll2️⃣

Reflecting on Intestinal Ultrasound (IUS)

What is appealing about IUS over other monitoring tools? Would you prefer IUS - why/why not? 🤔

Please answer the poll & share your experiences in replies ⬇️

#PatientExperience #SouthAsianIBD

[Madhura Balasubramaniam @rebelliousgut]

@MondayNightIBD @EliLillyandCo @thisimmunelife @nataliesparacio @aboutIBD @mustbthemusic @Crohnoid @IldikoMe @gutsyknots @JournalingIBD @ownyourcrohns @Sahara88uk 📢#IBD patients & caregivers:

#MondayNightIBD #IBDPoll1️⃣

📊Thinking about your IBD experience, what mode of disease monitoring do you prefer to stay on top of your care? 🔽

In replies, please share your #PatientExperience, preferences/barriers to monitoring ✏️

#SouthAsianIBD

[#MondayNightIBD @MondayNightIBD]

🙏🏽Patients, advocates & caregivers for sharing their journey w us!

📡 Scanning #PatientExperience on disease monitoring & #IUS w @rebelliousgut leading the convo

🗳️2 #IBDPolls👇🏽

📣RT & share your💭 w us!
#StrongerTogether #MondayNightIBD

Supported by edu grant @EliLillyandCo

[Marisa Troy @JournalingIBD]

Monday I go in for my first #cataract surgery.
Some thoughts about surrendering control & how tough that can be when you've been burned so much.

#chronicillness #patient #doctor

https://t.co/UQE7zYNSRQ

[Tina Aswani-Omprakash, MPH @ownyourcrohns]

Honored to have spoken to DPT students at @Hunter_College @CUNY on #physicaltherapy in #painmanagement!

PT
👉🏽 critical in my #IBD surgery recovery
👉🏽 managed #pelvicfloordysfunction
👉🏽prevented prolonged use of pain meds

Important for med students to learn from patients 🙏🏽

[Marisa Troy @JournalingIBD]

@ownyourcrohns @Hunter_College @CUNY @DrTayAhmed @SolsticePhysio1 @DCharabaty @FITWITMD @SimonaFourie @drlauriekeefer @GutlessGlamour @ibddoctor @UOAA So proud of you! And proud to call you my friend!

[Marisa Troy @JournalingIBD]

@GutlessGlamour @aboutIBD @ownyourcrohns @CrzyCreoleMommy @thecrohniemommy I use vegan Orgain.

[Marisa Troy @JournalingIBD]

@Crohnoid @DCharabaty @DeviousDwyer @MondayNightIBD @mustbthemusic @ownyourcrohns @aboutIBD @bottomlineibd @CrzyCreoleMommy @snehadave98 @LoriPlung @Sahara88uk @F8Martine @marajshapiro @AEBuechi @nataliesparacio @AaronBlocker_ Not at all! I was 14& in a terrible place. Having another year of being a teenager without beginning the surgical rollercoaster was really great for me. It also allowed me to feel confident I exhausted all medicinal options before cutting. Great question tho!

[Marisa Troy @JournalingIBD]

@DCharabaty @DeviousDwyer @MondayNightIBD @mustbthemusic @ownyourcrohns @aboutIBD @bottomlineibd @Crohnoid @CrzyCreoleMommy @snehadave98 @LoriPlung @Sahara88uk @F8Martine @marajshapiro @AEBuechi @nataliesparacio @AaronBlocker_ They allowed me to get out of the hospital, go to school and postpone surgery for a yr. However, had huge physical side effects incl massive weight gain, acne and now have osteopenia and cataracts. Best and worst drug imo.

[Marisa Troy @JournalingIBD]

@GutlessGlamour LOVED seeing you Gaylyn!!! Been too long. 🤗

[Marisa Troy @JournalingIBD]

It was great to reconnect w/ old friends &advocates in person! We learned a ton,shared thoughts about various topics, &had vulnerable discussions. Throughout the long wkd,we planned new ways to help serve the #IBD community. 

I'll be sharing more 📸 &insights soon.

#crohns #UC

[Marisa Troy @JournalingIBD]

If you're in the DC area this weekend, please join us for a happy hour meet & greet with fellow #IBD community members.

#inflammatoryboweldisease #crohns #crohnsdisease #UC #ulcerativecolitis #ostomy #Jpouch #meetup

[Marisa Troy @JournalingIBD]

@Runsforcoffee1 I always wondered what they prefer. Taking or silence. I imagine some feel they "should" talk in order to give better customer service.

[Marisa Troy @JournalingIBD]

Random but it's so awesome to sit in silence while getting a haircut. No meaningless small talk. Just relaxing.

[Marisa Troy @JournalingIBD]

I never share things like this but this org is in desperate need of help.

#adoptdontshop #rescue

[Labs4rescue @Labs4rescue]

Please help us rescue and re-home 50 dogs from a breeder going out of business by donating and sharing. https://t.co/tD183enE2k

[Marisa Troy @JournalingIBD]

So proud of @ownyourcrohns !!!

💜💜💜💜

[Lori Plung @LoriPlung]

Please help me congratulate the kind, caring, smart, compassionate, and all around wonderful Tina of @ownyourcrohns.

Yesterday, Tina graduated with her MPH from @IcahnMountSinai and gave the commencement address!!

Tina, you are incredible! CONGRATULATIONS, my friend! 🥂

[Natalie Hayden @nataliesparacio]

This Pride Month on Lights, Camera, Crohn’s a look at the most common concerns & patient experiences, helpful guidance to support the LGBTQIA+ community, the added risk factors & screenings, tips for communicating with your care team, and much more.
https://t.co/tbGJiF3GYd

[Marisa Troy @JournalingIBD]

@LoriPlung @PittGILiverNutr @CrohnsColitisFn @CCfdnWPAWV Way to go! What kind of #ORS do you drink if you don't mind me asking?

[Sahara Fleetwood-Beresford 🌱 Patient Advocate 🩺 @Sahara88uk]

Webinar 👩‍💻 Supporting young people with a #stoma: current challenges & future directions: https://t.co/NWbHBCxRb6 June 7th, 6.30 - 8pm BST.

I'll be there 👋 talking about unmet needs & the importance of advocacy groups such as @IBDSuperHeroes. PLUS...

[Sahara Fleetwood-Beresford 🌱 Patient Advocate 🩺 @Sahara88uk]

I MAY be looking for people with, or who have had, #ColorectalCancer for some paid interviews. I was just wondering whether there's anyone in my current network that might be interested if that project moves forward? #ColonCancer