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Joshua Griffis PHA
@JoshuaGPHA
National Support Group Coordinator at the Pulmonary Hypertension Assoc. As a patient & advocate, my life is dedicated to providing hope for the PH community.
Washington DC
Joined January 2013
120 Following
163 Followers
46 Posts
@Delta Notified I've been rebooked for an earlier flight that won't work. Not able to adjust online & I've been on hold for 33minutes - gwtp
@TeamPHenomHope - know that our thoughts are with you as you embark upon this journey. Let the love & support of the PH community fuel you!
BREAKING: United Therapeutics new drug, Orenitram (oral Treprostinal) approved for the treatment of PAH | http://t.co/CxWXuXtb9H
Who to follow
PHA Canada
@PHACanada
A patient support organization serving those affected by pulmonary hypertension (PH): a rare, incurable lung disease affecting up to 10,000 Canadians.
Blue Lips Foundation
@BlueLipsORG
Blue Lips Foundation was established to fund research for early detection of Pulmonary Hypertension.
ERS
@EuroRespSoc
The European Respiratory Society is dedicated to sharing scientific knowledge, fighting lung disease and promoting lung health.
@actelion_com receives Notice of Compliance from @HealthCanada Opsumit - oral ERA to treat #PulmonaryHypertension | http://t.co/t0swApqOQc
#ff @PHPeddler diagnosed with a deadly lung disease, now cycling to raise awareness of, and funds for, #pulmonaryhypertension
The @Texas_Heart Institute studying injectable prostacyclin. One injection every four weeks, no permanent catheter. http://t.co/ffgc4q9tte
@NIH offering funding opportunity for pediatric pulmonary hypertension research and development (PAR-13-325) http://t.co/daB8mFBFUR
BREAKING! @BayerHealthCare's new drug Adempas, approved by FDA for treatment of PAH and CTEPH. Another step closer. | http://t.co/KD1wcBenSP
Read about a member of @TeamPHenomHope planing to cycle across the United States to raise awareness of PAH | http://t.co/MlUpVzvVzM
Watch this video about a 3yo w/PAH and his family raising funds and awareness | http://t.co/XDPF4mra5b
App submitted to FDA by VentriPoint for approval of Angelo - a new r. ventricle imaging sys. Could be great for PHers http://t.co/BgnUG4OVdb
I'm cycling 3000 miles to raise awareness of, and funds for, Pulmonary Hypertension. Please like & share my FB page | http://t.co/U6nH8d7PdK
Check out this fantastic fundraiser - "Color PHor a Cure": http://t.co/pBd8lTYWXJ | and the video: http://t.co/QbNnCvFMLj
H.R. 2703: Pulmonary Hypertension Research and Diagnosis Act - New Co-Signer @RepDavidValadao | http://t.co/uPY4lxblDB
At the 4th annual Festival por la Vida spreading awareness to an underserved population | #phaware
@short_of_breath will be live-tweeting from #OTRSanFran . . . If you can't join us, follow the tweets.
Today is a fantastic day for America -- DOMA is dead, PROP 8 to follow. Social justice and equal rights for all! #Domaisdown
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